Well it has been a whirlwind for the Sasek family. They woke up early Saturday morning to find sweet Olivia having a seizure in her crib. They rushed her to Genesys where they determined she needed to be transported to Hurley PICU. Princess Olivia got the star treatment and was greeted by many familiar faces Mommy recognized from when Gigi used to work at Hurley which made them feel very safe and taken care of. Dr. Nolan, the best of the best, immediately ordered a CT, spinal tap (to rule out menegitis) and EEG. All came back clear, except for the EEG. It showed a focus area on the left side of her brain. It was then decided that she would be transported to Mott Children’s Hospital in Ann Arbor. She would have had her first helicopter ride had it not been for the bad weather! After a rundown of her history and a few more baseline tests which revealed she has rhinovirus, she was put back on an EEG to monitor her brain activity overnight. The results showed some pre seizure activity that was stopped by an amazing drug called Keppra. She has since been taken off the ventilator and has had her NG tube removed. We are still unsure of the cause of her seizures, but we are hopeful for a full recovery and to have our little peanut back to normal soon. Thank you for all your thoughts and prayers, we have felt them and so has sweet Olivia. C S Mott has continued to work diligently to find the cause of her sickness and now have involved the Mayo Clinic in trying to find what is causing little Olivia’s seizures.+ Read More
Baby Olivia had a swallow test this morning she did ok. She could eat applesauce and Cheerios but can’t do fluids yet. She is having a hard time moving her right arm due to the seizures effecting the left side of the brain. She’s got a long road of physical therapy and still waiting on results from the Mayo Clinic. Continued prayers are greatly appreciated
Little love sound asleep last night. We are making progress and continue to pray and hope for the best. Our new mantra is little victories!
Just got an update from Momma Miranda. MRI showed a lot of activity and swelling in the entire left Hemisphere of the brain which is obviously not good. But she is also doing better today. Tracking better, moving better etc. neurology talked to them rheumatology talked to them consensus seems to be that it’s most likely anti NMDA receptor encephalitis. Won't know for sure until tests come back from Mayo which they are hoping to get next week. Today she is getting moved to the general PEDS floor so that’s good. No end in sight for discharge yet but they are just going to except the little victories. Thank you for all your continued thoughts and prayers.
Life is so precious and full of amazing times and moments of happiness and at the same time, life can bring you unexpected challenges and even life changing experiences. Miss Olivia was singing and dancing as she watched her favorite Disney cartoon “Frozen” back on Friday April the 13th to the next day having to be rushed to the emergency room at Genesys Hospital due to her having seizures that had come out of nowhere!!! The Doctors and specialist were not equipped to handle the situation at hand and within a few hours she was transferred to Flints Hurley Children’s hospital. The Doctors were able to finally stabilize miss Olivia as they were preparing an ambulance to rush her to the University of Michigan Children’s hospital down in Ann Arbor. Miss Olivia has been sedated and has continued to experience recurring seizures since this tragedy has started. To make a difficult time even harder, There was a clerical error with Miranda’s health insurance company that she had been diligently working on getting resolved since mid October of 2017. At this point the present and future is unknown and up in the air while the family awaits the results from the various test to come back from the multiple spinal taps, CT scans and blood work and ongoing monitoring of this precious Angel.