Gavin's Superhero Genes

$3,790 of $3,200 goal

Raised by 51 people in 45 months
Gavin is a five year old boy who has been diagnosed with a rare illness called Klippel-Trenauney Syndrome, but his doctors think there is more. He is in need of genetic testing that his insurance will not pay for. His doctors and parents need this information to determine the best course of treatment and to answer some questions about his health.

He has 11 doctors on his team, with most of them being at Riley Children's Hospital in Indianapolis. He lives three hours away and makes the trip to Riley as often as once a week and has had close to 20 procedures with 6 in the last 14 weeks.

His family has exhausted all resources for his care. This is a lifelong illness that will get worse with age. The information from this test will help determine future treatment and hopefully lengthen the time between procedures. Any funds raised above the cost of the test will be applied to his future medical care.

Gavin loves legos, science, super heroes, frogs, puzzles, and Pokémon. He is a brave little boy whose smile and dimples charm everyone he meets. Thank you for funding this sweet superhero's genetic testing!
6674983_1446690220.4435_funddescription.
6674983_1446690280.753_funddescription.j
6674983_1446690496.2736_funddescription.
+ Read More
With donations on here and private donations, we've doubled our goal! Thank you and God bless each one of you!
The kids and I are also doing a service project to give back. We've been collecting chap stick tubes and small stickers that kids use at Riley to decorate the masks that are used to put them to sleep. It is one of the highlights for Gavin. The project has been a success and items are still being donated. We can't wait to surprise Miss Whitney on December 18th (his surgery day)!
+ Read More
Stephanie Kayser from Channel 14 News just left our house after interviewing us. Gavin wasn't silent and Abbie was able to tell his story, so we think it went well! The story will be featured on the news TONIGHT at 5:00 and a shorter story will be shown at 10:00. I'm hoping that it is a good representation of us. Don't forget it tune in!
+ Read More
WE'VE HAD 400 SHARES!!!! WOW!!
A few more thank yous... I want to thank Jessica Cagle and Tina Vaught and family for offering to do fundraisers for us! We aren't sure if we are going to do them right now because of how much we have going on, but it is so sweet of them to offer!
Also, it turns out we had two reporters from the same station wanting to interview us. We finally figured it all out and it looks like we are going to be interviewed ONCE on Sunday morning. As I mentioned before, this is totally out of our comfort zone, but we welcome the opportunity to share Gavin's story. Today he told me that he plans to be silent, so we shall see!!
+ Read More
Read a Previous Update
Be the first to leave a comment on this campaign.

$3,790 of $3,200 goal

Raised by 51 people in 45 months
Created November 4, 2015
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
DC
$50
Donna Cummings
43 months ago
$200
Anonymous
44 months ago
IL
$40
Ida Lefebvre
44 months ago

The KT family is with you, praying for your healing!

AM
$200
Alex & Stacie Mercier
44 months ago

May God bless your family and keep Gavin strong....Stacie, Alex, Emily & Alli

TE
$25
Tamara Elfreich
44 months ago

Praying for you Gavin. Steve, Tammy, and Conner Elfreich

$25
Anonymous
44 months ago
$50
Anonymous
44 months ago
TV
$50
Tina Vaught
44 months ago

We love you Mitchell family!!!! You are amazing little G!

HH
$25
Holly Higgins
44 months ago
TM
$75
Tom & Elaine Michl
44 months ago

God bless Gavin and his wonderful family. Our prayers are with you.

Be the first to leave a comment on this campaign.
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.