Dominic's Medical Fund
During the spring of 2016, our son Dominic, developed an uncontrollable asthma that had him in and out of the PCP and the E.R. all spring. Since he had never had asthma or allergies of any kind, she sent him to UNC where blood-work revealed several chronically elevated components with his white blood count. In particular, his eosinophils were at the dangerous level of 3500. This white blood cell is responsible for fighting off parasites and allergens and since he was negative for both, the cells were fighting many of his major organs: his lungs, heart, GI tract and sinuses. By Christmas, the hematologist we were seeing scheduled a bone marrow biopsy that revealed he had a blood disorder called Hyper Eosinophilic Syndrome, which is a rare adult disorder that only five in a million adults get, but somehow, our sixteen year old has it. There is no cure, and there aren't many options of what can be prescribed to keep these eosinophils from getting too high. He currently sees a team of 8 specialists at UNC each month. Many months we are there 4-6 times since every involved organ must be monitored by a specialist.
This now brings us to our need for Go Fund Me donations.There is a clinic that specializes in HES called the Cincinnati Clinic for Eosinophilic Disorders (CCED) and they would like to see our son and do extensive testing on Dominic to see what options may be available to try to help slow down the effects of HES on his system.
We need to cover travel & lodging expenses for Vickie (My wife & Dominic's Mother) and Dominic for at least one week & possibly more since there will most likely be return trips to Ohio needed in the not-so-distant future.We also need to send payments to CCED to cover the preliminary procedural costs before they'll even begin handling his case.
When our son first started showing symptoms, I was in between jobs so there was no insurance coverage for all of the early Dr. visits and ER trips that were being made. We have already taken out a second loan on our home to try to stay current on our bills and medical expenses. Friends & family have also been generously helping as much as they have been able. We are so humbled by their support and love shown thus far for our entire family.
Finally, Dominic was approved for medicaid so they are helping with most of the current cost of his care for now-but they will not be funding any portion of the care at CCED in Ohio.
That brings us to where we find ourselves today.
We understand that the economy has been very troubling over the last few years and that money is tight for many families so we only ask that you give as you are able. If you are not able to give financially we could sure use your prayers as this road is going to be a long one for Dominic.
How do we say thanks for all the support you have so generously shown to us? We can't. Words just seem to fall short. We met all of our expenses with the clinic in Cincinnati and we have you all to thank for that.
The trip to Cinci went about as well as we expected.
No major breakthroughs but we gained some good information that will be quite helpful in the months to come.
We couldn't have done it without you. We are humbled by all of your love & support. You all are the best!!
Tomorrow is the big day. Thanks to all of you and many more who gave of their time and resources to make this happen. At 8am we will meet a volunteer pilot who will fly Vickie & Dominic to Ohio.
We thank you all for your prayers and support!! This wouldn't be happening so soon without you.
Happy Friday to you all!
We have been overwhelmed by the generosity of you all!! Your willingness to help has been an amazing thing to see.
I am happy to say that due to your prayers and GOD's favor our goal is now coming down to only $20,000.
That means we are well over half way to our goal!
We have just gotten word that Angel Wings has agreed to fly Dominic & Vickie to OH!!! We are waiting for word that a pilot will take this flight. I am confidant that this will happen.
Thank you to all of you for your generous donations, continued prayers & unending support!
We couldn't have made it this far without you!
We are so thankful for the response from all of you over the last 8 days! Words don't come close to expressing our gratitude.
We got a call from the clinic in Cincinnati today and they want to see Dominic the week of March 27th.
Much still needs to happen before then - we are trying to make travel arrangements and schedule arrangements. Lodging, local transportation in OH....MUCH still to be done.
Please pray for us over the next several days as the clinic gives us more detailed info on the finances we'll need to walk in their doors in March. What we know right now is we are still in need of at least $5,000 just to be seen for this initial visit.
Thanks again for your unwavering support & prayers!
Tim, Vickie & Dominic
Thinking of you and yours at this time....hoping u feel better
You are in our thoughts and prayers. Sending our love to your family.
I wish I had more to give but know that you'll be in our prayers and I'm sharing the page everywhere I can ❤
Thanks Anita, I have learned a lot and had no idea that there were so many Eosinophilic illnesses! The illnesses associated to diet and allergens are running rampant across this nation and CCED sees numerous kids really suffering with them. Dominic's, however, is the only Eosinophilic disorder that has nothing to do with either which is why it is so rare. It is a true blood disorder. His is also idiopathic (making it even more rare) meaning the doctors have no idea why his eos started multiplying on their on. I am so glad your son's EOE has been controlled with diet, though. I have a neighbor whose son and father have had to do the same thing your doing to keep them off the steroids. God bless!
My son has eosiniphilic esophogitis and he had found huge relief through nutritional response testing and while food supplementation. If you can find someone who does NRT in your area, it is relatively inexpensive and zeros in on the organs that are the problem and feeds them so they can fight and get rid of imbalances and illnesses. We are in wi which is to far, but there are others resources
Tim, I am sorry to hear you are going through this fight. Check out two local groups that can likely help. MeFine Foundation and Childrens Flight of Hope.