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Hayden Bellomy is 5 years old. He is very energetic, loves to play with his older brother and little sister, loves Spiderman and other action heros. Hayden is a great kid who is in need of a lot of prayers. Below is the entire story from Hayden's mom, Sarah, about what is going on with Hayden. Please share your support with this family as they have a long journey ahead. Any donation is greatly appreciated.
"Hayden woke up Wednesday morning with fever. I kept him home from school. He laid around a slept all day. I took him to Fast Track that night. They tested him for several things and all came back ok and negative. We came home and went to bed. When he woke up Thursday morning, he still had fever and he had lost some control over his right arm. It was like a floppy noodle but he could still use it. I took him to our pediatrician and had him looked at. No real explanation as to why he was having this muscle weakness so we were to just monitor him. Later in the afternoon, the weakness was worse and his neck had become involved. Back to the doctor we went. After being evaluated there, Dr. Beach felt that he needed to be seen by pediatric specialists so he had us take him to LeBonheur.
While we were in the ER, his weakness progressively got worse. It had moved to the right side of his face and his gait was also affected. His respirations and heart rate had become elevated as well. We were moved to a room on a regular floor after they had finished up with a ton of tests in the ER. Once on the floor, he was evaluated by two doctors and his nurse. After the doctors consulted with their "boss," it was decided that he needed to be moved to PICU where he could be monitored more closely. His weakness and his respirations had gotten worse in the short amount of time we were in the room, only 2 hours.
As soon as we got to the PICU, we met with Hayden's neurologist, nurse and a whole slew of other people. After the neurologist's evaluation, he ordered an MRI stat! By this time, Hayden couldn't move his right arm at all and he was slowly losing his ability to move his left arm. There was an issue with getting the MRI done stat because anesthesia isn't on call at night so we had to wait for them. So, we at least got to be the first of the day. He had to be sedated for the MRI.
Before his MRI, they thought he had viral meningitis from early results of his spinal tap. After the MRI, the results were changing to acute localized viral myelitis. This means that he has a viral infection in the spinal column in his neck. This is what, they hope, is causing all of his muscle weakness. As treatment, he is getting high dose steroids, Acyclovir, and plasmapheresis.
At this point in time, he can move his fingers and wrist on his left hand and he can move his head to the right. He can not lift either arm nor can he sit up on his own or lift his head. When he smiles, the right side of his face doesn't move. Unfortunately, they aren't sure if any of his weaknesses will improve any or be permanent. His respirations continue to be a major concern and we will stay in PICU until they become more stable.
The good news is that there seems to have been no worsening symptoms over night. He has three different teams of doctors, neuro, infectious disease and the PICU doctors and nurses working on plans and treatments to get our little guy all better. Please continue to keep our sweet boy in your prayers! We have a long road ahead of us!"
"Hayden woke up Wednesday morning with fever. I kept him home from school. He laid around a slept all day. I took him to Fast Track that night. They tested him for several things and all came back ok and negative. We came home and went to bed. When he woke up Thursday morning, he still had fever and he had lost some control over his right arm. It was like a floppy noodle but he could still use it. I took him to our pediatrician and had him looked at. No real explanation as to why he was having this muscle weakness so we were to just monitor him. Later in the afternoon, the weakness was worse and his neck had become involved. Back to the doctor we went. After being evaluated there, Dr. Beach felt that he needed to be seen by pediatric specialists so he had us take him to LeBonheur.
While we were in the ER, his weakness progressively got worse. It had moved to the right side of his face and his gait was also affected. His respirations and heart rate had become elevated as well. We were moved to a room on a regular floor after they had finished up with a ton of tests in the ER. Once on the floor, he was evaluated by two doctors and his nurse. After the doctors consulted with their "boss," it was decided that he needed to be moved to PICU where he could be monitored more closely. His weakness and his respirations had gotten worse in the short amount of time we were in the room, only 2 hours.
As soon as we got to the PICU, we met with Hayden's neurologist, nurse and a whole slew of other people. After the neurologist's evaluation, he ordered an MRI stat! By this time, Hayden couldn't move his right arm at all and he was slowly losing his ability to move his left arm. There was an issue with getting the MRI done stat because anesthesia isn't on call at night so we had to wait for them. So, we at least got to be the first of the day. He had to be sedated for the MRI.
Before his MRI, they thought he had viral meningitis from early results of his spinal tap. After the MRI, the results were changing to acute localized viral myelitis. This means that he has a viral infection in the spinal column in his neck. This is what, they hope, is causing all of his muscle weakness. As treatment, he is getting high dose steroids, Acyclovir, and plasmapheresis.
At this point in time, he can move his fingers and wrist on his left hand and he can move his head to the right. He can not lift either arm nor can he sit up on his own or lift his head. When he smiles, the right side of his face doesn't move. Unfortunately, they aren't sure if any of his weaknesses will improve any or be permanent. His respirations continue to be a major concern and we will stay in PICU until they become more stable.
The good news is that there seems to have been no worsening symptoms over night. He has three different teams of doctors, neuro, infectious disease and the PICU doctors and nurses working on plans and treatments to get our little guy all better. Please continue to keep our sweet boy in your prayers! We have a long road ahead of us!"
Organizer and beneficiary
Brittnay Barnett
Organizer
Jonesboro, AR
Sarah Bellomy
Beneficiary
