Ari's Journey

Baby Ari who was born on the 10th of September 2015 was born with a condition known as craniosynostosis. This means his skull has fused in four places many years too early (yes... This does mean he is advanced,) but it makes the next 12 months a journey for our little Ari. Because the skull cannot expand properly it compensates by growing more in the direction parallel to the closed sutres. This growth pattern results in abnormal head shape and and abnormal facial features and does not provide enough space for the growing brain. This leads to possible visual impairment, sleeping impairment, eating difficulties, or can present challenges later on in life.

The treatment for craniosynostosis is major surgery on the skull (Craniosynostosis Vault Remodel (CVR) done by a neurosurgeon to open the sections on the skull which have fused too early and reshape it to allow room for the brain to grow.

The team of specialists that will be looking after our angel are based in Adelaide which means The Nakkour family will need to travel. What I am hoping to do is raise as much money for Jess and Gab to help them with the massive costs of their travel, accommodation, surgery, CT scans, anaesthetics, medications, physiotherapy, and multiple follow up appointments.

We greatly appreciate everyone's support and well wishes along this journey!

Thank you from the bottom of our hearts xx