On January 17th, at just 3 weeks old she began her four rounds of chemotherapy. She has needed blood transfusions, has been sick, lost weight, stopped eating but she always bounces back. Her tiny body has multiple scars from the painful procedures, biopsies and surgeries but after 4 rounds of chemo the biopsies of the remaining masses gave us hope and showed that Alyssa was winning and what neuroblastoma was left was maturing (becoming benign).
On June 26th we took Alyssa into the hospital to have her Hickman line taken out. We were excited to take her swimming, give her a real bath, go camping, take her to the beach and not hide her from the world anymore. While going under anesthesia Alyssa started to have a seizure. This prompted a Head CT and MRI that confirmed a fear that we had not yet had time to process the possibility of happening as we were just starting to reach the light at the end of our very dark, scary and sometimes lonely tunnel. She relapsed before even completing her first battle. The MRI confirmed 4 aggressive new tumors in her brain. More imaging also revealed that the original tumor on her adrenal gland is active again, there is a spot on her spine and multiple spots on her liver. We are shattered at the battle Alyssa has ahead of her. Now they are doing many more tests and consulting with specialist around the country.
They have discussed surgeries, travels and trials. We are preparing ourselves to travel for treatment. As we wait for the answers as to what comes next we hold onto the love and support that is being given to us. Alyssa's strength and beauty is astonishing. Most of her first 6 months of life have been spent in the hospital, hooked up to wires, monitors and medications; tucked away from the world to protect her. Alyssa shows us her fight everyday. She is fighting for a life she has barely begun with smiles, kisses and an infectious personality that you can't help but fall in love with. We know that there is nothing our baby girl can't beat. With Alyssa's strength, the support and prayers of family, friends and people we have yet to meet, Alyssa will beat this. She has a long road ahead of her but our hope and support are unwavering. Every heartbreaking moment, every second of fear, every devastating blow is no match for the joy she creates in our lives. We are blessed.
With our love and gratitude
Thank you so much for all of your love and support, true blessings in it's best form.
With our love
Alyssa's facebook page is Team Alyssa Renee
With our love,
Psalm 121 A song of ascents. 1 I lift up my eyes to the mountains— where does my help come from? 2 My help comes from the Lord, the Maker of heaven and earth. 3 He will not let your foot slip— he who watches over you will not slumber; 4 indeed, he who watches over Israel will neither slumber nor sleep. 5 The Lord watches over you— the Lord is your shade at your right hand; 6 the sun will not harm you by day, nor the moon by night. 7 The Lord will keep you from all harm— he will watch over your life; 8 the Lord will watch over your coming and going both now and forevermore.
this is so sad - prayers for this little one to heal quickly
so sad - praying for this dreadful cancer to leave her little body so she can get well and get away from hospitals, etc