Support for Luke to stay home.

£840 of £500 goal

Raised by 32 people in 24 months
UPDATE. I am very lucky to have my son Luke who is 16yrs old with complex needs.  Luke has had 11brain surgeries with 2 shunts in place, 1 for a cyst that couldn't be removed and one where he had hydrocephalus. NOW THERE ARE 4 NEW CYSTS TOO.. Luke has severe learning disabilities, epilepsy, hypermobilty and low tone tone muscle problems, autisitc spectrum and challenging behaviour.  Luke has been assessed as needing 2-1 care in some areas.  However I have had to fund privately carers or rely on support from family & friends, for over the last 16 months after a care plan in place was no longer in place. AFTER 4 MORE SURGERIES LAST YEAR & 4 NEW CYSTS FINALLY SOME FUNDING FOR CARERS IN PLACE BUT NOT ENOUGH HRS ALLOCATED BY LOCAL AUTHORITY. I too have disabilities and my health has deteriorated over this period.  I have had to cancel operations for myself, delay taking new medication,  as this would mean Luke going into care & I do not want this to happen as it would have a detrimental affect on  Luke, myself, our family & friends as may not even be local.  All I want is to be able to have my son living at home with me and the correct level of support needed to be in place to enable Luke to live life to the full and reach his full potentials; be able to go out and be part of the local community and not have to worry about simple task such as having a bath or simply going taking Luke to enjoy the dancing he loves! I am grateful to all for your support in raising funds so I can them employ carers to keep Luke at home.
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Hi everyone so last year 4 more brain surgeries, temporarily tube fed then after 1 week home from hospital & finally some hrs of direct payment funding offered by local authority Luke taken back into hospital to find out a scan taken over a month to this date, showed 4 new cysts on his brain. Not informed about this at all. Another month in hospital & now home with still ongoing battles to get the hrs & level of support needed to keep Luke at home. So grateful to everyone for ongoing support x
My previous son Luke x
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OMG A HUGE THANK YOU TO YOU ALL FOR HELPING US REACH THIS TARGET THIS WILL HELP KEEP LUKE AT HOME. I PUT THIS TAGET AS GRATEFUL TO EVERYONE FOR ANY SUPPORT OF COURSE MORE IS NEEDED FOR LUKE TO REMAIN AT HOME LONG TERM SO THANK YOU ONCE AGAIN AND PLEASE DO KEEP SHARING I WILL KEEP EVERYONE UPDATED ABOUT LUKE ESPECIALLY AS AT MOMENT THINGS ARE NOT TOO GREAT WITH HIS PAIN AND MOBILITY AND CHALLENGING BEHAVIOUR AND I AM WORRIED ABOUT MY SON WHO SHOULDN'T BE NOT HAVING SUPPORT. AGAIN THANK YOU EVERYONE XXXX
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Have to say a huge thank you to all who have donated I really appreciate all support with donations, the charity events we have coming up on the 28th & 29th of this month too tickets on sale now as well as places still available for the dance lessons with Robin Windsor. We will get carers in and hopefully keep Luke home x
My handsome son Luke
28th & 29th of April charity events
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Hi all just a thank you to those who have helped so far, events happening from 28th of April to the 1st of May. Once again thank you all for your support x
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£840 of £500 goal

Raised by 32 people in 24 months
Created March 8, 2017
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CD
£40
Catherine Dopp
9 months ago
1
1

I hope lots of people leave a little like me and it makes a big difference for you. Hang in there. Smiles to you both.

AW
£20
Alison Wiles
18 months ago

Never enough for such a brave and wonderful young man xxx

CE
£20
Carol Edwards
23 months ago

Sorry I couldn't get to the events this weekend. Hope everyone had a fab time!xxx

CB
£40
Chris Barnett
23 months ago

All the best, Chris and Alison

£10
Anonymous
23 months ago
CM
£20
Christine Watson MBE
23 months ago

Sorry I can't join you over the weekend but wish you the best of luck x

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