Tyler's Journey Through Epilepsy
At this point, the neurologists have treated the most severe type (grand mal) with medication. However, there is currently no medication that treats all 5 types of seizures at the same time. The doctors also do not want to give him medication that may counteract his current seizure medication AND his ADHD/autism medication (another story).
Tyler's condition is growing progressively worse (except for grand mal seizures), and he is beginning to show signs of brain deterioration (per the doctors).
We are in the process of trying to become seizure free - or get as close as possible. We were put on a waiting list at the Mayo Clinic 9 months ago, and I am happy to report that we have been taken off of this list and in the process of scheduling an appointment in the next couple of weeks/months. Tyler's neurologist, neurosurgeon, and neuropsychologist are confident that this is a step in the right direction to a boy who wants to continue in sports (see pictures), especially the sports he has been restricted from: bike riding, swimming, and football (his favorite).
With the grace and mercy of God and the help of all of our family and friends, we are requesting a donation to aid in the expenses of becoming patients at the Mayo Clinic. Your donation will help alleviate the burden of medical expenses (not covered by insurance), travel, lodging, etc. during this time.
I am truly a believer in more people helping a little to reach a goal than less people helping a lot. Tyler and I appreciate any donation that you can and will give at this time.
Finally, if you would prefer to make a donation by check, please make check out to:
Tyler Lillard Epilepsy Fundraiser and mail check to:
Tyler Lillard Epilepsy Fundraiser
Attn: Virgil E. Martin
PO Box 184
Colp, IL 62921-0184
*Tyler is a resident of Johns Creek, GA, and he is a 4th grader in the North Fulton County school district.
Last year, there were various fundraisers to help Tyler and his mother financially. I do know Tina has been diligently working with the providers to pay this and other balances off. At this time, Tina has not given time or thought to the fundraiser part of the journey due to just caring for Tyler and making sure he is ok.
I personally know that Tina gives everything she has for Tyler (financially, time, patience, spiritually) . However, sometimes that is not enough with everything he has going on. I wanted to pick up where the generous people that helped her last year left off. I'm trying to work with individuals to start a foundation to help Tyler (and many other children/families in the same situation as Tyler).
I am going to first assist her with this journey, by (1) first picking this back up for her to assist in her efforts and promote awareness about epilepsy, (2) start the campaign back off by donating $100, and (3) ask that you share and do the same (any amount and share the page/word). Please contact me with any questions at firstname.lastname@example.org
Have a great week.
Since this Team Tyler event was publicized (and I am eternally grateful for the group that was a part of this), the online contributions increased by $6,269.
I am very happy to report that with this $40,000+ raised online (and offline) AND with the $30,000 my family has paid out of pocket, we have successfully reached and exceeded anything that I every imagined this to be when I started this effort back in March.
To all of you, we are very grateful, and words can't express my appreciation to the monetary AND time sacrifice all of you have made. Although, the final bill has not been paid (and there are many more to come with upcoming treatments), I know that we will have excess (because that is what God has laid ahead for me - more to come on that later). I would like to announce the initial planning stages of the "Tyler Lillard Epilepsy FOUNDATION." This will be a non-profit foundation that will assist families in financial need of certain expenses during their hospital stay. I will tell you more in the near future as this project is in the initial planning stages.
We love you and continue to solicit your prayers, kind words, and all that you have offered to Tyler and my family.
Also, we have the final numbers from the Team Tyler fundraiser (thankfully donations were still coming in after the fundraiser). I will be posting those numbers later today. Have a great week.
Tyler you are such a funny and loving young man, you can't help but instantly love him. Tina you are a wonderful and strong woman and mother. I pray for Tyler's speedy recovery, full restoration of his body, and NO MORE SEIZURES In the NAME of Jesus!
This little soldier is one of my wrestlers and like a little brother to me. His sweet mother has treated me as her own and they are a great family! He is an inspiration to be around and fills surrounding faces with nothing but smiles.... Tyler deserves nothing but the best and a wonderful journey through life post surgery... This is a cause VERY MUCH worthy of your support!!!
Tyler is a GREAT kid! We have watched him grow up from an awesome kid to a handsome respectful young Man these past few years. Our families have spent many of long days together at wrestling matches exchanges life stories. Tyler really is a wonderful person.