Tyler's Journey Through Epilepsy
Donation protected
Tyler's journey with epilepsy began 1 year ago (March 2012) when he had a series of grand mal seizures (unknowing at that time what these episodes were) on morning while getting ready for school. After many doctor/specialist appointments, emergency room visits, hospitalizations, medicine trials, misdiagnoses, tears, and lots of prayers, we found out Tyler has a brain tumor. We also found out that Tyler has 5 of the 6 types of seizures: grand mal, absence, myoclonic, clonic, and tonic.
At this point, the neurologists have treated the most severe type (grand mal) with medication. However, there is currently no medication that treats all 5 types of seizures at the same time. The doctors also do not want to give him medication that may counteract his current seizure medication AND his ADHD/autism medication (another story).
Tyler's condition is growing progressively worse (except for grand mal seizures), and he is beginning to show signs of brain deterioration (per the doctors).
We are in the process of trying to become seizure free - or get as close as possible. We were put on a waiting list at the Mayo Clinic 9 months ago, and I am happy to report that we have been taken off of this list and in the process of scheduling an appointment in the next couple of weeks/months. Tyler's neurologist, neurosurgeon, and neuropsychologist are confident that this is a step in the right direction to a boy who wants to continue in sports (see pictures), especially the sports he has been restricted from: bike riding, swimming, and football (his favorite).
With the grace and mercy of God and the help of all of our family and friends, we are requesting a donation to aid in the expenses of becoming patients at the Mayo Clinic. Your donation will help alleviate the burden of medical expenses (not covered by insurance), travel, lodging, etc. during this time.
I am truly a believer in more people helping a little to reach a goal than less people helping a lot. Tyler and I appreciate any donation that you can and will give at this time.
Finally, if you would prefer to make a donation by check, please make check out to:
Tyler Lillard Epilepsy Fundraiser and mail check to:
Tyler Lillard Epilepsy Fundraiser
Attn: Virgil E. Martin
PO Box 184
Colp, IL 62921-0184
*Tyler is a resident of Johns Creek, GA, and he is a 4th grader in the North Fulton County school district.
At this point, the neurologists have treated the most severe type (grand mal) with medication. However, there is currently no medication that treats all 5 types of seizures at the same time. The doctors also do not want to give him medication that may counteract his current seizure medication AND his ADHD/autism medication (another story).
Tyler's condition is growing progressively worse (except for grand mal seizures), and he is beginning to show signs of brain deterioration (per the doctors).
We are in the process of trying to become seizure free - or get as close as possible. We were put on a waiting list at the Mayo Clinic 9 months ago, and I am happy to report that we have been taken off of this list and in the process of scheduling an appointment in the next couple of weeks/months. Tyler's neurologist, neurosurgeon, and neuropsychologist are confident that this is a step in the right direction to a boy who wants to continue in sports (see pictures), especially the sports he has been restricted from: bike riding, swimming, and football (his favorite).
With the grace and mercy of God and the help of all of our family and friends, we are requesting a donation to aid in the expenses of becoming patients at the Mayo Clinic. Your donation will help alleviate the burden of medical expenses (not covered by insurance), travel, lodging, etc. during this time.
I am truly a believer in more people helping a little to reach a goal than less people helping a lot. Tyler and I appreciate any donation that you can and will give at this time.
Finally, if you would prefer to make a donation by check, please make check out to:
Tyler Lillard Epilepsy Fundraiser and mail check to:
Tyler Lillard Epilepsy Fundraiser
Attn: Virgil E. Martin
PO Box 184
Colp, IL 62921-0184
*Tyler is a resident of Johns Creek, GA, and he is a 4th grader in the North Fulton County school district.
Organizer
Tina Martin
Organizer
