Help Landon's Fight Thru Leukemia

$34,609 of $30,000 goal

Raised by 348 people in 16 months
On Monday, January 16th, Landon spiked an extremely high fever. Typically we would let the fever play out over a few days with Tylenol and Motrin but this time Landon wasn't complaining of anything hurting or upsetting him. We took him to the Pediatricians office that afternoon and they ordered an Ultrasound which we completed on Tuesday and a Blood Test which was completed on Wednesday. The Pediatrician predicted that he had Mono (the kissing disease) which would cause his spleen and liver to be enlarged and cause him to spike a fever since his body was fighting a virus.

After the blood work on Wednesday (January 18th), We received a call from the doctors office at 4:30PM saying his white blood cell count was a little high and his hemoglobin count was a little low which could indicate that he could be "anemic" but unfortunately we would need to go straight to the hospital as they were admitting him that night and a room would be waiting for us when we got there.

As we sat in his hospital room waiting, it was becoming more and more clear that the staff around us knew more than we did. Landon was hooked up to IV’s and he would say repeatedly that he just wanted to go home but we could not confidently tell our son to not worry or that everything was going to be okay. As we sat there, the doctor came in and we could tell by the way that she was easing into the conversation that what we were about to hear was going to change our lives forever. That moment our entire world turned upside, medical words had no meaning to us, and we had to come to terms with the "C" word for our one and only 4 year old son.

Landon had no idea that this meant no more school, hanging out with friends every weekend, sporadic Disney trips, or even trips to Target or Publix on a normal basis. He had no idea that every night or day was going to be a surprise and every moment after that would follow an on going doctors appointment which could be daily, weekly, or monthly, hospital trips at any moment, and chemo treatments frequently. How exactly do you tell a 4 year old this kind of news?

The oncologist came in shortly after to confirm the diagnosis of Acute Lymphoblastic Leukemia (ALL). Landon's white cell count was as high as 71,000 (average children who get diagnosed are at 51,000) which made Landon in the high risk range. The following day we completed the port surgery, bone marrow, and our first spinal tap to start treatment. After constant prayer, we did hear a gleam on good news which was that there were no signs of Leukemia in his spinal fluid or organs. However, we will still face an going treatment plan for the next 3.5 years until we are in the maintenance zone.

This was an unexpected shock for our Family and something that we will have to cope with on a daily basis. However we have to try our best to deal with what has been presented to us, God doesn't give you anything that he doesn't think you can handle. In only the short amount of days we have found out this tragic news, we can not express to you how many heart broken nights of trying to make sense of all this, or count how many buckets of tears that we have shed. We are done asking “why” or “how” we are now determined and focused on “when”. “When” he beats this and "When” he will look back and know that he made it through this.

On that note, we want to make sure Landon does not go with out and to do whatever we can make sure this never comes back. This means on going medical bills, medications, time off work, or any other essentials that our Family may need to help Landon. Our insurance indicates that we will have to pay $10,000 for our out of pocket maximum annually which I am sure we met on our first night of 10 days at the hospital. (one of many trips to come, I am sure). Although we are prepared to face this we also know there will be many unknowns and more battles than there are victories. Landon is also not the only kid having to battle this disease and our goal is not to just fight for Landon but to also raise awareness and give whatever we can to also help others just like him. We truly believe that there was a reason that this happened and it’s god’s will to use Landon as a vehicle to create a community for families just like ours and to put a smile on every kids face as they battle this disease. We would like to thank all of our family, friends, co-workers, and strangers that have showed us such tremendous love and support through this entire process. It would be an understatement if we said that we were surprised by the amount of love that has been shown for Landon and for our family. Thank everyone for there prayers and whatever act kindness that can be done for our sweet boy. We expect to do another bone marrow test at the end of our first 29 day introduction phase to see what the next course of action may be.We will update everyone as we know more through our journey. #teamlandon
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Our superhero! Landon is doing well during this phase so far- although we are only on our 2nd week of this course. He's still scared of course, mostly of the "flush" and accessing of the port. But he is slowly getting use to all the nurses, doctors, medicines, and hospital stays. I would say he has come a long way in such a short period of time, one day at a time everyone keeps telling me. However for us, we have made the decision for me to be a stay at home mom during this process to help care for Landon which means a little more stress when it comes to financials and also his insurance. For the mean time, we will have to switch to Cobra since his insurance was through my work which means high monthly payments. Between maintaining Tommys place downtown and our place in Winter Garden we have a lot of bills to cover for the next few months. We do thank everyone who has already donated and made such a big difference already. We truly appreciate everyone's kind words, donations, and prayers #teamlandon
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Today we had our weekly visit as usual for labs. However, we found out the result from our bone marrow biopsy from last Friday. The goal was for Landon to be in complete remission by the end of the 29 day induction and then go in the standard road map plan. To be in that phase your bone marrow must test at 0.01 or less. Landon's result was at 0.035 which is not in complete remission so we are in the "very high risk" road map. This course will have a little bit more chemo medicines in his spinal taps so that way it will try to catch him up to where he needs to be. The next 60 days in general will be more aggressive and frequent chemo treatments. On the other hand, we do know there are no more blast in his cells which is great news and there is still no signs of leukemia in his spinal fluids which is even better news. Remember when we first were admitted 75% of his cells were blasting into duplicate bad cells and now none of them are blasting which is a relief. Although this was not the number our family was hoping for, we still have some positive news and will still pray for good news. We do get a week and half off from labs and treatments to allow his immune system to re-coop. His platelets and hemoglobin levels were great so no transfusions needed today. We will begin our next course on March 3rd where we will be admitted for 4 days to start the next round of chemo and see how he reacts to that treatment before going home! We will keep you posted as we know more- please send all the prayers his way and donation helps in such a huge way with our time off of work, hospital bills, monthly living expenses, and things needed while in the hospital . Thank you for all the support that has be given, everyone has been so fantastic to our little family! #teamlandon #cancersucks #fightforthekids #nextphase
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Read a Previous Update
Amy Mercer
16 months ago

Praying for Landon and all of your family as you fight this battle. I will especially pray for extra strength the next 60 days. God Bless

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Joyce Izzarelli Bogardus
16 months ago

Keeping your family and son in our prayers, god bless

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Roxanne Morrow
16 months ago

I get paid Wednesday and will be making a donation. Such a shock to hear and I'm so very sorry. I know he's a little trooper tho and you guys are in my family's prayers.

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Travis Utter
15 months ago

For every new patient Halifax Injury Physicians have in month of March we will donate $25 to assist with you.

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Debbie Wyllie Miller
16 months ago

Mimi and Papa are holding strong for you Landon, Brittany and Tommy! We will make it through this with LOVE AND SUPPORT!! We are proud of you Landon!!! We love You guys and saying prayers everyday ❤️ Support the little heroes!!!

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$34,609 of $30,000 goal

Raised by 348 people in 16 months
Created February 4, 2017
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$25
Anonymous
1 month ago
$1,000
Exhale With Jilligan's
9 months ago

All good thoughts and prayers for Landon and his family from all of us at Jilligan's.

DM
$50
Diane Matousek
10 months ago

Praying for Landon.

HB
$20
Hope In The Box
10 months ago

You got this little man! ❤️ Always in my prayers...love you sweet boy -Andrea C

$750
Anonymous
12 months ago
Amy Mercer
16 months ago

Praying for Landon and all of your family as you fight this battle. I will especially pray for extra strength the next 60 days. God Bless

+ Read More
Joyce Izzarelli Bogardus
16 months ago

Keeping your family and son in our prayers, god bless

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Roxanne Morrow
16 months ago

I get paid Wednesday and will be making a donation. Such a shock to hear and I'm so very sorry. I know he's a little trooper tho and you guys are in my family's prayers.

+ Read More
Travis Utter
15 months ago

For every new patient Halifax Injury Physicians have in month of March we will donate $25 to assist with you.

+ Read More
Debbie Wyllie Miller
16 months ago

Mimi and Papa are holding strong for you Landon, Brittany and Tommy! We will make it through this with LOVE AND SUPPORT!! We are proud of you Landon!!! We love You guys and saying prayers everyday ❤️ Support the little heroes!!!

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