My Stem Cell Transplant
You see back in 2010 I was diagnosed with Non-Hodgkins Lymphoma Follicular B-cell.
I've been battling this for that many years now. It sucks but I never stop fighting. My motto is Stay strong!
I've gone through 3 chemos now and they were Bendamustine and Rituxian(BR) which seemed to work for only 6 months and it came back.
Then the plan was a wait and watch for 6 months or so and then I had to find another treatment.
I flew to Ohio State University to see a Dr. Karen Blum who does clinical trials and has very up to date data on the newest drugs. Anyhow, she and her team recommended Lenalidomide combined with Rituxian. So, I deciced to do this b/c the data suggested it had something like a 60% chance of complete response which is very good. So, my Oncologist at Kaiser Permanente adminitered this treatment which lasted for 12 months. It was working and somewhere by the 12th month it had come back and even stronger which is the case. So, my doctor at KP Dr. Antabli and I had to find another treatment. This time I choose RCHOP. This is a very toxic type of chemo more than the previous two other treatments based on a scale of 0- 10 being the toughest in toxcity. I had 6 months of this and that just ended in late February 2015. My Pet scan came back with a PR which is partial remisson. That's good but also, not so good b/c I still have tumars in my lymphnoids. So, now I must do Stem Cell Transplant to finally be free of all cancer cells. The transpalnt will take up to or more than two months being hospitalized and there protocal is to have you living in some type of housing near the hospital. They offer it at some discount but it seems I will have to pay some of it. At this time I really haven't been able to work much. I had a Landscape business that was to much on the physical side for me. So, I had to give this up. I work maybe 10 hours a week as a Legal assitant in a Law office until that is becoming to much demand on me as well. So, I have to keep up my premiums on my Health care coverage which has skyrocketed from 2010 - 2015! Its $732.00 per month. I get some help from family members but this is just going to out of control from the transplant.
I'm told I won't be able to work for 6 to 12 months. I'll be recovering from this whole procedure.
I ask if you can see in your heart to donate to me and help me out I hope this will bring you the best karma has to offer! Its going to be so tough for me this time, not that the chemos weren't tough b/c they are. This is really tough. Thank you and god bless!!!
If we all can keep this page circulating by refreshing it and making sure it gets the maximum view that would be great!
My husband had nonHodgkin's and didn't survive. He was older than you. There are CURES for nonHodkin's. Please check out HDL nanoparticle that was discovered by C Shad Thaxton up at Northwestern University. Please think outside of the chemo box. Pres. Obama gave him the Presidential Outstanding Young Scientists Award. It is completely non-invasive. You could request a clinical trial. Please check it out. There is NO downside. There are new treatments that WORK on nonHodgkins. I will donate to you now.
Just wanted to update and let those out their know I'm at home doing better with each day(Knock on wood) and sign of the cross etc. My gout has come back and is as painful as you can imagine. Nothing seems to work except icing it and that's only short lived. Its caused by all the Immune suppression drugs I have to be on due to my Stem Cell Transplant. My donor cells need to take over my body and function normally like my old immune system did. That takes time. So these drugs cause Uric acid build up which causes gout when the immune system is very low. Lower than a normal healthy persons. So, a whole mess of other issues can pop up like Kidney function can be compromised which I must get blood work done every week to make sure my creatinine is at the proper level. In order to maintain this I have to drink close to 200 ounces of water everyday. Yeah, its a pain and I have to run to the bathroom a lot. I go back to John's Hopkins on Tuesday for tests and check up. Anyhow, I just wanted to send an up date. Thanks, Andy