Mayse SMA fund

$1,174 of $8,000 goal

Raised by 29 people in 41 months
Our daughter is two months old and all of a sudden she started not eating right and having different issues. The doctors knew I was a carrier of SMA (spinal muscular atrophy) there is only a very small chance she would have it. They ran a bunch of different tests and confirmed she has SMA and for an infant this is not very good at all. We have a very long road ahead of us but there is some hope they have a test trial in New York for a medicine that may be able to help her. We need as much help as we can get to be able to help our daughter. I also have a 4 year old son and step son that love her more than words can describe. All I ever wanted is for my children to be happy and healthy. Now one of my kids health is not good and I wish it was me instead of her. She is my gift from God. I am praying everyday for her to be healthy again. We are good people and I never ask anyone for anything. For my kids I will make sure I do my best to keep them safe and healthy. Please donate anything you can it will be greatly appreciated I assure you. Thank you everyone and keep our princess Mayse in your prayers!!
www.cureSMA.org
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To my sweet princess Mayse,

As your brother would call you Mace Mace. You have been through more than any adult could ever handle in your 10 months. I know your just a sweet baby girl that doesn't deserve to go through such a horrible disease. You've had two surgeries in the past few months. The first was a Gtube and Nissan placement. Yes we know baby girl it didn't help you. The Nissen failed and got loose and you couldn't eat through the Gtube because you would aspirate and get sick. Now back to the hospital we go to be told they can redo the Nissan or put in a J tube that goes directly to the intestine. Now finally you are able to get your calories since you haven't gained any weight for almost 5 months now. Everyday you fight this and you make me so proud to be your mom. I wish everyday I could fight this battle of SMA for you and take this from you. I will promise you this I will always be by your side fighting with you. Don't you ever forget that and how much your mommy, daddy and brothers love you so much. You keep on fighting baby girl. Please God heal her I couldn't bare not being able to see her everyday and kissing that precious face. I put this in your hands God. Mayse knows this as we pray to you everyday. Don't you stop fighting princess mommy is here!

Love you always &forever,
Mommy
Sleeping with her Bipap on to help her breathe.
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She had her G tube placement and Nissan surgery about a month ago. We still continue our trials in New York and she goes for her next injection in February. She is my everything and she will continue to fight this battle with SMA. When I look into her eyes I see no worry I just see happiness and innocence and strength. Anyone she meets instantly falls in love with her because she is so happy even though she is going through this battle. I am her parent and I will do anything and everything to make sure she lives her life to the fullest and with your help as well I can make it a great one for her. Please help raise awareness and donate if you can. I wouldn't ask this of anyone but if you were in my shoes you would be doing anything you had do for your child and I am doing just that.
Princess Mayse
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My daughter will be 6 months on the 24th recently she became ill and we have been in the hospital since Sunday. She was diagnosed with spinal muscular atrophy type one in July. She had a ND tube placed for feeding temporarily but she may need gtube placement permanently for feeding. She had to be on oxygen and BIPAP since Sunday. She is getting better some days then something else comes about. I have been here with her since day one by her side. Unfortunately I have to work and between parking fees and gas getting back and forth and bills it's a lot but I will be there no matter what. She is the reason I wake up every morning and she won't be able sleep in her own bed for a little while. They are keeping her for another week or two. However long it takes for her to get better. She means the world to me and I hope you can help us in any way that you can. Also, Halloween is right around the corner and she may not be able to go trick or treating her first year. I want to make that special for her if she has to stay in here until then. Please help my little girl and make her life and ours a little easier on us all.
Mayse
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We are going to New York this Wednesday so she can be evaluated in hopes she can be in the test trial it got rescheduled as we were supposed to go the 15th. Time is of the essence! Then we will have to go back in a few weeks following for her to hopefully get the injection with the medicine. We received her schedule for the injections. For the next couple months we will be going back and forth a lot of traveling. Only two out of three kids will actually receive the medicine. Please pray she is one of them. I wish all the kids got the medicine and that they finally get a cure but until then we need all the prayers we can get.
Our princess Mayse
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$1,174 of $8,000 goal

Raised by 29 people in 41 months
Created July 6, 2015
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$50
Stacy Davies
34 months ago
1
1

God Bless You Baby Mayse

$15
Anonymous
34 months ago
1
1
BD
$20
Brian Dunn
35 months ago
1
1

Stay strong and keep fighting.

$40
Ken Stankowski
38 months ago
1
1

Love you guys!

$100
Anonymous
38 months ago
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