Tyler's Journey Through Epilepsy

$41,875 of $50k goal

Raised by 167 people in 41 months
Tina Martin   DULUTH, GA
Tyler's journey with epilepsy began 1 year ago (March 2012) when he had a series of grand mal seizures (unknowing at that time what these episodes were) on morning while getting ready for school. After many doctor/specialist appointments, emergency room visits, hospitalizations, medicine trials, misdiagnoses, tears, and lots of prayers, we found out Tyler has a brain tumor. We also found out that Tyler has 5 of the 6 types of seizures: grand mal, absence, myoclonic, clonic, and tonic.
At this point, the neurologists have treated the most severe type (grand mal) with medication. However, there is currently no medication that treats all 5 types of seizures at the same time. The doctors also do not want to give him medication that may counteract his current seizure medication AND his ADHD/autism medication (another story).
Tyler's condition is growing progressively worse (except for grand mal seizures), and he is beginning to show signs of brain deterioration (per the doctors).
We are in the process of trying to become seizure free - or get as close as possible. We were put on a waiting list at the Mayo Clinic 9 months ago, and I am happy to report that we have been taken off of this list and in the process of scheduling an appointment in the next couple of weeks/months. Tyler's neurologist, neurosurgeon, and neuropsychologist are confident that this is a step in the right direction to a boy who wants to continue in sports (see pictures), especially the sports he has been restricted from: bike riding, swimming, and football (his favorite).
With the grace and mercy of God and the help of all of our family and friends, we are requesting a donation to aid in the expenses of becoming patients at the Mayo Clinic. Your donation will help alleviate the burden of medical expenses (not covered by insurance), travel, lodging, etc. during this time.
I am truly a believer in more people helping a little to reach a goal than less people helping a lot. Tyler and I appreciate any donation that you can and will give at this time.
Finally, if you would prefer to make a donation by check, please make check out to:
Tyler Lillard Epilepsy Fundraiser and mail check to:
Tyler Lillard Epilepsy Fundraiser
Attn: Virgil E. Martin
PO Box 184
Colp, IL 62921-0184

*Tyler is a resident of Johns Creek, GA, and he is a 4th grader in the North Fulton County school district.
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Update 24
22 months ago
Good Afternoon, All! My name is Kevin Shipley, and I am a friend of Tina Lillard, the woman who initially started this effort about 2 years ago. In 2012, Tina started on a journey with her son Tyler who suffers from epilepsy, has a brain tumor, has lost his vision, and who is autistic/ADHD. Tyler (and Tina) have been through many surgery attempts, surgeries for his vision, countless doctors appointments, visits to specialists, etc. Even though Tyler's health has stabilized (after losing his eye sight with little possibility of restoration), Tyler still struggles daily with taking various medicines, not feeling well all of the time, and not being able to do all of the things most active, athletic boys want to do (play football, do laser tag, swimming, etc.). Tyler is however, an avid wrestler.

Last year, there were various fundraisers to help Tyler and his mother financially. I do know Tina has been diligently working with the providers to pay this and other balances off. At this time, Tina has not given time or thought to the fundraiser part of the journey due to just caring for Tyler and making sure he is ok.

I personally know that Tina gives everything she has for Tyler (financially, time, patience, spiritually) . However, sometimes that is not enough with everything he has going on. I wanted to pick up where the generous people that helped her last year left off. I'm trying to work with individuals to start a foundation to help Tyler (and many other children/families in the same situation as Tyler).

I am going to first assist her with this journey, by (1) first picking this back up for her to assist in her efforts and promote awareness about epilepsy, (2) start the campaign back off by donating $100, and (3) ask that you share and do the same (any amount and share the page/word). Please contact me with any questions at shipley.kevin@hotmail.com
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Update 23
36 months ago
Good Morning All, I am happy to report that Tyler has had another awesome 5 days....we have been seizure free these last 5 days (tics are still prevalent, but no seizures). I know it is a combination of the doctor's plans and the prayers of all of you around the country. I must say I could not have done this alone. I know we have a long way to go, but I am enjoying and reaping the benefits of baby steps at this point. We are gearing up for another hurdle - school! I am excited and nervous about 5th grade, but I am grateful to all of the staff at Tyler's school because we have been in contact about a plan for the upcoming year. More to come.

Have a great week.

Tina
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Update 22
36 months ago
I am so happy to report the fundraising efforts of our hometown (Johns Creek, GA) community. A total of $13251.90 was collectively raised in a variety of fundraising efforts.

Since this Team Tyler event was publicized (and I am eternally grateful for the group that was a part of this), the online contributions increased by $6,269.

I am very happy to report that with this $40,000+ raised online (and offline) AND with the $30,000 my family has paid out of pocket, we have successfully reached and exceeded anything that I every imagined this to be when I started this effort back in March.

To all of you, we are very grateful, and words can't express my appreciation to the monetary AND time sacrifice all of you have made. Although, the final bill has not been paid (and there are many more to come with upcoming treatments), I know that we will have excess (because that is what God has laid ahead for me - more to come on that later). I would like to announce the initial planning stages of the "Tyler Lillard Epilepsy FOUNDATION." This will be a non-profit foundation that will assist families in financial need of certain expenses during their hospital stay. I will tell you more in the near future as this project is in the initial planning stages.

We love you and continue to solicit your prayers, kind words, and all that you have offered to Tyler and my family.

Tina
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Update 21
36 months ago
Good Morning, All - I am sorry I have not been on here in the last week. I have been working and trying to prepare for the upcoming school year. A quick update on Tyler: he has had an awesome week! He has been seizure free (still has tics, but I'll take them) this week. Also, he has been very happy and NOT TIRED at all. I am so pleased that this bout of medicine may be working and balancing out (fingers crossed). The doctors have even decided not to change the medicine for next week. That is phenomenal news (I'll take baby steps).

Also, we have the final numbers from the Team Tyler fundraiser (thankfully donations were still coming in after the fundraiser). I will be posting those numbers later today. Have a great week.
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 1.2K total shares
Edith Koine
40 months ago

Tyler you are such a funny and loving young man, you can't help but instantly love him. Tina you are a wonderful and strong woman and mother. I pray for Tyler's speedy recovery, full restoration of his body, and NO MORE SEIZURES In the NAME of Jesus!

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Brent Culbreth
40 months ago

This little soldier is one of my wrestlers and like a little brother to me. His sweet mother has treated me as her own and they are a great family! He is an inspiration to be around and fills surrounding faces with nothing but smiles.... Tyler deserves nothing but the best and a wonderful journey through life post surgery... This is a cause VERY MUCH worthy of your support!!!

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Brian Corday
41 months ago

Tyler is a GREAT kid! We have watched him grow up from an awesome kid to a handsome respectful young Man these past few years. Our families have spent many of long days together at wrestling matches exchanges life stories. Tyler really is a wonderful person.

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$41,875 of $50k goal

Raised by 167 people in 41 months
Created February 28, 2013
MS
$100
Malcolm Smith
22 months ago
$25
Anonymous
22 months ago
$25
Anonymous
22 months ago
VG
$25
Valentina Gross
22 months ago

Continuing my prayers for Tyler!

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$100
Anonymous
22 months ago
TD
$50
Tamara Drake
22 months ago
DW
$50
Danielle Smith Walker
22 months ago

Your family is in our prayers Tina!

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CC
$50
Crystall carroll
22 months ago

May God be with you through this journey and I will keep you in my prayers.

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LC
$250
Lynde Capogreco
22 months ago
DW
$10
Dana W.
22 months ago

May God bless you, Tina and your son Tyler with the strength to endure and hope to believe.

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Edith Koine
40 months ago

Tyler you are such a funny and loving young man, you can't help but instantly love him. Tina you are a wonderful and strong woman and mother. I pray for Tyler's speedy recovery, full restoration of his body, and NO MORE SEIZURES In the NAME of Jesus!

+ Read More
Brent Culbreth
40 months ago

This little soldier is one of my wrestlers and like a little brother to me. His sweet mother has treated me as her own and they are a great family! He is an inspiration to be around and fills surrounding faces with nothing but smiles.... Tyler deserves nothing but the best and a wonderful journey through life post surgery... This is a cause VERY MUCH worthy of your support!!!

+ Read More
Brian Corday
41 months ago

Tyler is a GREAT kid! We have watched him grow up from an awesome kid to a handsome respectful young Man these past few years. Our families have spent many of long days together at wrestling matches exchanges life stories. Tyler really is a wonderful person.

+ Read More
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