My name is Teyana, I was born March 26, 2014. I was born at 37 weeks, 4lbs 9ozs, 16 1/4 inches long. Although that is all normal for some babies I was born with a congenital heart defect called Tetralogy of Fallot. I had my first surgery May 2, 2014 to get a 5mm shunt put in then January 16, 2015 I will undergo another open heart surgery where I will get my full repair. I will have many surgeries as I grow all the way into adulthood. After my first surgery I wouldn't take a bottle so I had a gastronomy tube placed May 15, 2014. I eat by a feeding tube 20 hours out of the day. My tummy won't allow me to do a bolus feed that would last me a few hours. I also was born with Microtia where my left ear didn't develop properly so I have complete hearing loss in that ear and some hearing loss in my right ear, which I now have a hearing aid to help me hear better. I have a at home nurse 56 hours a week, I receive Occupational Therapy, Speech Therapy, Physical Therapy and have a Early Interventionist because I'm at 3-6 month old developmentally. I'm catching up with the help of all my therapy. I am on 5 medications and see 7 different doctors for all my health issues. It's a lot on me but thru this all I keep a smile on my face.
My surgeries will be held in Charleston, SC almost 3 hours away from my home. My mommy and daddy will need some help with travel, hotel stays and some expenses that may be hard to cover as they will be out of work. They also have to miss work for appointments or if I get sick. That would be one less worry we will have. We appreciate any help you want to give us. Even if you can't donate just pray for my family and I or share the link with others. Thanks for reading my story, I will keep you all updated throughout my journey. Love Always, Teyana Skye
Also like my like page for daily updates, pictures and information about some of my heart friends www.facebook.com/teyanasheart
Can you believe it’s been 5 years already? Tomorrow I would’ve made it 5 years in this world. I’ve had two open heart surgeries, G-tube Surgery, tonsil & adenoids surgery, Multiple long hospital stays, multiple therapies... Gosh I could go on. My mommy is so happy I’ve made it this far, but I was never worried. We started celebrating my 5th birthday with a celebrity style photo shoot and I even got body paint. Then I had a super cool party at the bowling alley with my closest friends & family. Tomorrow I’m going to have cupcakes at school and have some family come visit. I’m enjoying pre- school, my teachers say I’m a strong little girl. I also got granted a Make - a- Wish and I chose to go on the Disney Cruise we leave in May. I’m so excited. In June I got a stent put in my heart and a few days in the hospital but it caused my heart to beat a little faster than the doctors like so I have to be on medicine for awhile. I just wanted to update you all before my 5th birthday tomorrow. Thanks for all your love and support these past five years we’ve really needed it and mommy insisted on keeping my page so I can do updates. You can also follow me on Facebook www.facebook.com/teyanasheart or on instagram @jsinclairandtskye Mommy and I update those pages a lot.
Look forward to hearing from some of you soon !
Much Love Always,
Sorry I didn’t update after the last post asking for prayers. This has been a very trying and disheartening week. Although Teyana’s initial admittance wasn’t heart related, it now is. Due to the severity of infection she has this will be a long recovery process for her. Thanks for all the concern and responses back. Just wanted to give a little update. For more information or post please follow her Facebook page www.facebook.com/Teyanasheart
Olga & Teyana
Some of you know Teyana personally or from her viral video. Whichever way you know her I’m starting this prayer chain to get my baby healed.
Teyana is an Intermediate ICU so her healing process has officially started as of 3 hours ago and we need her healed completely. We need all test to come back normal, We need her to eat & drink, we need them to NOT send my baby home whenever she gets to go with a PICC line but most importantly WE NEED THIS TO NOT GET TO HER HEART!
Please don’t keep asking what’s wrong or what’s going on just please pray and share this for others so the same.
Teyana & Olga
Fantastic. First day of school. :) Prayers sent lil sister.
Great news! Hope you have a great 1st day of preschool! Prayers you make it through your upcoming test. Look forward to hearing more updates from you. You're such an adorable young lady! You have a awesome mommy!
Rock on, Teyana. :)
Rock on, little sister.
Praying for you guys keep your eyes on the lord he will see you through it
I wish i could afford something. But i will definitely pray for yall. I know this can be hard, especially with a newborn baby. I wish yall the best of luck. She is beautiful!!!