Willpower for William Fund
Meet our two year old William and how we got here.
Little did we know our world would be turned upside down in a matter of minutes.
On Thursday, February 16th, 2017, I knew something was wrong with my baby boy. He woke up SCREAMING in excruciating pain. His morning started out tossing and turning, flopping around the couch and just trying to find comfort. I had tried everything and as a mother I felt helpless. I immediately took him to our local Emergency center. They ran two tests which did show he was constipated. The doctor, at the time, did not want to stop with just a medication to help William. He did one more test which answered a lot of questions. The doctor came in and said to me, "The ultrasound revealed a mass or a cyst, so we will need to transport him to a different hospital of your choice." I frantically contacted my husband who had worked night shift. My head was spinning and then I realized, my son needs me to be in control.
We were transported quickly. They began to run more tests once we arrived. Friday around noon, a team of surgeons came in and informed me what the "mass" looked like from a CT scan. " It looks to be a type of mass called Rhabdomyosarcoma which is a soft tissue cancer but his is rare due to the location." They scheduled surgery for my son early Monday morning. The surgeon wanted to either pull out the whole mass, cut off a piece, or simply, just look at it.
During surgery my husband and I were in a complete state of devastation! One hour passed, then an hour and a half passed. WHAT IS GOING ON WITH MY BABY BOY?! We were then told everything is fine but they are only going to get a piece of the mass. Not what I wanted to hear. Still waiting and 45 minutes pass.
"Mr. and Mrs. Marion"
"YES!" They're done, finally. We were taken to a consultation room. My heart is racing all while my husband and I anxiously wait on the surgeon to come in.
"Hey guys! Well, we weren't able to pull out the whole mass. It does appear to be Rhabdomyosarcoma only because of the location and size but won't know for sure until we recieve the pathology report. It also seems to be malignant."
Excuse me what?! As I'm fighting back tears I am also terrified. Our son, our baby boy, has a malignant rare type of cancer. Our two year old son, who can barely say one sentence now has cancer. What just happened? Why him? He is so innocent!
Fast Forward to now.
William has been diagnosed with Rhabdomyosarcoma. He is in constant pain because the mass is pressing against his nerves; it is also invading the wall of his baldder, and pushing against his rectal area which is preventing him from using the bathroom. He had to have a colostomy bag put in to place. He recieved a bone scan and bone marrow to determine if this type of cancer has started to spread. William will have to receive Chemotherapy and radiation treatments because the mass is unfavorable. Meaning it can not be removed because of the location.
We have been dealt an unfortunate hand but we are trying to stay strong for William. It is so hard to see our son suffer every single day.
So many of you continue to ask how can we help, well with the encouragement to set aside our pride and allow others to help make things a bit easier in some ways for this very long journey the doctors have told us to expect, we have agreed to share Williams story here and the need for accepting donations to help with medical expenses and treatments going forward.
Our appreciation can't be expressed deeply enough. Thank you all for your prayers and love. We will continue to share updates as they take place.
May God bless you.
Every little bit helps with gas and food for the family when away from home.
His tumor doubled in size since October. Which meant radiation and his first type of chemo treatment did not work or was “unfavorable”...so the doctors did some digging and looked for outside opinions and found a treatment that has a 50% chance of shrinking. Finances are becoming tighter now that Christmas is out of the way so every little bit helps.