Jimmy  Darts

SB Mowing

Pattie Gonia

Little Miss Flint

Kalina Silverman / @makebigtalk on Instagram

Samuel Weidenhofer

Patriotic Kenny Foundation

Ben Saunders - Flawless Cleaning

The Dogist

Peter Bond

Amy Jandrisevits

Ask Uncle Jack

That Good News Girl

Tess Bohne

FowlMouthFarmer

Latonja and Taylor Richardson

Officer Richard Craig

Flavor Flav

John Wolfe

Khloe

<div>Hi,
</div>
<div>A heartfelt Thank you for reading our story
</div>
<div>We are a family from Surrey.
</div>
<div>About Gurmoh
</div>
<div>Gurmoh is a joyful 3-year-old who attends preschool, loves making friends, and connects easily with both children and adults. His favorite song is Wheels on the Bus, and he happily dances to Baby Shark. He dreams of becoming a firefighter and spends his days driving his toy fire truck around the house, proudly wearing his hat.
</div>
<div>⸻
</div>
<div>Medical Condition
</div>
<div>Gurmoh has a gait abnormality and struggles with balance on uneven surfaces. He has been diagnosed with a rare, progressive neurodegenerative disease—Spastic Paraplegia (SPAST c.1496 G&gt;A), caused by a de novo mutation (neither parent carries it).
</div>
<div><br />
</div>
<div>This condition progressively damages the nerves responsible for movement and cognition. It leads to painful muscle stiffness and, over time, paralysis of the legs and trunk.
</div>
<div>⸻
</div>
<div>What This Means for His Future
</div>
<div><br />
</div>
<div>Without timely gene therapy, Gurmoh is expected to lose his ability to walk, eat, speak, and eventually his independence. He may also experience severe pain and cognitive decline.
</div>
<div><br />
</div>
<div>Today, he remains independent, with challenges mainly on stairs and uneven ground.
</div>
<div>⸻
</div>
<div>Why There Is No Treatment Yet
</div>
<div><br />
</div>
<div>There is currently no approved therapy. Due to the rarity of his condition—he is the only known case in Canada—treatment must be individually developed for his specific mutation within the SPG4 category.
</div>
<div>⸻
</div>
<div>A Real Path Forward
</div>
<div>Gene therapy has already been successfully developed for similar conditions, such as SPG50, demonstrating that treatment is possible.
</div>
<div><br />
</div>
<div>McGill University has committed in writing to develop a personalized gene therapy for Gurmoh, led by Dr. Ziv Gan-Or, Director of Clinical Research at The Neuro. This gives him a critical window of hope before further progression.
</div>
<div>Each and every dollar will go into developing this gene therapy.
</div>
<div>⸻
</div>
<div>Financial Challenge and why we need help
</div>
<div><br />
</div>
<div>The estimated cost to develop and deliver this therapy is $6–8 million, covering research, pre-clinical, and clinical phases. Early stages depend heavily on patient and philanthropic funding, while later stages may receive government support.
</div>
<div>We cannot do this alone. We are giving everything we can to this but it’s not possible without your support. Each and every dollar and share makes a huge difference for us
</div>
<div><br />
</div>
<div>Gurmoh’s ongoing care costs us approximately $6,000–$8,000 per month, including therapies, specialized equipment, and frequent travel for intensive treatment. After this one time gene therapy treatment he will be cured of this disease and could lead a normal life.
</div>
<div>⸻
</div>
<div>Time is critical
</div>
<div><br />
</div>
<div>Gurmoh needs $2.7 million to initiate and accelerate the development of his gene therapy. The science, expertise, and infrastructure are already in place at McGill—funding will determine how quickly treatment can reach him. Every second his nerves are dying because of this disease and they cannot be recovered back. He needs the treatment as soon as possible. If the funding doesn’t come in time it will not be possible to save him from this disease
</div>
<div>⸻
</div>
<div>Message from our family
</div>
<div><br />
</div>
<div>Like any child, Gurmoh deserves a happy, pain-free, and independent life. He is not asking for anything extraordinary—just the chance to live like every other child.
</div>
<div>With your help, his story doesn’t have to be one of loss— it can be one of hope, strength, and a brighter future.
</div>
<div>From our family to yours, thank you for listening—and for standing with Gurmoh
</div>
<div><br />
</div>
<div>Time is critical. Every moment matters.
</div>
<div><br />
</div>
<div>For more information visit
</div>
<div><a href="https://spg4hope.org/" target="_blank" rel="noreferrer noopener"><a href="https://spg4hope.org/" target="_blank" class="" rel="nofollow noopener noreferrer">https://spg4hope.org/</a></a>
</div>
<div><br />
</div>
<div>Social media
</div>
<div>Instagram
</div>
<div><a href="https://www.instagram.com/spg4hopefoundation_gurmoh?igsh=eTh4ZmtkeGpjNWZr" target="_blank" rel="noreferrer noopener"><a href="https://www.instagram.com/spg4hopefoundation_gurmoh?igsh=eTh4ZmtkeGpjNWZr" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.instagram.com/spg4hopefoundation_gurmoh?igsh=eTh4ZmtkeGpjNWZr</a></a>
</div>
<div><br />
</div>
<div>Facebook
</div>
<div><a href="https://www.facebook.com/share/1CUxJ2D2wT/" target="_blank" rel="noreferrer noopener"><a href="https://www.facebook.com/share/1CUxJ2D2wT/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.facebook.com/share/1CUxJ2D2wT/</a></a>
</div>
<div><br />
</div>
<div>Tik tok
</div>
<div><a href="https://www.tiktok.com/" target="_blank" rel="noreferrer noopener"><a href="https://www.tiktok.com/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.tiktok.com/</a></a>@spg4hopefoundation?_r=1&amp;_t=ZS-95Pj0O2SMau
</div>
<div><br />
</div>
<div>Media
</div>
<div><br />
</div>
<div><a href="https://globalnews.ca/news/11770263/bc-family-gene-therapy-son-rare-condition/" target="_blank" rel="noreferrer noopener"><a href="https://globalnews.ca/news/11770263/bc-family-gene-therapy-son-rare-condition/" target="_blank" class="" rel="nofollow noopener noreferrer">https://globalnews.ca/news/11770263/bc-family-gene-therapy-son-rare-condition/</a></a>
</div>
<div><br />
</div>
<div><a href="https://www.ctvnews.ca/vancouver/article/high-tech-health-care-only-for-the-ultra-rich-bc-toddlers-case-spotlights-inequality-of-gene-therapy/" target="_blank" rel="noreferrer noopener"><a href="https://www.ctvnews.ca/vancouver/article/high-tech-health-care-only-for-the-ultra-rich-bc-toddlers-case-spotlights-inequality-of-gene-therapy/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.ctvnews.ca/vancouver/article/high-tech-health-care-only-for-the-ultra-rich-bc-toddlers-case-spotlights-inequality-of-gene-therapy/</a></a>
</div>
<div><br />
</div>
<div><a href="https://www.cbc.ca/player/play/video/9.7160283" target="_blank" rel="noreferrer noopener"><a href="https://www.cbc.ca/player/play/video/9.7160283" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.cbc.ca/player/play/video/9.7160283</a></a>
</div>
<div><br />
</div>
<div><a href="https://www.msn.com/en-ca/news/canada/bc-says-it-can-t-fund-therapy-for-child-with-rare-neurological-disease/vi-AA20CQwg" target="_blank" rel="noreferrer noopener"><a href="https://www.msn.com/en-ca/news/canada/bc-says-it-can-t-fund-therapy-for-child-with-rare-neurological-disease/vi-AA20CQwg" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.msn.com/en-ca/news/canada/bc-says-it-can-t-fund-therapy-for-child-with-rare-neurological-disease/vi-AA20CQwg</a></a>
</div>
<div><br />
</div>
<div><a href="https://vancouver.citynews.ca/2026/04/17/surrey-child-rare-disease-academics/" target="_blank" class="" rel="nofollow noopener noreferrer">https://vancouver.citynews.ca/2026/04/17/surrey-child-rare-disease-academics/</a>
</div>
<div><br />
</div>
<div><br />
</div>

A Race Against Time to save our 3-year-old son Gurmoh

Charley Rettig

<div>My name is Charley Rettig, and I have an extensive background in telephone fundraising. Right now, <strong>I am raising funds to start an online Kick/Twitch account</strong> where I play a few games but mainly cover the Democratic talking points of the time.
</div>
<div><br />
</div>
<div>It’s no secret that adults of all ages play video games, and this is especially true for our millennials and Gen-Z generations. While it’s true we can probably get the attention of Gen-Xers and baby boomers in other ways, I think the way to the younger voters is through something that has become a staple in their lives—video games.
</div><img class="text-editor_textEditorImage__43_GE" alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/102593325_1776618186953912_r." width="100%" />
<div><br />
</div>
<div><a href="https://democrats.org" target="_blank" rel="noreferrer noopener">The Democratic Party</a>
</div>
<div><a href="https://votersoftomorrow.org" target="_blank" rel="noreferrer noopener">Voters Of Tomorrow</a>
</div>

Empowering Young Voters Through Gaming

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

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Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

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OneTrust next-app audience

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NextDoor Share Option Users

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US + Non-charity COs Only

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fund country is US and user language is English

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Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

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user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

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Platform is Android

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Payment method type group to be vaulted on success

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NPO Upsell without email opt-in

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International Only

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Sitewide Banner: CA + en_CA

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

New funds eligible - Video Sharing (PROD) (amp17)

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

US Related Communities

DAF Internal

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

iOS at or above 12.4.0

non-US recurring donors

Fundraiser Without Meta Link

Scheduler payment tester gorup

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Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

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Android v12.12.0 and above

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

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AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

 Custom users

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Android v11.0.0 and above

Users Receiving Payments Paused Notifications

Excluded funds - Video Sharing (amp15)

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

checkout headers audience

Users Receiving Braze KYC Validation Failed

ai_title_page

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New funds eligible - Video Sharing (PROD)

NPO email opt-in candidates

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

iOS v12.12.0 and above

Excluded funds - Video Sharing

Fundraiser Without Instagram Deep Link (amp15)

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

userCurrencyCode

Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

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Survicate

appVersion is at or above 12.8.0

Non-charity fund

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CAD Donation Upsell Audience

Braze Email Tester

iOS App Version

hasKnownDonors

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iOS v12.3.0 and above

Charley Rettig

Charley Rettig

What Charley cares about

Charley’s featured causes

Empowering Young Voters Through Gaming

A Race Against Time to save our 3-year-old son Gurmoh