Help Landon's Fight Thru Leukemia
After the blood work on Wednesday (January 18th), We received a call from the doctors office at 4:30PM saying his white blood cell count was a little high and his hemoglobin count was a little low which could indicate that he could be "anemic" but unfortunately we would need to go straight to the hospital as they were admitting him that night and a room would be waiting for us when we got there.
As we sat in his hospital room waiting, it was becoming more and more clear that the staff around us knew more than we did. Landon was hooked up to IV’s and he would say repeatedly that he just wanted to go home but we could not confidently tell our son to not worry or that everything was going to be okay. As we sat there, the doctor came in and we could tell by the way that she was easing into the conversation that what we were about to hear was going to change our lives forever. That moment our entire world turned upside, medical words had no meaning to us, and we had to come to terms with the "C" word for our one and only 4 year old son.
Landon had no idea that this meant no more school, hanging out with friends every weekend, sporadic Disney trips, or even trips to Target or Publix on a normal basis. He had no idea that every night or day was going to be a surprise and every moment after that would follow an on going doctors appointment which could be daily, weekly, or monthly, hospital trips at any moment, and chemo treatments frequently. How exactly do you tell a 4 year old this kind of news?
The oncologist came in shortly after to confirm the diagnosis of Acute Lymphoblastic Leukemia (ALL). Landon's white cell count was as high as 71,000 (average children who get diagnosed are at 51,000) which made Landon in the high risk range. The following day we completed the port surgery, bone marrow, and our first spinal tap to start treatment. After constant prayer, we did hear a gleam on good news which was that there were no signs of Leukemia in his spinal fluid or organs. However, we will still face an going treatment plan for the next 3.5 years until we are in the maintenance zone.
This was an unexpected shock for our Family and something that we will have to cope with on a daily basis. However we have to try our best to deal with what has been presented to us, God doesn't give you anything that he doesn't think you can handle. In only the short amount of days we have found out this tragic news, we can not express to you how many heart broken nights of trying to make sense of all this, or count how many buckets of tears that we have shed. We are done asking “why” or “how” we are now determined and focused on “when”. “When” he beats this and "When” he will look back and know that he made it through this.
On that note, we want to make sure Landon does not go with out and to do whatever we can make sure this never comes back. This means on going medical bills, medications, time off work, or any other essentials that our Family may need to help Landon. Our insurance indicates that we will have to pay $10,000 for our out of pocket maximum annually which I am sure we met on our first night of 10 days at the hospital. (one of many trips to come, I am sure). Although we are prepared to face this we also know there will be many unknowns and more battles than there are victories. Landon is also not the only kid having to battle this disease and our goal is not to just fight for Landon but to also raise awareness and give whatever we can to also help others just like him. We truly believe that there was a reason that this happened and it’s god’s will to use Landon as a vehicle to create a community for families just like ours and to put a smile on every kids face as they battle this disease. We would like to thank all of our family, friends, co-workers, and strangers that have showed us such tremendous love and support through this entire process. It would be an understatement if we said that we were surprised by the amount of love that has been shown for Landon and for our family. Thank everyone for there prayers and whatever act kindness that can be done for our sweet boy. We expect to do another bone marrow test at the end of our first 29 day introduction phase to see what the next course of action may be.We will update everyone as we know more through our journey. #teamlandon
Praying for Landon and all of your family as you fight this battle. I will especially pray for extra strength the next 60 days. God Bless
Keeping your family and son in our prayers, god bless
I get paid Wednesday and will be making a donation. Such a shock to hear and I'm so very sorry. I know he's a little trooper tho and you guys are in my family's prayers.
For every new patient Halifax Injury Physicians have in month of March we will donate $25 to assist with you.
Mimi and Papa are holding strong for you Landon, Brittany and Tommy! We will make it through this with LOVE AND SUPPORT!! We are proud of you Landon!!! We love You guys and saying prayers everyday ❤️ Support the little heroes!!!