Twins, 4, losing sight need urgent help for tests

€2,180 of €5,500 goal

Raised by 35 people in 6 months
Created November 20, 2018
Elisa Menendez
on behalf of Fabiola Maria Villena Heston

A heartbroken family needs thousands to cover medical costs for four-year-old twins at risk of going blind


Little Erik and Alexia urgently need more tests to determine if their deteriorating vision can be treated.

The expensive genetic tests and specialist glasses are crippling the Torremolinos-based family, who have had to opt for private health care after doctors warned it could take up to two years to diagnose the children on the public healthcare system.

But their eyesight is deteriorating so rapidly, they could go blind in that time.

Mum Fabiola and dad Juan feel ‘hopeless’ after being forced to sell their car to pay for the escalating medical costs.

The twins have a rare form of retinal dystrophy - a genetic disease affecting the photo receptors in the eyes - which gradually causes blindness.

Doctors warned the family that due to the rarity of the disease the children would have to wait up to a year to see a specialist on the Spanish national healthcare system. It would then take another year to receive results, as the tests would be sent for analysis in Madrid.

But after three rounds of medical tests costing almost €3,000 each, doctors are unable to identify the gene, meaning they cannot diagnose the severity, nor advise on treatment.

Now the twins have to undergo a fourth genetic test costing €2,700 per child.

Depending on the final diagnosis, an eye injection - called Luxturna - may be able to help, but comes at a staggeringly high price of $850,000 (€745,000) per child.

Meanwhile, supplements, eye drops,  and specialist glasses costing up to €800 a pair - the kids have three sets each - are another huge added cost.

The family need €5,400 for two urgent eye tests, as well as more to hopefully take Erik and Alexia to see a specialist at Moorfields Eye Hospital in London - the best centre of its kind in Europe.

The Olive Press newspaper  has set up this page in hopes of helping the family raise the money.  Anything you can spare will help the family greatly.

Fabiola would like to say a huge thank you to everyone who has donated so far, she has been overwhelmed and it means the world to her family. 

Thank you.
+ Read More

€2,180 of €5,500 goal

Raised by 35 people in 6 months
Created November 20, 2018
Elisa Menendez
on behalf of Fabiola Maria Villena Heston
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