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Vinessa's Jazmine Project & MCD

$1,740 of $7,030 goal

Raised by 25 people in 2 months
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Vinessa was recently diagnosed with a rare immunological Mast Cell Disease. 

Vinessa's Labradoodle Jazmine is undergoing training to become a service dog.  Jazzy will help with medical alert, peanut detection, and deep pressure therapy.  Vinessa is also being referred to a Mast Cell Disease specialist so that we might better understand her condition and hopefully find a more effective medical care plan.

Mast Cells are cells in the body that control histamine and are largely responsible for allergic reactions and anaphylaxis.  They are found in all tissues and are essential for correct functioning of the body.  Vinessa's mast cells are not functioning properly and cause frequent "allergy like" symptoms.  Symptoms of Mast Cell Disease vary, but can effect every bodily function and can change over time.

Mast Cell Disease is rare occurring in fewer then 200,000 people in the United States. 

Vinessa experiences life threatening idiopathic anaphylaxis because of her Mast Cell Disease.  Anaphylaxis is a serious allergic reaction that is rapid in onset and may cause death.  It typically causes an itchy rash, throat or tongue swelling, shortness of breath, vomiting, light headedness, and low blood pressure.   

There is no cure for Mast Cell Disease

Vinessa has experienced 29 anaphlyactic reactions in the past five years.  Between May 2017 and January 2018 Vinessa has had 10 anaphylactic reactions and had to be admitted to the hospital for several days during the last flare.

Currently, her condition has worsened to the point she can no longer attend school and has been moved to a home bound program.  

She is being referred to the University of Colorado Research Complex in Aurora, Colorado at the beginning of March.  She will be there for a week or longer for testing and evaluation. 

Jazmine is going to enter board and train service dog training to complete the remaining portion of her training as quickly as possible.  

Our hope is that with the medical expertise found at the University of Colorado we can find a care plan that allows Vinessa to return to school and all of life's activities that she enjoys.  Jazzy will be an intricate part of Vinessa's independence.  When she is fully trained she will be allowed to go anywhere Vinessa goes.  Her ability to alert for help if Vinessa has a reaction and detect peanuts (which is Vinessa's most serious trigger) will be a life saving tool!

Service dog training and Mast Cell Disease treatment comes at a large financial cost.

Donations to Vinessa’s Jasmine Project will help greatly!

GoFundMe Campaign Donations will go directly towards Jazmine's service dog training expenses and the cost of our trip to the Mast Cell Disease specialist in Colorado.

Here's the break down of expenses

Jazmine's service dog training 

Public Access Board and Train=$1,500
Advanced Public Access and Task Training = $3,000
Service Dog Vest, Leash, and Patches = $100
Dog Booties=$35
TOTAL: $4635

Colorado travel expenses
Fuel: $400
Lodging: $945
Food: $1050
Total: $2,395


We are determined to help Vinessa with this medical struggle and we know we wont do it alone!  

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We appreciate all the love and support that has been given to us by our wonderful friends and family.  Thank you!      
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Today was Vinessa's big appointment Dr Dreskin the mast cell specialist at UCHealth. She also had her appointment with hematology and had a bone marrow biopsy taken. Tomorrow she will see the ENT to talk more about her throat swelling.

Dr. Dreskin was a plethora of knowledge. He suspects she is dealing with MCAS (Mast cell Activation Disorder). The biopsy results will tell us more. We should have results in about 3 weeks. He adjusted her histsmine medications in hopes to help manage her reactions better and said he feels that the Xolair injections are working to calm the mast cells and curb anaphylaxis. He also suspects a condition called POTS (information linked below) that she will need to see UCHealth Cardiology for, and another condition EDS (information linked below) and she will need to see a UCHealth geneticist. He also wants her to see the GI specialist at UCHealth. All of the referrals are being made to specialist in Colorado, because of the nature of her condition. POTS and EDS are commonly linked conditions with Mast Cell Disease.

So, we will be making another trip in three months for a follow-up with Dr. Dreskin and see the Cardiologist and GI specialist. There is currently a long waiting list (2yrs) to see the Geneticist specialist that helps EDS patients. She is now on the list.

We also learned through a major reaction that ended at the ER today, that Vinessa can not take Ativan. I

It was a very long stressful day, but we accomplished a lot. All of your support, well wishes, and prayers have helped tremendously. We now know that the road is much longer, but we have a great support system with our amazing friends and family. Thank you all!

POTS information: http://www.dysautonomiainternational.org/page.php?ID=30


EDS information:
https://www.ehlers-danlos.com/what-is-eds/
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I just got off of the phone with Dr. Dreskin the head of allergy and immunology at UCHealth Colorado. Vinessa is all set for her appointments at the research center starting March 26th.

We will be in Colorado for a few days talking with the specialist about a better health care plan. He wants to do a bone marrow biopsy to rule out some things. He suspects it will come back normal.

We will break our travel time up, because long road trips cause worstening of her condition. We will take the trip slow and easy and try to keep her as comfortable as possible.

Thankfully, through donations it isn't as financially stressful to make this long trip. We will have to stay several days in a motel. Meals for Vinessa when traveling are expensive due to her serious food restriction diet. We will not be able to drive through or grab snacks along the way for her. Most of the restaurants and food choices that are safe are also quite expensive.

We can't thank you all enough for your generosity and support. Every dollar donated goes towards the effort to get her health back on track so she can gain a more active and independent life.

Please keep Vinessa in your prayers and positive thoughts that the trip and testing goes well.
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Did you know we will be a two service dog family? Vinessa and Jazzy and her Dad and Cadence have been owner training together through the help of the Wind River Tails & Trails service dog training program. They were both on the same training schedule until Vinessa's illness left her unable to continue the Good Canine Citizenship portion and beginning of Public Access owner training with Jazzy.

Yesterday we dropped Cadence off at board and train also. Jazzy was supposed to go into board and train with Cadence, but because of the amazing support through donations we were able to place Jazzy in board and train early so she could continue her training and stay on schedule.

None of this would be possible if it weren't for the generosity of others. Cadence's training was gererously paid for in full through funds donated by the Rocky Mountain Warriors Foundation. Jazzy was then donated to Vinessa by the Rocky Mountain Labradoodle's kennel in Colorado. We knew we would need to do some fundraising to help pay for Vinessa's training, but didn't anticipate her sudden health decline and need for Jazzy to go into board and train early which created a much larger expense then expected.

We are continuously blessed through this process and honestly can't describe our sincere thanks to everyone who has had a hand in helping us. Both of the dogs serve a valuable purpose in our lives and will help achieve a better quality of life for Vinessa and her dad.
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Great news! Vinessa officially has an appointment with the Mast Cell Specialist in Colorado starting on March 26th. She will be seeing Dr. Dreskin the department head of the Allergy and Immunology at the University of Colorado Research Center. We have faith that Dr Dreskin can help us with a positive care plan and get Vinessa back on her feet again.

Big thank you to everyone who has donated to this campaign. Every donation goes toward travel expenses to the mast cell specialist and Vinessa's service dog training.

Please continue to share this campaign so we can work towards the second half of Jazzy's service dog training.
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$1,740 of $7,030 goal

Raised by 25 people in 2 months
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DB
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Deb Bullock
26 days ago
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$50
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