Gavin's Superhero Genes
He has 11 doctors on his team, with most of them being at Riley Children's Hospital in Indianapolis. He lives three hours away and makes the trip to Riley as often as once a week and has had close to 20 procedures with 6 in the last 14 weeks.
His family has exhausted all resources for his care. This is a lifelong illness that will get worse with age. The information from this test will help determine future treatment and hopefully lengthen the time between procedures. Any funds raised above the cost of the test will be applied to his future medical care.
Gavin loves legos, science, super heroes, frogs, puzzles, and Pokémon. He is a brave little boy whose smile and dimples charm everyone he meets. Thank you for funding this sweet superhero's genetic testing!
The kids and I are also doing a service project to give back. We've been collecting chap stick tubes and small stickers that kids use at Riley to decorate the masks that are used to put them to sleep. It is one of the highlights for Gavin. The project has been a success and items are still being donated. We can't wait to surprise Miss Whitney on December 18th (his surgery day)!
A few more thank yous... I want to thank Jessica Cagle and Tina Vaught and family for offering to do fundraisers for us! We aren't sure if we are going to do them right now because of how much we have going on, but it is so sweet of them to offer!
Also, it turns out we had two reporters from the same station wanting to interview us. We finally figured it all out and it looks like we are going to be interviewed ONCE on Sunday morning. As I mentioned before, this is totally out of our comfort zone, but we welcome the opportunity to share Gavin's story. Today he told me that he plans to be silent, so we shall see!!