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Helping Hands for Hannah

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Our little ray of sunshine Hannah Jane Cochrane came bursting into mine and Fran's lives in January 2015.  She is our first born and most loved (but don't tell her little sister Isabelle that!).

Like most parents, from the day of her arrival, our lives were changed forever.  However our lives changed even more than we ever knew possible in the months ahead.  

The love was overwhelming as was the fear and worry of what we never knew would face us as a family.  
 
After 5 months of firsts - first cuddle, first bath, first baby grow, first (of many) sleepless nights came a whole heap of first that no parent can be prepared for - first temperature, first seizure, first hospital trip, first of many tests, first doctor to say 'we're not sure what this means...' first aspiration episode and then the devastating first full diagnosis.  
 
Hannah was diagnosed with an extremely rare brain condition called Polymicrogyria (PMG).
 
PMG is a life limiting condition and causes global development delays with severe physical and mental issues and also daily seizures which are hard to detect and control. 

While Hannah is as defiant as ever and can get her message across in ways we never knew existed, she is unable to sit, crawl, walk, talk or see.  She is also unable to tolerate food and is now tube fed.  

Hannah requires full time care and while we are so lucky to have a great support network between family, friends and nurses, the day to day reality can sometimes be extremely difficult.  You can't help and think of all the things we take for granted that your child is going to be afforded by simply being born.  Memories of the first roll, first steps, first ice-cream, first words all taken away from our Hannah Banana. 

This is a lifelong condition and every day presents so many challenges.  Our ongoing goal is to make each day with Hannah special for her in every way, being as comfortable as possible and making the most of special family memories with her sister at home.  And that's where we need your help!
 
As Hannah is now 3, she is getting bigger and her needs are constantly growing, so we are planning to convert our home for Hannah to have her own purpose built bedroom, adapted bathroom downstairs and to purchase specialised equipment for Hannah.   This will make such a difference not only to the care Hannah receives but will keep Hannah in the heart of our home, where she so truly belongs. 
 
Hannah is our everyday hero but even heroes need some help so we are asking all of you to lend a helping hand and donating however much you can afford to 'Helping Hands for Hannah'.  
 
We are hoping that this fund along with a Golf Classic we are organising will enable us to give her the most comfortable home environment. 
 
So please dig as deep as you possibly can as this little super hero will appreciate every penny. 
 
Love Sandra, Fran, Hannah and Isabelle. x




Always a style queen.

At Halloween!


Happy Family Memories

Organizer

Sandra Salmon
Organizer
County Dublin

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