Help Bayler Walk Again

$3,725 of $15,000 goal

Raised by 34 people in 11 months
Hi friends, 
We are Adam and Casey Garant, parents of four beautiful children.  

:::::UPDATE:::::

WE HAVE NOW BEEN SELECTED FOR A TRIAL PAIN CLINIC IN IOWA CITY AT THE CHILDRENS HOSPITAL.  THIS CLINIC HAS PSYCHOLOGISTS,  TRAINED AMPS SPECIALISTS, AND A PAIN MANAGEMENT SPECIALIST . WE HAVE AN INITIAL EVALUATION (3 HOURS LONG) ON JULY 30TH IN IA CITY. WE WILL STILL KEEP OUR NOVEMBER APPOINTMENT IN KANSAS CITY BUT, WE WANT TO TRY THIS CLINIC FIRST DUE TO LOCATION AS WELL AS THE EXCELENT TEAM OF DOCTORS AND OUR COMMUNITY SUPPORT WE HAVE LOCALLY. PLEASE CONTINUE TO PRAY FOR GUIDANCE AS WE NAVIGATE THROUGH ALL OF THIS! THANK YOU ALL FOR YOUR FINANCIAL SUPPORT AS WELL AS THE PRAYERS LIFTED UP FOR BOTH BAYLER, AND OUR FAMILY! THERE ARE STILL MANY EXPENSES, BUT WE KNOW THAT THE LORD WILL PROVIDE! LOVE YOU ALL. 

Recently our son Bayler was diagnosed with a very rare condition called AMPS (amplified musculoskeletal pain syndrome) this syndrome causes neuropathic pain unlike that of a healthy functioning brain and body,  and as a result, Bayler has lost the ability to walk. After a lengthy hospitalization stay, Inpatient and outpatient physical and occupational therapy, doctors and therapists have seen very  little progress.




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AMPS needs attention from Doctors who specialize in this syndrome. 
Bayler has been seen by many doctors, all of which are in aggreance that specialized care is necessary in order for Bayler to begin progressing and eventually walk,  run and function again, as well as expected for someone with this condition. 

After careful thought and observation by his team of Doctors we have been referred to Mercy hospital in Kansas City. Mercy hospital is one of the best hospitals in the country, specializing in AMPS.  With this referral comes many concerns. 

Kansas City is about 335 miles away from home (about 6 hours) Casey will be going with Bayler, but Adam must continue working. Our main concerns are
▪ childcare costs during the summer while adam is working
▪ possible costs of after school care during the school year
▪ financial burdens from accrued medical expenses as well as those that will come due to insurance only paying a small percentage of extended care. 
▪ general financial cost of living while staying in Kansas City. Casey is not able to stay in the hospital with Bayler for an extended amount of time. There will also be food costs, lodging  costs, fuel consumption, and any additional monies we may need while extended care is in process. 

Unfortunately there is also a psychological aspect of this syndrome that can cause severe depression and anxiety, both of which we are already beginning to see signs of. Bayler will need psychological care AND physical therapy during this time as well as after our stay at Mercy Hospital. 

Bayler is normally a VERY energetic, fun loving, caring and kind young man... and has been so brave throughout this difficult and ongoing process.

In short, we are in a very tight bind and in desperate need of your help financially! We are in aggreance that the power of Christ is miraculous. We truly believe Bayler WILL walk again. We also believe that God uses trained professionals as vessels for His work. 

Any donation will help and we thank you in advance both for  financial needs and for your prayers! 

In His Grip, 
Adam and Casey
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We are pleased and so thankful. Bayler finished his last PT session and he is doing so much better. We met the doctors at Mercy hospital in Kansas city and it was a very enlightening and informative visit. Upon returning home from Mercy hospital we began very intensive physical therapy sessions. He started school again, he struggles with pain and due to that he has found it very difficult to concentrate, but we are learning slowly how to help him cope and do better.
This disease is nasty and very difficult to navigate. Bayler also struggles psychologically as well. An AMPS diagnosis on top of having aspergers is no easy hurdle. He is regularly seeing a councilor to help him with coping skills and anger that is heightened due to all of this.
We appreciate your continued prayers and support throughout this journey. It's not over by any means, but it is definitely better. We are so grateful that the Lord chose us to be the parents to such an amazing and ridiculously talented little boy.
Thanks again,
Adam and Casey
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::::#2 UPDATE::::
We were blessed, due to pain from bayler's recent back injury to have our originally scheduled appointment with Iowa Childrens hospital (July 30th) up to July 20th. We went to the 3 hour long evaluation. It was pretty intense and tiresome, but not AT ALL what we were expecting. It is a new pain clinic that is still in the "building up to" phase and they are unable to provide the level of intensity that is required for pain disorders, especially AMPS. If we were to stick with the plan advised we would continue with 4 days a week of PT at ORA PT in Davenport, and travel 1 day a week for psychological pain therapy and minimal PT and pain management.
Mercy Hospital in Kansas City is very intense and they specialize in children with AMPS specifically. It provides an intense inpatient/outpatient clinic that could have the potential of cutting bayler's healing process in half if not more.
We are all very exhausted in all ways possible and traveling back and forth to Iowa City even more than we do now will only put more of a strain on our family.
The wrench in a possible plan of Bayler and Casey moving temporarily to KC to get this specialized care is, that the first avavailible opening is not until November. His psychological and physical health and healing will at the very least be at a stand still or even get worse, especially the psychological care needed.
We are in prayer for wisdom and guidance as to what the Lord's best is for bayler and our family in this situation. These are very hard choices to make. We can not make them on a whim or without prayer. Casey is exhausted and tries to maintain poise and keep the frustration to a minimum, but as I'm sure you can imagine, is difficult alongside other duties that come with being a wife and a mother to 4 children. School will start on August 13th and she will... (without quick supernatural healing from The Lord) be homeschooling Bayler until he is safely able to attend school, this too will be an added strain on our family.
We are still in need of financial support, as well as practical help to ease the strain on our family... most of all we desperately cry out to our Savior in prayer, and pray you will join us in that.
In the mean time we are holding tightly to
Philipians 4:6-7
do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus.
Thank you all so much for your continued support.
+ Read More
::::#2 UPDATE::::
We were blessed, due to pain from bayler's recent back injury to have our originally scheduled appointment with Iowa Childrens hospital (July 30th) up to July 20th. We went to the 3 hour long evaluation. It was pretty intense and tiresome, but not AT ALL what we were expecting. It is a new pain clic that is still in the "building up to" phase and they are unable to provide the level of intensity that is required for pain disorders, especially AMPS. If we were to stick with the plan advised we would continue with 4 days a week of PT at ORA PT in Davenport, and travel 1 day a week for psychological pain therapy and minimal PT and pain management.
Mercy Hospital in Kansas City is very intense and they specialize in children with AMPS specifically. It provides an intense inpatient/outpatient clinic that could have the potential of cutting bayler's healing process in half if not more.
We are all very exhausted in all ways possible and traveling back and forth to Iowa City even more than we do now will only put more of a strain on our family.
The wrench in a possible plan of Bayler and Casey moving temporarily to KC to get this specialized care is, that the first avavailible opening is not until November. His psychological and physical health and healing will at the very least be at a stand still or even get worse, especially the psychological care needed.
We are in prayer for wisdom and guidance as to what the Lord's best is for bayler and our family in this situation. These are very hard choices to make. We can not make them on a whim or without prayer. Casey is exhausted and tries to maintain poise and keep the frustration to a minimum, but as I'm sure you can imagine is difficult alongside other duties that come with being a wife and a mother to 4 children. School will start on August 13th and she will... (without quick supernatural healing from The Lord) be homeschooling Bayler until he is safely able to attend school, this too will be an added strain on our family.
We are still in need of financial support, as well as practical help to ease the strain on our family... most of all we desperately cry out to our Savior in prayer, and pray you will join us in that.
In the mean time we are holding tightly to
Philipians 4:6-7
do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus.
Thank you all so much for your continued support.
+ Read More
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