Second Breathe, Tara needs new Lungs!
The Start Of My Journey
On June 3rd, 2008 I was diagnosed with a rare lung disease called, Pulmonary Hypertension. I had never even heard of this before. I felt absolutely helpless as they told me that the only way to truly cure the disease was through an invasive surgical procedure called a double-lung transplantation. I was told that this disease could also be treated with medications, but since it is a progressive disease I would ultimately need new lungs. I didn't know what to think. I had just turned 30 and now my doctor was talking about IV medications, lung transplants and the fact that I could never have babies. That was where I became numb and completely shut down, I stopped listening.
Right After Diagnosis...
At diagnosis, I was told that I should go home and under no circumstance look up this disease on the internet. Of course this was the first thing that I did. That is where I really began to understand all about the medicines that were available for my disease. Three weeks after my diagnosis I had a stroke. I lay on the floor of my house for five hours until my Michael came home and found me. The stroke threw all of my doctors for a loop! It wasn't supposed to happen. I recovered fully from the stroke physically. Although I do have some residual speech problems and some balance issues, but otherwise no complaints!
Fast Forward To The Present...
December 2012, I went to the ER and was admitted to the hospital with a raging staph infection inside not only my Hickman line, but also in my blood. Some of my other vitals weren't doing so well either. So, they began testing to try to figure out what was wrong with me. Eventually the doctors decided to do another right heart cath. It showed that my Pulmonary Hypertension pressures had significantly increased. This showed my doctors and me that although we were aggressively treating my pulmonary hypertension from every pathway possible it wasn't being managed as well as we hoped. Instead of improving I was actually getting worse. Then in February of 2013, I was admitted to the hospital with RSV. This disease kept me in isolation for 9 days. It also drained my body physically. I found it harder to bounce back after being in the hospital this time. My medical team told me that it was time to go begin the process of getting listed for a double-lung transplant at Penn Medical Center.
Can You Help Me In My Journey?
As you may or may not realize this procedure is extremely expensive. The cost for the procedure is not the only cost that I will be facing. After the surgery I will be on anti-rejection medication for the rest of my life. Some of the medications I will only be on for 3 to 6 months those are the medications that my insurance is not covering. After the surgery is done it will be also be necessary for me to stay in the Philadelphia area near Penn Medical Center for close to three months. These costs are paid for by me and my family. However, you can help. The social workers at Penn Medical have told me that I need to raise the money for my expenses. They suggested doing fundraisers, but I have decided to make use of this site to raise the money I desperately need. Any help that you can provide will go toward medication and travel and housing expenses during this process. Any kind of donation is greatly appreciated and will truly assist me in this journey.
Thank you so much for your help.
With my heartfelt blessings
Hi Sara Been thinking about you hope you are doing ok. Under the circumstances :)
Tara. I have emailed him and will share the information with you as soon as I hear back from him.
Tara, I have a friend who is a channel 7 helicopter news reporter. I will ask him if he has friends or know of companies that do the helicopter services.