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Taidus Vs AML LUEKEMIA

$22,820 of $150,000 goal

Raised by 317 people in 17 months
Created August 13, 2017
If you have taken notice to our absence or unanswered calls or messages it's not intentional. It's because on June 6th our baby Taidus was diagnosed with AML leukemia. It's a rare aggressive type of leukemia. One of those kind that's makes you wish you would have bought a lotto ticket that day. His chances of getting this type of leukemia are less then 1%. It started with Taidus having a stuffy nose and slight swelling in his eyes. His dr diagnosed it as allergies, we continues with Benadryl and dimetap. After a week he got worse, his eyes got more swollen and his stuffiness didn't improve, we returned to his dr who had us get his blood drawn. The following day we got a call from his dr who said we need to take him to the hospital immediately as his white, red, and platelets were dangerously low. It was at the hospital that we learned he had leukemia, cancer of the bone marrow. The treatment for AML is aggressive to try and combat its natural aggressive nature to spread rapidly. Taidus will be hospitalized for 6-8 months. We are hoping for 6 over 8 months of course. At the time Taidus was diagnosed he was in pretty bad shape, and we didn't realize it till we got to the hospital. The leukemia had spread from his bone marrow (which was 80-100% full) to his spine and his sinus and orbital bones. Yea our baby was in bad shape, and it was the hardest thing as parent to watch these strangers poke and pierce your baby over and over again. But we were lucky, Taidus responded to the chemo exceptionally better then anyone could have predicted. Within 36 hours he went from having a swollen face, eyes that were popping out due to the amount of cancer cells behind his eyes. To pretty much looking back to normal. Although our baby is doing good and responding even better to all his treatment, the battle isn't over. He still has a long stay at the hospital. Along with the long stay and countless procedures he has gone through and the shopping list of medication, one could only imagine the cost occurred during this time. It doesn't make things easier that an adult has to be with him at all times. And His amazing mom has reduced her schedule doing make up to almost nothing in order to be with our baby all day and night at the hospital. As fortunate as we consider ourselves, it's difficult since we have 2 other boys to consider. And having our family apart when we were so use to all being under one roof all the times makes the separation more difficult. As parents who are both to proud to ask, we have held out as long as possible. We are not ones to ask for help. But at this time we regret to have to ask friends and family for any help with financial assistance to help care for Taidus and his medical expenses. Mom will be in the hospital with Taidus for the 6-8 months with a reduced schedule for her business. Dad will be off for 12 weeks throughout taidus's stay and also take a 30 day leave once he out of the hospital. It's with the reduced work schedule for both and medical expenses that we have to ask for any donations. It's with our deepest appreciation that we say thank you to anyone willing to donate.
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Update 3
Posted by Nick Munoz
17 months ago
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Update and for those that have graciously asked to donate or be tested for Taidus. We appreciate the thought so much!! The Bone Marrow Transplant (BMT) that Taidus will be receiving will be a stem cell transplant from donated cord blood. When his older brother Kaiden was born we decided to bank his cord blood just in case Kaiden or one of us ever needed it. We of course never thought we would need it, especially for his baby brothers Leukemia diagnosis. And we were very hopefully as the doctors said it would be the best option and they were so happy to hear that we saved his brothers cord.
Unfortunately siblings only have a 25% chance of being a match and each parent is typically only 50% match. So none of us are matches for Taidus which was disappointing to hear. But we are fortunate to have several unrelated donor matches already lined up. Tai has the more rare AB+ blood type and can receive blood from any blood type. At this time we are not in need of any blood or plasma donations, the hospitals we are at have the supply.

Taidus finished his last dose of chemo this morning for his third round. His ANC (absolute neutrophil count) -neutrophil is a type of white blood cells that fights off infections - will begin to drop to zero. Then it will just be a waiting game until his body recovers and can begin to produce the new neutrophil cells. In the past it was about 4 days until we seen his counts rise but being this was a stronger dose we aren't sure how long it will be. In the mean time we have to be as cautious as possible to prevent him from getting sick. Washing everything really well, especially hands, very little to no visitors, not sharing food or drinks, and limiting the times we leave the hospital and potentially bring back any new bacteria in with us.
Once his counts recover we should be able to go home for a week, where again we have to be super carefully we don't risk him getting sick at home and we can't take him to crowded or high bacteria areas. If all goes well we will then be headed to BMT at UCLA in the next month. •

Thank you everyone for the continued support for our #taibabystrong
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Update 2
Posted by Nick Munoz
17 months ago
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Our week away from the hospital has come to an end. It's back to 4 walls and the sounds of machines constantly beeping. The constant interruption of nurse, doctor, and all other medical personnel storming in your room. Back to people barging in while he's asleep, and no privacy to even have a min to use the restroom or take a shower. We walk miles around this ward to try and stay active and sane (15 laps) and keep Taidus busy. We are told this round will be pretty brutal for our baby. The dose being administered will yield 10x the potency from his last two cycles. We have our fingers crossed he will continue to thrive and remain healthy through it all. Thank you to everyone who has continued to support us through this rough time, thank you for your support. We see and read everything, and we are thankful to not only family and friends, but to the unfamiliar individuals who are helping as well.

Munoz fam
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Update 1
Posted by Nick Munoz
17 months ago
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This week Taidus was able to leave the hospital. We finally had a chance to get away from the hospital and be out and about like we use to be. It was awesome seeing Taidus react to his unfamiliar surrounding, he's been in the hospital so long he was excited to be in a car seat and see traffic out the window. He finally got to feel the sun on his milky white body, lol. We are definitely cherishing every moment we get to spend as a family.
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$22,820 of $150,000 goal

Raised by 317 people in 17 months
Created August 13, 2017
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