Jacob's Journey - his wish to walk
Selective Dorsal Rhizotomy (SDR) is an operation developed by a Doctor in Missouri, America that can be performed to release the spasticity and give Jacob the chance to walk. We will need to fundraise to cover the cost of the procedure.
The money raised for Jacob will enable us to fly him out to America to have the operation performed by the Doctor who pioneered the SDR surgery. It will also pay for the intensive private physiotherapy required for two years after the operation, as this will not be available to him on the NHS.
Jacob is a happy, determined little boy that just wants to learn to walk so he can join in and have fun with his two big sisters. The frustration is beginning to show with him as he grows up and realises his limitations. He so desperately wants to walk but his legs just won't let him.
As a parent it is heartbreaking to have to sit back and watch your very bright, smiley little boy struggle to get around, when all he wants to do is walk. It would mean the absolute world to us to be able to raise this money for him to enable him to have this operation and one day watch him take his first steps.
I didn't want to have to write this post but Jacob's Daddy and I have deliberated long and hard about this and we feel there's no other option...so here goes...
When calculating our fundraising target back in January we did extensive research and carefully budgeted for what we thought we'd need to cover the cost of Jacob's operation and post operative physiotheraphy. Last week I received an email from Jacob's physio advising that from September her hourly rate would be increasing. When we calculated the amount of hours over the two year rehabilitation period, this equates to an increase in the region of £5,000! Also, having spoken to physical trainers and other SDR parents it's become apparent that we'd also need additional equipment at home like a treadmill, physio bench and parallel bars, so we can work with Jacob at home to get him as strong as possible; which we didn't initially include in our target. With all this in mind we have decided to increase our fundraising target from £65,000 to £75,000. Of course, if at the end of it all we have any funds left over we shall donate to another SDR family. I hope you all understand why we have had to do this. I am gutted but can't see there's any other way. Thank you all so much for your continued support. We couldn't do any of this without you, Nikki xx