Please help Giuliana come home!

$6,405 of $1,000 goal

Raised by 90 people in 41 months
Our dear sweet Giuliana Rose was born on March 25, 2015 with severe meconium aspiration.  She was put in a paralytic coma on a ventilator with numerous drugs and medications to cure her of her pulmonary hypertension and lung disease.  On April 13 she was transported to Luries Childrens Hospital where she is still currently at because she needed further care.  Due to facial birth defects she is unable to orally feed.  She has a g tube which she will receive formula thru.  Due to severe acid reflux her g tube had been not effective with feeding and was recommended for her to get a gj tube which is a tube that would feed her directly into her small intestine. Last week during this procedure  there were severe complications. She had bile spilling into her body and it almost cost her her life. They had to do an emergency surgery and make an incision across her entire abdomen and repair the hole in her small intestine and clean out her insides.  She is back on the ventilator with a central line and on numerous medications and antibiotics.  She has a tube draining fluid from her stomach and a tube directly in her stomach draining her abdomen and a catheder.  After this emergency procedure she had an infection form and just had another emergency procedure where they re opened her same incision and drained infection from her abdomen.  She is currently stable on ventilator and heavy pain narcotics.  After all infection and abdominal surgery is healed she will still need to learn and tolerate g tube feedings to grow and thrive and continue on her journey.  A baby who was to be coming home last Friday is back in critical condition.  She is a strong girl who has been thru and seen too much in  the short amount of time in which she entered our lives.  She is a fighter and continues to fight as we pray for her health and for the day she can finally come home. Please help support Giuliana and pray for her to overcome this and to finally come home and be with her family where she belongs.
+ Read More
Baby Giuliana is now 5mths old! We are 3 weeks post op from her first lip/nose repair. Head of pediatric surgery will be re evaluating her sometime this week to see if her small intestine has healed and we can begin to feed her thru her g tube again. If so we can begin feeding slowly working her up to full feeds. As soon as she is eating the correct amount for her age/weight she will be able to have her central line taken out and FINALLY come home! I pray this is this case so she can be home with her family. Too much precious time is being lost and she is growing up before my eyes. It brings me comfort to know that she now has the best guardian angel anyone could ever ask for - my dad- her papa (who adored her and was so worried about her) watching over her now. My heart breaks from the loss of my father but I KNOW he is watching over her now and will protect her ! Thank you all for your continued prayers and positive thoughts to help bring our baby girl home .
Big Girl!
+ Read More
So......due to the fact that we still have the possibility of yet another abdominal surgery again in September we will be correcting giuliana's lip/nose while we are still in the hospital waiting. We are meeting with plastics tomorrow and surgery is tentatively set for Wednesday afternoon. Knowing the first face I fell in love with is going to change has brought such a mix of emotions from happiness to sad. And knowing that she is having another surgery us heartbreaking. She is such a strong girl and has overcome so much already and still has such a long road. Thank you for all if your continued support, positive thoughts, and prayers.
+ Read More
This morning Giuliana will be having her dye test to make sure the hole has completely healed and we can begin to feed her. Please keep her in your thoughts and send some positive energy her way!
+ Read More
As of rt now head of pediatric surgery believes the leak may have healed on its own miraculously!!!! We will need to repeat the dye test next week to make sure it is in fact healed and does not have a mucus plug blocking it. If healed we can begin trying to slowly feed her thru her g tube again and hopefully she can handle it. Her centra line did pull thru her skin today after being in for one month so unfortunately she did have to have another one replaced today. She did great and has been doing well thus far. She even has two bottom teeth coming in! Sad to think she is really that old already and how much precious time has been lost. Thank you all for your continued support, prayers and positive thoughts.
So nice to finally have her off vent!
+ Read More
Read a Previous Update
Michaela McDonald Crowley
41 months ago

Words can not express the amount of generosity, kind thoughts and words and prayers so many people have given to our family in such a hard time. I can not say thank you enough to each and everyone of you for keeping our sweet baby girl in your thoughts and prayers. Xoxo

+ Read More

$6,405 of $1,000 goal

Raised by 90 people in 41 months
Created June 24, 2015
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
$10
Anonymous
38 months ago
AE
$50
Alex Egan
40 months ago

You all are in my prayers.

MS
$50
Margaret Scatchell
40 months ago

Our thoughts and prayers are with you. We are all hoping Giuliana will be home with her family soon. Best to you, Michaela, from all of us at Care-A-Lot.

TB
$100
The Boenzis
40 months ago

xoxoxo... We think of you often and hope for Giuliana's quick recovery!

MW
$50
Mary Walsh
40 months ago

Sending positive thoughts! You are all in my prayers!

Michaela McDonald Crowley
41 months ago

Words can not express the amount of generosity, kind thoughts and words and prayers so many people have given to our family in such a hard time. I can not say thank you enough to each and everyone of you for keeping our sweet baby girl in your thoughts and prayers. Xoxo

+ Read More
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.