Our dear sweet Giuliana Rose was born on March 25, 2015 with severe meconium aspiration. She was put in a paralytic coma on a ventilator with numerous drugs and medications to cure her of her pulmonary hypertension and lung disease. On April 13 she was transported to Luries Childrens Hospital where she is still currently at because she needed further care. Due to facial birth defects she is unable to orally feed. She has a g tube which she will receive formula thru. Due to severe acid reflux her g tube had been not effective with feeding and was recommended for her to get a gj tube which is a tube that would feed her directly into her small intestine. Last week during this procedure there were severe complications. She had bile spilling into her body and it almost cost her her life. They had to do an emergency surgery and make an incision across her entire abdomen and repair the hole in her small intestine and clean out her insides. She is back on the ventilator with a central line and on numerous medications and antibiotics. She has a tube draining fluid from her stomach and a tube directly in her stomach draining her abdomen and a catheder. After this emergency procedure she had an infection form and just had another emergency procedure where they re opened her same incision and drained infection from her abdomen. She is currently stable on ventilator and heavy pain narcotics. After all infection and abdominal surgery is healed she will still need to learn and tolerate g tube feedings to grow and thrive and continue on her journey. A baby who was to be coming home last Friday is back in critical condition. She is a strong girl who has been thru and seen too much in the short amount of time in which she entered our lives. She is a fighter and continues to fight as we pray for her health and for the day she can finally come home. Please help support Giuliana and pray for her to overcome this and to finally come home and be with her family where she belongs.
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