Kai's Next Adventure
Sam and Lee's sweet son Kai has been diagnosed with Leukemia, and will need treatment for the next 3.5 years. He is determined, brave, strong, and supported by his incredible family, who find themselves travelling a path they never imagined.
Our hope is to raise money to help them complete Kai's treatments in Vancouver with as little financial stress as possible. They are grateful for the immediate support of Y.A.N.A, and our goal is to support them not only in the immediate days, but upon their return home to Cumberland.
Sam and Lee are dedicated volunteers and valued community members. It is our hope to raise funds so that they may fully support Kai without the stress of financial hardship.
Not only can you donate here on the GoFundMe page. We have also setup an account at the First Credit Union in Cumberland. You can drop by any First Credit Union branch and donate in person.
The account details are 521336.
Thank you for all your love and support for Sam, Lee, Kai and Indi.
With the support of the caring staff at NIDES, Kai has been able to return to school part time. He thrives there. This has a huge impact on his mental wellness. We obviously worry about him catching illnesses from other kids at school due to his weakened immune system but we decided that the benefits outweigh the risks.
Last week his class went on a field trip to paradise meadows. Kai hiked 6km with his friends.
Once a month for 5 days Kai takes a steroid called prednisone that is both an anti inflammatory and immune suppressor. This drug causes extreme mood swings, cravings and insomnia. Kai will often be awake for a few days. These days are very difficult to cope with but we have accepted that one week out of each month is a write off and we spend our days living moment to moment, coping as best we can. It is such a huge relief when this week is over and this relief overshadows the difficult. We almost forget about it because we are so happy to be back to new normal.
All in all, things are going well. We have an incredibly supportive family and community.
Work and finances continue to be a source of stress but we are slowly getting back on our feet.
Thank you for your support in all its many forms. If you could share this link we would greatly appreciate it.
We will now travel to Children's once a month for treatment. Once every 3 months is a lumbar puncture and intrathecal chemo to catch the sneaky cells that might be hiding in the brain stem. Kai has to take medication at home every day which has become a routine for him. He loves watching movies and spending time with his friends but tires easily. It's hard to see him struggle but the hard times we've had have given us perspective and we're so happy to see him doing things with his friends like play in the forest and swim.
We were given the good news yesterday that Dexamethasone, a steroid and chemo drug, will no longer be part of Kai's therapy. This drug is amazing in it's ability to fight cancer but can be very hard on some kids. Kai is particularly sensitive and taking Dex wreaks havoc on his mind and body. It is devastating to watch and affects our whole family. Our oncologists have decided that because he's doing so well we can eliminate the drug because he's not tolerating it. We feel like a dark cloud has lifted and knowing he doesn't have to take it of the next 2.5 years makes us feel like we can survive anything now!
Thank you for all your positive messages and support.
We are headed home for a short visit for the first time since hearing Kai's diagnosis. We are completely overwhelmed with gratitude for all your thoughtful words and donations. Thank you from the bottom of our hearts❤️
I am really sorry to hear of this news. Our hearts are with you and we are sending a vision of health and healing for your journey. ♥