#Teamdilaine, Gaucher disease

Di'laine is a precious Jewel referred to as sweet baby D. She has a rare genetic lysosomal disease called Gaucher disease. We have been traveling to Virginia to see a specialist, Dr Goker-Alpan and to Maryland to the national institute of health to get baby D help. No one in our area knows about this rare disease and no one knows how to treat her. Dr Goker-Alpan is the top, number one specialist for this disease. Sweet baby D has been given but a couple short years to live but we are believing for a miracle for our sweet baby. She needs ERT infusions to help keep her spleen and liver from enlarging. The Drs are telling us she is deaf, has optical neuropathy, tracheomylasia, problems breathing and choking and laryngospasms. She has a feeding tube and is on several medications already. She will be having surgery soon to remove the feeding peg and add a Micky button and have her port put in her chest for her infusions. This is ALL so very costly. Her mom isn't able to work because sweet baby D requires around the clock care so the only income they have is from sweet baby D's dad. Please consider helping this beautiful child and her family and help give her a fighting chance at life! Thank you for your support.