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Surgery for Arachnoid Brain Cyst

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I was diagnosed with the biggest arachnoid brain cyst ever recorded worldwide after having a seizure in February 2016. I've had 6 brain surgeries since and the cyst is the same size. It is 12.3 cm × 16.5 cm × 7.9 cm which is 1.6 liters of celebrospinal fluid in my brain. No Dr.s in Michigan know how to further treat my condition. My brain and body are deteriorating and I have no quality of life living this way. My mom and I finally found a neurosurgeon at Yale University in New Haven Connecticut. I have an appointment with Dr. Kristopher Kahle on November 2, 2018. Dr. Kahle is also doing a case study to learn more about these cyst and my mom and I have already sent him our DNA. Dr. Kahle is confident he can help me. I'm asking if anyone can help my mom and I in traveling expenses, lodging and medical expenses I'm going to incur. I'm fighting for my life. Thank you very much in advance.
Sincerely,
Tyler Leggett
Janet Leggett

Organizer

Tyler Leggett
Organizer
Byron Center, MI

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