Colton Lee & The Lee Family Medical Fund
"So I realized it has been a a few days since I put out an update on Colton. He is getting better and is now back off the cannula and breathing on his own. He has really bad reflux, but seems to be keeping his food down nicely over the past few days. Papa and Nama Lee came down today and got to hold him, which was really nice.
We are working with a speech therapist on mouth control, sucking, and all the things he needs to do before he can eat without the tube, but he picks it up a little more each day. We have learned that he really likes the boppy...I think he just likes to sit up and not lay down so much. He is much more alert and likes to be awake more of the time now, which I guess is right now that he is a month old. He has one heck of a grip and is a pretty strong little guy."
"Ok friends. It has been a pretty crazy weekend. On Friday afternoon, Colton began having issues with his oxygen levels again. They put him back on the RAM cannula and he has been on it since. On Saturday morning, they did another echocardiogram and his heart looked great. All the shunting was gone, meaning the PPHN has passed. That was good news, but it also means something else is behind all the issues he is having. Yesterday, we spoke with the pulmonologist as well as the ENT specialist to setup some tests for today.
Today we did a bronchoscopy to get a clearer picture of his throat, esophagus, and lungs. Then we did a CT scan of his chest and lungs to see if it showed anything. The good news is that both tests showed he is structurally sound. The bad news is that we don't know right now what is causing his issues. We have an upper GI and swallow test scheduled for Wednesday to see if he has issues with reflux or swallowing his food.
Today's test were bittersweet. We are so thankful that he does not have any structural issues with his lungs or throat, but we do not have any answers either. Please continue to pray that we gain insight into the root cause of his issues so we can begin to get little man healed and home!"
"Colton continues to get stronger every day. He is still breathing on his own and they have increased his feedings almost back to where they were last week. He is still learning how to eat from momma, but gets better at it every time he tries.
We are very thankful for how far he has come and how well he is doing. It is really awesome to see God's healing power in action and a comfort to know He is with our little boy."
"Colton is officially off the tubes and breathing all by himself. We also tried breast feeding today and it went pretty well.
We still have a ways to go before Jtown, but we are back on track and doing great."