Tiffany's Lyme Disease Fund

$4,685 of $10,000 goal

Raised by 92 people in 50 months
My name is Sheila. My 15-year-old daughter Tiffany was bitten by a tick infected by Lyme Disease and several other infections two years ago. Her doctor at the time did not recognize the bullseye rash and Tiffany went one year without any treatment while the Lyme Disease progressed.

Tiffany started taking antibiotics two years ago. Due to the infection being in her nervous system, brain, and heart, she has needed extended treatment, including IV antibiotics.

Recently she was placed on a PICC line, which is an IV line for antibiotics. Our health insurance would only cover one month of treatment. Tiffany started to improve once on the IV line, which is the only time in two years she had this much improvement, but due to insurance guidelines that only cover one month of treatment, the IV line was pulled today. We are setting up this account to try to get some funding to pay for Tiffany's medical bills and additional time on the IV line.

Before getting sick, Tiffany was an active girl that played soccer and rode horses. For the last two years, Tiffany has been severely ill.  She has been out of school with home tutoring as she can't walk or sit in a classroom. She is bedridden a lot of the time. She has had numerous ER visits, doctor visitis, hospitalizations, and sees several specialists for her brain and heart. She's lost weight, had periods of paralysis, seizures, lost all her hair, has fluid around her heart, developed autoimmune disease, and countless other complications. She's missing out on life.

We want Tiffany to be able to receive this treatment to get her life back. If you can, please consider donating.  Any amount, no matter how small, will help. If you can't donate (we understand not everyone is in the position to), please share this link with everyone you know and ask them to pass it on.


If you would like to learn more about Lyme Disease, please visit http://www.ilads.org/
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I was hoping never to write this but Tiffany has relapsed with Lyme Disease. She was doing great after having the PICC line (IV line) for a year. She got a new tick bite a little over a month ago and is now doing very bad and worsening by the day. It's a new infection, this year is very bad for ticks. She was left with permanent health issues from the first infection so her body is fighting hard and she's very sick. I'm going to be putting her Go Fund Me account up again and was wondering if you guys be willing to share it around to anyone you know? She needs to go back to the Lyme Center to be seen and they don't take insurance. We already have another family member we are taking there so it's two of them... I don't want to ask people that have already donated to donate again so sharing it would be incredibly helpful for us. If you work somewhere that does donations maybe ask your work, email to coworkers or friends, just getting the sharing going helps so much.

www.gofundme.com/tiffanylymefund
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Tiffany has been on IV treatment for almost three months. She saw her cardiologist today and her heart function is normal, the fluid around her heart is gone, and her heart block is gone. Her tachycardia still needs medication but she's doing well on the medication. GREAT news! For the first time in years, no heart issues! She also gained back 7 pounds of the weight she lost and her hair is growing back and has not fallen out again.

We want to thank everyone who has helped us, in any way. It's because of YOU that she is getting well. She will still have her IV for six or more more months and her medical costs are still very high, so we are still keeping this gofundme open for updates and donations/shares.

When Lyme Disease becomes disseminated throughout the body, the goal of treatment is to kill off enough bacteria and get the immune system to be able to keep the remaining bacteria in check. It's impossible to kill it all off because it can invade any part of the body, including bone marrow and other places the antibiotics can't reach. It is a life-long disease that's always in your body and can relapse at any point, but she is responding to treatment and that is a very good sign. Her body is able to and is healing. We are working on bumping up her immune system and getting her strong and healthy so when the IV comes out, she will remain well. Thank you again.
Getting IV medication
After getting her good news at the doc
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UPDATE: Tiffany went last week to get her PICC line in but she had complications and couldn't get it. She went back yesterday and had it placed under sedation and it went well. She starts her IV medication today after we see her cardiologist. Thank you for the continued support.
In recovery at the hospital
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Tiffany saw her doctor again. She tested positive for current active Lyme Disease infection (persistent infection). She is getting the PICC line (IV line) put back in long term. Her cardiologist and neurologist said she should have it for at least 9 months because of the severity of her heart and brain involvement. She will be on a lot of medications every month, as well as the IV medications. We appreciate all your support and prayers and the help you all have given so we can get her on longer term treatment than our insurance will cover.
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Read a Previous Update
Rachel Lyons Laprise
46 months ago

I had a friend who recovered from a serious case of lyme after starting a hyperbaric oxygen therapy. It took many treatments, but she swears by it. I am sending you prayers and love for your recovery.

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$4,685 of $10,000 goal

Raised by 92 people in 50 months
Created May 8, 2015
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JM
$25
Jean McDermott
19 months ago

Wishing you and your daughter the best for her wellness.

$50
Anonymous
24 months ago
DK
$100
Dee Koutris
25 months ago

Prayers and love to Tiff and all of you ❤

NC
$200
Nancy Cutrera
25 months ago
$20
Karen Walcott
25 months ago

Prayers for you Tiffany!!♡♡♡

LS
$50
Lisa Spiro
25 months ago
LG
$5
linda gharassimian
32 months ago
MM
$25
Maryanne Macdonald
45 months ago
SD
$20
Susan Doucette
45 months ago

Best of health to you. We moved from Chepachet after contracting Lyme and many years of misdiagnosis. We are getting better slowly and we send our healing hugs, vibes, thoughts and prayers to you

ND
$5
nicole van Daele
45 months ago
1
1
Rachel Lyons Laprise
46 months ago

I had a friend who recovered from a serious case of lyme after starting a hyperbaric oxygen therapy. It took many treatments, but she swears by it. I am sending you prayers and love for your recovery.

+ Read More
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