The cancer is produced and released by glands in my intestines. It gets carried in blood and dropped off into my liver, where it makes tumors. I am 20 years younger than the average patient, so they decided to treat me radically with radiation. First, a year ago April, I had radiated microbeads sent into my femoral artery and sent directly to my largest tumor (8 x 10 cm) in my liver. Then last September I had more radiation sent to the same tumor by laser. I was laid up for weeks, extreme pain. I have 12 to 15 tumors in my liver.
This cancer does not respond to Chemotherapy. I cannot have a liver transplant. I do recieve a monthly shot called Sandostatin. It slows down the production of hormones in my intestions, so less cancer is secreted. Less cancer sent to my liver, slows the tumors from growing.
There are many side effects to the Sandostatin, pain in my hips, clogs my gallbladder, lethargy. I've had 16 shots now. I had an MRI every 3 months, to check on the condition of the tumors. At some point they may turn radical and the shots will not help keep them in check. I was told that I have about 8 years or possibly more.
Recently, I've come down with Rheumatoid Arthritis... severe pain in my knees, ankles, feet and hand.
Yesterday, my husband, Tim, 50, was diagnosed with Acute Leukemia.... He is in University of Michigan Hospital for the next month. He's already had his first blood transfusion and chemotherapy. BTW, Tim's first wife passed away from Ovarian Cancer after a 3 year struggle.
Words cannot express how shocking all of this has been. The hospital is 1 1/2 hours away from our house. Our deductable is 9,000.00 a year. We are not a high income family. I never thought I would reach out to the public for help, but here I am. And, I'm on my knees.. My husband, Tim, is a strong, caring, moral man. He is loved by his family, coworkers and friends. Words cannot express what I am feeling right now.
It's difficult for me, health wise, to make the drive all the time. It's even worse having to charge up credit cards at the gas pumps.
I truly appreciate anything than anyone is willing to do to help us get through this. Thank you for reading
He's so exhausted all the time. We are hoping the reversal will help him build stamina back. It's hard to watch him struggle, wanting to do things, but unable. We'll have a surgery day by the end of July. He is better off having it done at U of M. All of his original doctors are there, if something should happen.
I hope all of you are enjoying the summer! Happy 4th of July!
We are celebrating Tim's end of Chemo!!! He finished at the end of March. He's still so worn out and underweight. It's been a long haul. We met with the Colon doctor to find out about reversing the Ileostomy. He needs to wait a few months and get his protein level up. He will need to take a month off work for that, very surprised at the recovery on that. He's back to full time work and exhausted every day.
I am still recovering from my heart surgery. Had a mishap and stressed the breast bone when they sawed me open. Was doing so well, now back in pain. Luckily, my Oncologist finally okayed me getting my monthly shot at our local cancer center. Will only have to travel to U of M once every 3 months for management. The local cancer center does not have a doctor that handles my cancer specifically, but can definitely oversee the shot I receive. That's a huge relief since I could drive that far myself anymore.
Will keep you posted as Tim's surgery is scheduled and happens. I'm just happy to have him still here!! Hugs to all of you for all your support!
I am finally completely off pain pills. My chest is still quite sore, but tolerable. Of course, there's a new twist! My shoulder has shooting pains, turns out I have a cyst in there. Have to go to a specialist in May for that.
Once Tim is done the chemo, he will see a doctor about reversing the ileostomy. I am assuming they will want him to wait a few months to get stronger. We will find out in April. Just hard to imagine him having another operation.
Happy Easter to everyone who celebrates!! Thanks for taking the time to read this.
Christine, praying for you and your husband!! May GOD bless you both. Hang in there its a bumpy road ahead, just put it in 4 wheel and keep going. You have already endured so much and i know its got you feeling beat down, but together you can take on anything!
Tim and Christine we continue to pray for you both. Know that there are many of us ding the same. Love Larry and family
My heart is with you all. Julia recently talked to my husband about being a parent with cancer. While nothing takes away the heartache and fear I found great strength in the love and support of people around me. I will send thoughts and prayers for love and strength to you and your family and wisdom to your medical teams. Call me any time to talk yell cry sit quietly buy groceries run errands whatever you need. I will be there for you
Christine, my prayers are with you and your husband at this time of need. Your in my heart as well as for the Class of 1981 God speed.
Sounds like a rough road and my heart is going to you both. I will say extra prayers for your family and health. RA is horrible and I can't even imagine what you two are going through. I can say, you both are at the best Hospital in Michigan. I can't afford to help financially but I will pray and if there is something I can do locally, I will. God speed
I wish you both health and happiness. God knows you've been through enough. ♥