Second Breathe, Tara needs new Lungs!

$25,115 of $30k goal

Raised by 209 people in 38 months
Tara Suplicki   HOPATCONG, NJ

The Start Of My Journey
On June 3rd, 2008 I was diagnosed with a rare lung disease called, Pulmonary Hypertension. I had never even heard of this before. I felt absolutely helpless as they told me that the only way to truly cure the disease was through an invasive surgical procedure called a double-lung transplantation. I was told that this disease could also be treated with medications, but since it is a progressive disease I would ultimately need new lungs. I didn't know what to think. I had just turned 30 and now my doctor was talking about IV medications, lung transplants and the fact that I could never have babies. That was where I became numb and completely shut down, I stopped listening.

Right After Diagnosis...
At diagnosis, I was told that I should go home and under no circumstance look up this disease on the internet. Of course this was the first thing that I did. That is where I really began to understand all about the medicines that were available for my disease. Three weeks after my diagnosis I had a stroke. I lay on the floor of my house for five hours until my Michael came home and found me. The stroke threw all of my doctors for a loop! It wasn't supposed to happen. I recovered fully from the stroke physically. Although I do have some residual speech problems and some balance issues, but otherwise no complaints!

Fast Forward To The Present...
December 2012, I went to the ER and was admitted to the hospital with a raging staph infection inside not only my Hickman line, but also in my blood. Some of my other vitals weren't doing so well either. So, they began testing to try to figure out what was wrong with me. Eventually the doctors decided to do another right heart cath. It showed that my Pulmonary Hypertension pressures had significantly increased. This showed my doctors and me that although we were aggressively treating my pulmonary hypertension from every pathway possible it wasn't being managed as well as we hoped. Instead of improving I was actually getting worse. Then in February of 2013, I was admitted to the hospital with RSV. This disease kept me in isolation for 9 days. It also drained my body physically. I found it harder to bounce back after being in the hospital this time. My medical team told me that it was time to go begin the process of getting listed for a double-lung transplant at Penn Medical Center.

Can You Help Me In My Journey?
As you may or may not realize this procedure is extremely expensive. The cost for the procedure is not the only cost that I will be facing. After the surgery I will be on anti-rejection medication for the rest of my life. Some of the medications I will only be on for 3 to 6 months those are the medications that my insurance is not covering. After the surgery is done it will be also be necessary for me to stay in the Philadelphia area near Penn Medical Center for close to three months. These costs are paid for by me and my family. However, you can help. The social workers at Penn Medical have told me that I need to raise the money for my expenses. They suggested doing fundraisers, but I have decided to make use of this site to raise the money I desperately need. Any help that you can provide will go toward medication and travel and housing expenses during this process. Any kind of donation is greatly appreciated and will truly assist me in this journey.


Thank you so much for your help.


With my heartfelt blessings

Tara Suplicki

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Update 82
20 months ago
I can not believe that this year is almost coming to an end... What a year it has been. I have come off of the sub-q pump and gone on to the newest FDA approved medicine Orenitram (Oral Remodulin)... I have been on the lung transplant list... I have been in and out of the hospital more times than I can count. My New Years Resolution for this Year is to stay out of the Hospital and to stay as healthy as possible. I am also not going to allow negative people in to my life. I don't have time for them. I hope that each and everyone of you has a wonderful New Year! You are my Rocks!! I love you!!
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Update 81
20 months ago
Hi everyone! I can't believe this year is coming to end already. I can't thank you all enough for all of the support and love that you have shown to me this year. I need to kick this bronchitis and sinus infection right now in order to feel human again. I can't wait for this New Year to start... I am looking forward to all of the new treatments that will get approved by the FDA and that may help me do better and live longer. I hope that everyone enjoys their Holidays! Merry Christmas and Happy Chanukah!
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Update 80
21 months ago
Well November is almost over... I can't believe it. Fall is almost over... Thanksgiving is almost here. I give thanks every day for my health being as stable as it has been these past few months. Even with all of the side effects these pills have thrown at me, I have to admit that I feel more like myself than I have in ages. I am going in for another Right Heart Cauterization in early December and we will get some better answers then. Better answers about how well these pills are working on whether or not we can go up on them or whether or not I can stay on them or not. It is sort of nerve wracking... I am a bit nervous for it. So I hope that all of your Thanksgivings are full of Family, Good Food and Football!!! Three of my Favorite things... So Happy Thanksgiving to all of you! You guys are my Rock Stars!! I couldn't get through this without all of your support
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Update 79
22 months ago
I just want to thank everyone for all of their support. November is Pulmonary Hypertension Awareness Month. We need to find a cure for this terrible disease!! Right now there is no cure. Yes we can get transplanted, but that is not a cure it is only a Band-Aid. Please share my story and so that we can help spread awareness for my disease.
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 2.2K total shares
Catalina Lomeli
29 months ago

Hi Sara Been thinking about you hope you are doing ok. Under the circumstances :)

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Denise Schott Zweigle
37 months ago

Tara. I have emailed him and will share the information with you as soon as I hear back from him.

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Denise Schott Zweigle
37 months ago

Tara, I have a friend who is a channel 7 helicopter news reporter. I will ask him if he has friends or know of companies that do the helicopter services.

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$25,115 of $30k goal

Raised by 209 people in 38 months
Created July 4, 2013
KD
$50
Kevin Duncan
20 months ago

Wishing you a Merry Christmas and a Happy and Healthy New Year!

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$20
Anonymous
20 months ago
$45
Anonymous
23 months ago
AS
$142
ACE TREE SERVICE
23 months ago

Always wishing you the best Carol & Kevin

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$500
Anonymous
23 months ago
$500
Anonymous
25 months ago
LV
$25
Liz Vengen
26 months ago

Good luck Tara!! Stay strong.

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$20
Anonymous
26 months ago
EP
$100
Eileen Padula
26 months ago
HC
$50
Holly Campbell
27 months ago
Catalina Lomeli
29 months ago

Hi Sara Been thinking about you hope you are doing ok. Under the circumstances :)

+ Read More
Denise Schott Zweigle
37 months ago

Tara. I have emailed him and will share the information with you as soon as I hear back from him.

+ Read More
Denise Schott Zweigle
37 months ago

Tara, I have a friend who is a channel 7 helicopter news reporter. I will ask him if he has friends or know of companies that do the helicopter services.

+ Read More
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