Coen's Liver Fund

$1,661 of $10k goal

Raised by 24 people in 49 months
Melinda Osbaldiston   Monsildale, QLD

Coen Nelson Osbaldiston......Our Life changing baby

Just not in the way we had expected, Coen Born 26/5/2011,

At 5 weeks old Coen was diagnosed with Biliary Artesia A Rare Life-Threatening Disease that affects approx 1 in 20000 newborns & our lives were changed forever.

After A Bone Marrow Biopsy & A Liver Biopsy were performed for diagnosis, Coen underwent a Kasai Proceedure in an attempt to obtain Bile drainage from his Liver, unfortunatly Coens Liver had already been permanently damaged & he will require a Liver Transplant.

Coen requires a regime of Medications & Medicated formula throughout the day & night to avoid Malnutrition due to his Malabsorbtion of essential Fats & Vitamins, also to try to alleviate the severe itch he experiences caused by the bile build-up in his system.

Coen regularly attends Clinics, his bloods are taken to monitor his levels & he has Hospital admissions to receive Albumin Transfusions or Lipids Infusions depending on the results....of Pathology.

Living in a country town when Coen was diagnosed has required the family to relocate closer to the Royal Childrens Hospital where Coen receives treatment & in the future a new Liver....

Coen's condition has been all consuming financially & emotionally, leaving his family drained by all accounts.

Apart from all of this Coen is a gorgeous little boy with a beautiful smile, & is obviously the centre of our universe.

 

Thanks from Coen's Family

 

Donations can be made directly to Coen's Account
ANZ
Coen Nelson Osbaldiston
BSB- 014-630
Account- 277459383

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Update 27
2 months ago
Coen home from another Liver Tune Up, next visit will be for a scope as well as a tune up, Looks like visits will be Monthly from now on.
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Update 26
3 months ago
Coen turns 5 tomorrow, such a milestone for us ❤️❤️❤️❤️❤️
5 Year Old ❤️❤️❤️❤️❤️
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Update 25
6 months ago
https://www.facebook.com/groups/118359061660682/
Coen's page where people can keep updated on how he is travelling & gain more awareness of Biliary Atresia.
Admission for Liver Tune Up
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Update 24
37 months ago
Biliary Atresia Fighters
Biliary Atresia Fighters
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Read a Previous Update
Help spread the word!
 668 total shares
Karen Schuback
49 months ago

My thoughts and prayers are with you beautiful baby Coen xoxox

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$1,661 of $10k goal

Raised by 24 people in 49 months
Created July 18, 2012
Melinda Osbaldiston     Medical   Monsildale, QLD
SW
$50
Sharon Weaver
2 months ago

My precious great granddaughter, Paisley Crow has this horrible disease. Prayers for your Coen. I see him on FB and he is precious

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KM
$10
Kim Mellish
6 months ago
JF
$20
Jen Farrell
29 months ago

You can do this Coen, stay strong little man

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$20
Anonymous
39 months ago
ST
$80
Scott, Lisa, coen & Ashton trappett
39 months ago
MB
$50
Melina Benussi
39 months ago

My thoughts are with you and your family I hope you raise lots of money xxx oooo

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$100
Anonymous
40 months ago
AK
$20
Annette Knoll
40 months ago

We wish you the very best Coen.

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SB
$10
Sally Burbidge
40 months ago

Wish it could be more, hope all goes well for your lovely little boy.

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RJ
$100
Renata Jockel
41 months ago

Hoping everything is going well with your gorgeous little boy....Renata & Louis (friends of Amy & Darren )

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Karen Schuback
49 months ago

My thoughts and prayers are with you beautiful baby Coen xoxox

+ Read More
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