Dominic's Medical Fund
Donation protected
Hyper Eosinophilic Syndrome HES diagnosis:
During the spring of 2016, our son Dominic, developed an uncontrollable asthma that had him in and out of the PCP and the E.R. all spring. Since he had never had asthma or allergies of any kind, she sent him to UNC where blood-work revealed several chronically elevated components with his white blood count. In particular, his eosinophils were at the dangerous level of 3500. This white blood cell is responsible for fighting off parasites and allergens and since he was negative for both, the cells were fighting many of his major organs: his lungs, heart, GI tract and sinuses. By Christmas, the hematologist we were seeing scheduled a bone marrow biopsy that revealed he had a blood disorder called Hyper Eosinophilic Syndrome, which is a rare adult disorder that only five in a million adults get, but somehow, our sixteen year old has it. There is no cure, and there aren't many options of what can be prescribed to keep these eosinophils from getting too high. He currently sees a team of 8 specialists at UNC each month. Many months we are there 4-6 times since every involved organ must be monitored by a specialist.
This now brings us to our need for Go Fund Me donations.There is a clinic that specializes in HES called the Cincinnati Clinic for Eosinophilic Disorders (CCED) and they would like to see our son and do extensive testing on Dominic to see what options may be available to try to help slow down the effects of HES on his system.
We need to cover travel & lodging expenses for Vickie (My wife & Dominic's Mother) and Dominic for at least one week & possibly more since there will most likely be return trips to Ohio needed in the not-so-distant future.We also need to send payments to CCED to cover the preliminary procedural costs before they'll even begin handling his case.
When our son first started showing symptoms, I was in between jobs so there was no insurance coverage for all of the early Dr. visits and ER trips that were being made. We have already taken out a second loan on our home to try to stay current on our bills and medical expenses. Friends & family have also been generously helping as much as they have been able. We are so humbled by their support and love shown thus far for our entire family.
Finally, Dominic was approved for medicaid so they are helping with most of the current cost of his care for now-but they will not be funding any portion of the care at CCED in Ohio.
That brings us to where we find ourselves today.
We understand that the economy has been very troubling over the last few years and that money is tight for many families so we only ask that you give as you are able. If you are not able to give financially we could sure use your prayers as this road is going to be a long one for Dominic.
During the spring of 2016, our son Dominic, developed an uncontrollable asthma that had him in and out of the PCP and the E.R. all spring. Since he had never had asthma or allergies of any kind, she sent him to UNC where blood-work revealed several chronically elevated components with his white blood count. In particular, his eosinophils were at the dangerous level of 3500. This white blood cell is responsible for fighting off parasites and allergens and since he was negative for both, the cells were fighting many of his major organs: his lungs, heart, GI tract and sinuses. By Christmas, the hematologist we were seeing scheduled a bone marrow biopsy that revealed he had a blood disorder called Hyper Eosinophilic Syndrome, which is a rare adult disorder that only five in a million adults get, but somehow, our sixteen year old has it. There is no cure, and there aren't many options of what can be prescribed to keep these eosinophils from getting too high. He currently sees a team of 8 specialists at UNC each month. Many months we are there 4-6 times since every involved organ must be monitored by a specialist.
This now brings us to our need for Go Fund Me donations.There is a clinic that specializes in HES called the Cincinnati Clinic for Eosinophilic Disorders (CCED) and they would like to see our son and do extensive testing on Dominic to see what options may be available to try to help slow down the effects of HES on his system.
We need to cover travel & lodging expenses for Vickie (My wife & Dominic's Mother) and Dominic for at least one week & possibly more since there will most likely be return trips to Ohio needed in the not-so-distant future.We also need to send payments to CCED to cover the preliminary procedural costs before they'll even begin handling his case.
When our son first started showing symptoms, I was in between jobs so there was no insurance coverage for all of the early Dr. visits and ER trips that were being made. We have already taken out a second loan on our home to try to stay current on our bills and medical expenses. Friends & family have also been generously helping as much as they have been able. We are so humbled by their support and love shown thus far for our entire family.
Finally, Dominic was approved for medicaid so they are helping with most of the current cost of his care for now-but they will not be funding any portion of the care at CCED in Ohio.
That brings us to where we find ourselves today.
We understand that the economy has been very troubling over the last few years and that money is tight for many families so we only ask that you give as you are able. If you are not able to give financially we could sure use your prayers as this road is going to be a long one for Dominic.
Organizer
Tim Schell
Organizer
Clayton, NC
