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Vinessa's Jazmine Project & MCD

$2,090 of $7,030 goal

Raised by 28 people in 7 months
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Vinessa was recently diagnosed with a rare immunological Mast Cell Disease. 

Vinessa's Labradoodle Jazmine is undergoing training to become a service dog.  Jazzy will help with medical alert, peanut detection, and deep pressure therapy.  Vinessa is also being referred to a Mast Cell Disease specialist so that we might better understand her condition and hopefully find a more effective medical care plan.

Mast Cells are cells in the body that control histamine and are largely responsible for allergic reactions and anaphylaxis.  They are found in all tissues and are essential for correct functioning of the body.  Vinessa's mast cells are not functioning properly and cause frequent "allergy like" symptoms.  Symptoms of Mast Cell Disease vary, but can effect every bodily function and can change over time.

Mast Cell Disease is rare occurring in fewer then 200,000 people in the United States. 

Vinessa experiences life threatening idiopathic anaphylaxis because of her Mast Cell Disease.  Anaphylaxis is a serious allergic reaction that is rapid in onset and may cause death.  It typically causes an itchy rash, throat or tongue swelling, shortness of breath, vomiting, light headedness, and low blood pressure.   

There is no cure for Mast Cell Disease

Vinessa has experienced 29 anaphlyactic reactions in the past five years.  Between May 2017 and January 2018 Vinessa has had 10 anaphylactic reactions and had to be admitted to the hospital for several days during the last flare.

Currently, her condition has worsened to the point she can no longer attend school and has been moved to a home bound program.  

She is being referred to the University of Colorado Research Complex in Aurora, Colorado at the beginning of March.  She will be there for a week or longer for testing and evaluation. 

Jazmine is going to enter board and train service dog training to complete the remaining portion of her training as quickly as possible.  

Our hope is that with the medical expertise found at the University of Colorado we can find a care plan that allows Vinessa to return to school and all of life's activities that she enjoys.  Jazzy will be an intricate part of Vinessa's independence.  When she is fully trained she will be allowed to go anywhere Vinessa goes.  Her ability to alert for help if Vinessa has a reaction and detect peanuts (which is Vinessa's most serious trigger) will be a life saving tool!

Service dog training and Mast Cell Disease treatment comes at a large financial cost.

Donations to Vinessa’s Jasmine Project will help greatly!

GoFundMe Campaign Donations will go directly towards Jazmine's service dog training expenses and the cost of our trip to the Mast Cell Disease specialist in Colorado.

Here's the break down of expenses

Jazmine's service dog training 

Public Access Board and Train=$1,500
Advanced Public Access and Task Training = $3,000
Service Dog Vest, Leash, and Patches = $100
Dog Booties=$35
TOTAL: $4635

Colorado travel expenses
Fuel: $400
Lodging: $945
Food: $1050
Total: $2,395


We are determined to help Vinessa with this medical struggle and we know we wont do it alone!  

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We appreciate all the love and support that has been given to us by our wonderful friends and family.  Thank you!      
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Today Vinessa was able to get a cashier's check made out to Wind River Tails and Trails for the final payment for Jazzy's training!

We are continuing to fundraise to help Vinessa with her medical and travel expenses to Colorado for her visits with the specialists at UCHealth.

Thank you to everyone who has supported Vinessa through donations and sharing her campaign! In a few short weeks she will have Jazzy home and working to keep her safe in public and help eliminate stress and anxiety that comes with having a chronic illness. We will continue to do all we can to get Vinessa the necessary medical treatment to combat her condition. This is her "new normal", but we are determined to help her live the most independent successful life possible.
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Unfortunately, Vinessa spent time in the ER again through the early morning hours this morning. Mast Cell Disease is unpredictable and often a mystery. We have no idea what caused her reaction. We are thankful for the Xolair injections, because they do keep the anaphylaxis at bay most days and keep the reactions she does have less severe. We feel fortunate that her epi did it's job and she didn't have a rebound reaction. She is home resting now. Unfortunately, now that she's had another major flare it will once again be an uphill journey. We are hoping she will be healthy enough to attend prom the second week in May and walk at her Graduation in June.
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Here's a quick update on Vinessa and Jazzy.

Jazzy is on her final stretch of training. She now alerts to peanuts and is going to start training for almond. She should be ready to come home mid May. Vinessa's second round of specialist appointments at UChealth in Denver has been scheduled for the 18th-22nd of June. This trip has her seeing a Cardiology specialist to help with her POTS diagnosis and do tilt testing, a GI specialist because she's having major GI issues, her Immunologist Dr. Dreskin, and a Speech Pathologist. She is on the list to see the Geneticist, but that appointment is years to come at the moment. Vinessa is still struggling with her health and is unable to attend school. However, through her homebound school program she is still completing her Senior year and is scheduled to graduate in June. We are doing everything we can to get her health back on track. When Jazzy is done with her training we know that she will be a positive help to Vinessa's daily living.

We will need to stay in Colorado longer then we did on the first trip and Jazmines training is only halfway paid up. We have to cover the second half of her training by the time she is ready to come home. We can't thank you enough for your generosity in donations for this cause. Please continue to share our campaign. Every little bit helps.
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Today was Vinessa's big appointment Dr Dreskin the mast cell specialist at UCHealth. She also had her appointment with hematology and had a bone marrow biopsy taken. Tomorrow she will see the ENT to talk more about her throat swelling.

Dr. Dreskin was a plethora of knowledge. He suspects she is dealing with MCAS (Mast cell Activation Disorder). The biopsy results will tell us more. We should have results in about 3 weeks. He adjusted her histsmine medications in hopes to help manage her reactions better and said he feels that the Xolair injections are working to calm the mast cells and curb anaphylaxis. He also suspects a condition called POTS (information linked below) that she will need to see UCHealth Cardiology for, and another condition EDS (information linked below) and she will need to see a UCHealth geneticist. He also wants her to see the GI specialist at UCHealth. All of the referrals are being made to specialist in Colorado, because of the nature of her condition. POTS and EDS are commonly linked conditions with Mast Cell Disease.

So, we will be making another trip in three months for a follow-up with Dr. Dreskin and see the Cardiologist and GI specialist. There is currently a long waiting list (2yrs) to see the Geneticist specialist that helps EDS patients. She is now on the list.

We also learned through a major reaction that ended at the ER today, that Vinessa can not take Ativan. I

It was a very long stressful day, but we accomplished a lot. All of your support, well wishes, and prayers have helped tremendously. We now know that the road is much longer, but we have a great support system with our amazing friends and family. Thank you all!

POTS information: http://www.dysautonomiainternational.org/page.php?ID=30


EDS information:
https://www.ehlers-danlos.com/what-is-eds/
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$2,090 of $7,030 goal

Raised by 28 people in 7 months
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