Buffie's Big Lyme Fundraiser

$8,580 of $10,000 goal

Raised by 112 people in 52 months
Today is very humbling. We have thought about fundraising for Buffie's dibilitating disease, that insurance won't touch, but up until today, we thought we could beat this without help.  She has been on antibiotics that have wrecked her system for 14 months.  She has been off for a few times, and everything comes back, but worse.  She needs to get somewhere where they treat this proactivily and outside the norm of american medical politics. I won't bore everybody with all the medical details of the last two years. The ER and hospital stays, the misdiagnosis of MS and every other autoimmune disorders, its' all the same story of every other chronic lyme patient we know. From Buffie " I will tell you what the most devistating part of it is, and it's not just the physical pain and horrific brain fog, memory loss, and crushing fatigue. The hardest part is I've lost myself. The Buffie most of you know is slipping fast. This disease has stopped me from teaching theatre, traveling, being the volunteer maniac I used to be. I no longer host readings, create social gatherings, The "do gooder" in me has all but disappeared because I can't be out of bed for more than a few hours. I mostly stay in my house, and when I do go out, I blast it all over Facebook so I can look "normal" I've missed weddings, graduations, funerals, more productions of friends than I care to think about. I look at pictures of my life before Lyme and I don't even know who that person is. I'm desperate to find my way back to health and happiness, and you can help."

We are looking at two different clinics, with two different methods of curing or at least putting lymes in remission. They cost a fortune, but all we can do is hope here. If this was any other disease, insurance would kick in, but if you want to know more about the politics we are up against, watch Under Our Skin documentary.

It took us a over a year to decide to humble ourselves and start fundraising. It's so hard, and we know full well how tight money is for people. If you can't donate, please share.  

Buffie; " I realized I have spent over a decade giving my energy and talents toward helping the less fortunate, working only in non-profits that help the ill, the poor, the struggling. Maybe now I can ask the universe for something in return. 

I started blogging when I first was diagnosed, but haven't kept up with it, as treatment starts I will begin again. It is very hard to read and write right now.

Thanks for reading and keeping me in your thoughts and prayers. Now I just have to hit the "Submit" button here, if I can. This is so humbling, embarrasing some would say, but I need to say it. I need help. My family needs me, the world needs me. Please help if you can.
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For those that have hung on with me through this, I just wanted to share an update to my health.

The last five months have been promising and frustrating all at the same time. I'm back on a multiple antibiotic regiment. (5 at once) Its pretty intense, and gives me my life back about 50%. Which I'll take after my scary flare this December where we purchased a walker and were pricing wheelchairs. I'm now back on my feet, scared to death to ever stop taking antibiotics, but happy to be participating in life again, in a different way then I was used to before I got ill.
Here are some amazing things that I've done this last 5 months!
*I attended some of my kids school functions!
* I traveled all the way to florida without being reclined!
* I was in a short evening performance!
* I've driven myself around
*I've started writing
*I've started swimming

The frustrating part comes in when I think about how long this has been going on, and coming to the true realization of the word "chronic" Some days I still don't believe it. Seeing a therapist that deals with chronic illness has been amazing. Finding the new me in this, instead of pining for the old me has seemed to be helpful.

Unfortunately, Lyme disease and its coinfections have done some damage to my body that can not be corrected by antibiotics. I was just diagnosed with Postural Orthostatic Tachycardia Syndrome. (POTS) Which explains all the dizziness, fainting and fatigue. I've expected I've had this for awhile, because its common with chronic lyme patients, but I finally was able to see an amazing cardiologist, who put me through the ringer, to figure it out. We are starting with PT and beta blockers to see if we can't get better control over the symptoms.

Lyme is like an onion, with so many layers of possibilities to getting in remission. One is mold and mycotoxins. I have great news! Right when I was thinking that I would have to travel to the other side of the country to find someone versed in this, I had someone reach out to me. It just so happens that a local GP, who now has Lyme, switched his practice to functional medicine, and now is on a mission to help Louisiana Lyme patients. He is, literally, a bike ride away, (if I ever feel up to it!) This news is huge for my family. No hotels, time off, plane trips. Of course the doctor is still out of pocket, because insurance wont cover Lyme past one month. But heck, we will take it!

My cousin Ben Chavez and Aunt Connie have purchased me a specialized devise that will keep the air in our new home free of mold and toxins, which will aid in my healing.

I've learned so much about myself and about life living with this. I'm learning to find the gift in it most days.

Thanks to each and everyone of you who donated, wrote me a letter, shared this, prayed for me, made me laugh, or privately shared your story with me. I'm so happy to be alive!

May is Lyme awareness month. Please, if you have been diagnosed with any auto immune disease that you don't feel could be correct, don't hesitate to contact me about getting tested at a viable lab.

Love to all of you! Have a beautiful summer!
Wear your repellent!

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Hi Everyone! I wanted to update all of you about my health and life! It's been a long year, full of ups and downs as we continue to peel away the layers of confusion around Lyme Disease. I had some success for awhile after trying to combat it naturally at the West Clinic. Unfortunately, It was short lived. I wanted to proclaim that I was completely healed to all of you, the BIG REVEAL, but it didn't happen. By the holidays, I was bedridden again, worse than ever, and now back on antibiotics that make me "functional" but far from well.Through a myriad of other doctors and tests, it seems that Lyme was the tip of the iceberg. When I was completely healthy, I always thought of illnesses as way less complicated....you either have something or you don't. This specific disease seems to be different.

I was just confirmed to have Chronic Inflammatory Response Syndrome. In a nutshell, I'm one of the few unlucky type of people that have a genetic mutation that doesn't allow me to clear or detox bio toxins (Mold and Lyme) to be specific. I was extremely healthy until we moved into a house with black mold in the kitchen 3 years ago and instantly became symptomatic. Before I had even thought about Mold as a problem, we moved to the moldiest state in the nation....Louisiana. We are in the process of getting into a "safe" house that is tested to be free of mold. I will be living in a camper hopefully this summer in Alaska.

There are only a handful of doctors who work with CIRS and Lyme in the country, and funny enough, I'm going home to Montana of all places to hopefully finally find my healer. I met over 1000 lyme patients on line that said treating their mold issue was when they finally got better from Lyme after years of struggling. I am praying that this is the final true piece in the puzzle that might get me back to my old self. This is my new vision of hope. http://www.trilliumclinic.net/#!treatments/c1jm9
Of course, these doctors won't bill insurance and charge $600 smackers for the first visit?!

Please continue your thoughts, prayers, and good wishes. They have been working. I've had some really amazing healthy days with my family to be thankful for, but I selfishly want more than "some." Thanks to all who have contributed. If you are able to and haven't yet, please consider, or just share.

AND PLEASE....if you or your child gets bit by ANYTHING that seems suspicious this summer, go the ER and demand to get a month of doxicycline. It could truly save your life. Lyme is confirmed now in every state and carried by mosquitoes now too.
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Hello dear family and friends! Wanted to update all you Angels on my progress. I just got back to treatment for round 2. 12 more treatments at this clinic. With your help, I am feeling better. I'm coming to terms with th e term chronic, but making lifestyle changes to accommodate it. Less stress, better eating, more resting......blah blah blah:)
I spent 3 weeks between treatments packing up our house in Wyoming and seeing my husband leave for New Orleans, where we will meet him after treatment. I will continue similar treatment in Florida starting in October. She won't take insurance for most of the treatments either. The diagnostic guess is that it will take close to a year to get into a good remission spot. I'm trying to stay off antibiotics with these therapies.
With the help of my amazing family, my son has had a fantastic summer. Fishing, boating, camping, and being spoiled by his aunts and grandparents.
Thank you all so incredibly much for your notes, messages, and your financial contributions to this. None of it would have happened without you!
New UV light therapy
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I would love a postcard! I'll pretend I'm at camp.
A postcard from where any of you live or are visiting! Please send to
West Clinic C/O Buffie
1188 Call Creek Drive
Pocatello Idaho 83201

Just wanted to update all of my angels and supporters. It's been a really rough few days. The treatment length may be a bit longer than expected.Emotionally exhausted, and trying to plan the rest of the summers schedule with help from family and friends.
For those of you that have written me and asked how else you could help, we are still greatly welcoming donations, and especially Alaska/Frontier/ miles points or Choice hotel points. Enjoy every minute of summer with your families!
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Read a Previous Update
Cody Rogers
49 months ago

I am blown away by the support everyone is giving to Buffie, thank you, thank you, thank you!

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$8,580 of $10,000 goal

Raised by 112 people in 52 months
Created May 2, 2015
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39 months ago
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Jeanne Andrus
39 months ago
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41 months ago (Monthly Donation)
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Amber Young
42 months ago

Sending BIG love & welcome renewal, Buff! xoxo -d&a

TW
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Tami Wiedensmith
42 months ago
Cody Rogers
49 months ago

I am blown away by the support everyone is giving to Buffie, thank you, thank you, thank you!

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