Saving Jaiden-URGENT donations needed ASAP

$191,371 of $500,000 goal

Raised by 3,224 people in 14 months


OUR BELOVED  JAIDEN IS TURNING TO STONE!!


Jaiden suffers from a rare and rapidly progressing connective tissue disorder called Stiff Skin Syndrome that turns his skin into stone!  YES…STONE!  He is the 41st documented case ever in the world, and the only active case in the world today, as far as the doctors know.

It all started when Tim and Natalie Rogers wanted to start a family of their own. When they discovered that wasn’t possible, both were undeterred. The Rogers felt there was room in their home and hearts for adopted children. Their first, a newborn daughter, was adopted from a broken home in 1989. Their second, a now 13 year-old boy, named Jaiden, was adopted back in 2005.

The Rogers entered Jaiden’s life not a moment too soon. After his birth mom signed over guardianship, Tim and Natalie found a little autistic boy with fetal alcohol syndrome, neglected and malnourished, huddled next to his filthy car seat. He was even once observed eating dog food out of a dog dish because he hadn’t been fed.

For the first year they had Jaiden, he used to sneak into the Rogers’ bedroom in the middle of the night and feel their faces to make sure they were still there, then go back to bed. What neither Jaiden, nor his new family could have known then, was the only thing more horrifying than the first chapter of Jaiden’s life would be the second chapter.

The trouble began innocently enough 7 years ago when Tim noticed a small lump on Jaiden’s right thigh just underneath his skin. He took Jaiden to a dermatologist who simply told them to keep an eye on it. The lump started getting bigger, and even more startling, it had started to spread….and fast!

The Rogers’ noted, “It was as if the skin on his right leg was 1/8th of an inch thick with something very hard underneath, like stone. It felt like you were tapping on a countertop.”

In a matter of weeks, the growth had wrapped around Jaiden’s right thigh and behind his knee. Once the hard calcifications invaded the joint, Jaiden began to lose mobility. The family rushed to Texas Tech Medical Center for a biopsy.

When the results came back, even the doctors couldn’t believe what they were seeing. Jaiden was diagnosed with something called Stiff Skin Syndrome. Stiff Skin Syndrome is a connective tissue disorder characterized by hard, thick skin, which can spread over the entire body, causing immobility. Muscles become weak, and the pain is unbearable!

Jaiden’s doctors acknowledged that they’d never heard ofsuch an aggressive spread of the syndrome. In a month, it spread to Jaiden’s left leg, both hips, buttocks, and his arms. Spots have recently appeared near his spine. The once-hyperactive Jaiden is often confined to a wheelchair and no longer able to attend school. 

Every day the pain from the disorder grows worse. Jaiden understands that he is sick as much as a 13-year old boy can, although he cannot fully grasp the intent of the sinister syndrome branching out just beneath his skin.

Over the last few years, the fight back has begun. Jaiden has continual chemotherapy treatment to try to halt the spread of the calcifications. The chemo destroys both good and bad cells, leaving Jaiden weak and open to infection. He wears a medical mask to prevent infections or viruses he cannot fend off due to his weakened immune system.

Jaiden has also started physical therapy. This is the most crucial component of his treatment. His muscles must be stretched to keep his joints limber. The stretching is immensely painful. Still, Jaiden smiles and jokes with his doctors and submits to pool therapy when he has one of his good days.

Jaiden takes 10 medications a day, including a chemo medication and 4 different heavy-duty pain medications.

Because there are so few recorded cases, there is no playbook as to how to treat it. As aggressive as Jaiden’s calcifications are growing it’s likely the disorder will spread until he experiences total paralysis or his chest wall collapses where he is unable to breathe. Left untreated, Jaiden will become entombed inside himself and die!  


WE ARE RUNNING OUT OF TIME!

We have exhausted all help in the United States, costing the Rogers over $500,000 of their own retirement money and they also had to take out a 2nd mortgage on their house. Just recently, the family had to quickly pick up and move the family across the country to Georgia, as the high altitude in Colorado made breathing too difficult for Jaiden.  

WHAT CAN YOU DO TO HELP?

The family is now left with one last hope for Jaiden, AND WE NEED YOUR HELP!!  We need to get him to Europe to try a special stem cell treatment specifically for rare skin diseases.  Without this treatment Jaiden’s skin will continue to harden and he will start to deteriorate and die.  He is our whole world!

The cost of Jaiden’s treatment alone is $1,000,000.    We have to find a way!  Please consider helping with a donation (no amount too small) and sharing the story and website address ( www.savingjaiden.com) amongst your social media channels to build awareness about Jaiden’s urgent journey! We appreciate all your support!

We have gotten questions about why this treatment is so expensive.  One would think there are foundations for this sort of thing.  You have to keep in mind that Jaiden is the only one in the world that we know of with this condition.  There have only been 41 people in the whole world EVER to be diagnosed with Stiff Skin Syndrome.  Medical companies don’t make a profit off of rare diseases. Therefore, money isn't being used to find a treatment for this condition.  It is left up to the parents to pay this money to care for their children. So when you have to reach out for help on your own, it is VERY expensive.


JAIDEN IN THE NEWS

Jaiden has been profiled in People Magazine; featured on daytime TV shows, such as Dr Oz and The Doctors;Channel 5 News out of Colorado Springs; Channels 4, 9 and Fox News out of Denver; and also newspapers all over the world trying to help!

https://people.com/human-interest/parents-colorado-boy-turning-sone-look-cure/


https://www.doctoroz.com/episode/undercover-investigation-dental-scams-are-you-being-overdiagnosed-and-overcharged?video_id=5841606781001


https://www.thedoctorstv.com/videos/stiff-skin-syndrome-explained
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Hi Friends of Jaiden,

Just wanted to remind every to pleas keep sharing Jaiden’s story!! We have applied for another grant, but we need to keep raising money in the meantime!! Jaiden was just released from the hospital after lung issues so please keep us in your prayers!

❤️ Natalie
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Dear Family of Jaiden,

Well last months test results came back, and as we suspected, Jaidens stiff skin is tightening more around his chest wall, thus causing more breathing problems. Doctors are working on trying to get another grant in place to help us out. PLEASE PLEASE KEEP SHARING! At a minimum, we will still have to come up with our part of his medical treatment. I doing everything I can to try and get more help, but it’s not easy at all! Please continue to pray and please have a nice 4th and keep safe!! All our love
Natalie
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Good Morning Everyone!

Just wanted to remind everyone to please keep sharing Jaidens story. We are still trying to reach our goal as soon as we can so I can apply for another grant. I’m working on a few other things right now to try and get more help. Happy Thursday and have a great weekend!❤️
Natalie
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Dear friends of Jaiden,
First and foremost , I want to thank everyone so very much for your continued support!! Honestly you all are the GREATEST! As all of you know, we didn’t make our goal by the end of May. I wanted to explain to you why we had to shoot for that date. As you know, Jaiden’s medicine alone is over 1 million dollars for just the medicine. At the beginning of January 2019 we received a grant for $500,000 towards Jaidens medicine through his Drs in Europe. However the grant was only good through the last day of May Europe time. I honestly thought I might be able to pull it off with the help of People Magazine and another magazine in Europe that said they were doing a story on Jaiden. WELL... both of those fell through, so that leaves me having to start from square one again. The good news is after talking to Jaiden’s Dr in Europe, there is a good chance we will be eligible for another grant. It may be not quite as much as the last one, but close. In the mean time I will continue to push Jaiden’s story to outside news stations, papers, magazines and whoever else will listen! So I am asking you again to keep sharing! If anyone knows of anyone that can help us push Jaiden’s story please let me know. If anyone would be willing to call their local stations to see if they would pick up Jaiden’s story I would really appreciate it! Somehow we will do this!
Natalie
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