Coen's Liver Fund

$1,686 of $10k goal

Raised by 25 people in 57 months
Melinda Osbaldiston  Monsildale, QLD

Coen Nelson Osbaldiston......Our Life changing baby

Just not in the way we had expected, Coen Born 26/5/2011,

At 5 weeks old Coen was diagnosed with Biliary Artesia A Rare Life-Threatening Disease that affects approx 1 in 20000 newborns & our lives were changed forever.

After A Bone Marrow Biopsy & A Liver Biopsy were performed for diagnosis, Coen underwent a Kasai Proceedure in an attempt to obtain Bile drainage from his Liver, unfortunatly Coens Liver had already been permanently damaged & he will require a Liver Transplant.

Coen requires a regime of Medications & Medicated formula throughout the day & night to avoid Malnutrition due to his Malabsorbtion of essential Fats & Vitamins, also to try to alleviate the severe itch he experiences caused by the bile build-up in his system.

Coen regularly attends Clinics, his bloods are taken to monitor his levels & he has Hospital admissions to receive Albumin Transfusions or Lipids Infusions depending on the results....of Pathology.

Living in a country town when Coen was diagnosed has required the family to relocate closer to the Royal Childrens Hospital where Coen receives treatment & in the future a new Liver....

Coen's condition has been all consuming financially & emotionally, leaving his family drained by all accounts.

Apart from all of this Coen is a gorgeous little boy with a beautiful smile, & is obviously the centre of our universe.

 

Thanks from Coen's Family

 

Donations can be made directly to Coen's Account
ANZ
Coen Nelson Osbaldiston
BSB- 014-630
Account- 277459383

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Update 27
Posted by Melinda Osbaldiston
9 months ago
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Coen home from another Liver Tune Up, next visit will be for a scope as well as a tune up, Looks like visits will be Monthly from now on.
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Update 26
Posted by Melinda Osbaldiston
10 months ago
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Coen turns 5 tomorrow, such a milestone for us ❤️❤️❤️❤️❤️
5 Year Old ❤️❤️❤️❤️❤️
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Update 25
Posted by Melinda Osbaldiston
13 months ago
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https://www.facebook.com/groups/118359061660682/
Coen's page where people can keep updated on how he is travelling & gain more awareness of Biliary Atresia.
Admission for Liver Tune Up
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Update 24
Posted by Melinda Osbaldiston
45 months ago
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Biliary Atresia Fighters
Biliary Atresia Fighters
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Read a Previous Update
Karen Schuback
57 months ago

My thoughts and prayers are with you beautiful baby Coen xoxox

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$1,686 of $10k goal

Raised by 25 people in 57 months
Created July 18, 2012
Melinda Osbaldiston  
SW
$25
sharon weaver
3 months ago

Continued prayers for Coen and family

SW
$50
Sharon Weaver
9 months ago

My precious great granddaughter, Paisley Crow has this horrible disease. Prayers for your Coen. I see him on FB and he is precious

KM
$10
Kim Mellish
13 months ago
JF
$20
Jen Farrell
37 months ago

You can do this Coen, stay strong little man

$20
Anonymous
46 months ago
ST
$80
Scott, Lisa, coen & Ashton trappett
47 months ago
MB
$50
Melina Benussi
47 months ago

My thoughts are with you and your family I hope you raise lots of money xxx oooo

$100
Anonymous
47 months ago
AK
$20
Annette Knoll
47 months ago

We wish you the very best Coen.

SB
$10
Sally Burbidge
47 months ago

Wish it could be more, hope all goes well for your lovely little boy.

Karen Schuback
57 months ago

My thoughts and prayers are with you beautiful baby Coen xoxox

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