Support for Brett and Anna Parker

$10,803 of $10,000 goal

Raised by 157 people in 10 days
Created January 10, 2019
Laura Woods
on behalf of Anna Parker
Just 5 years ago, Anna and Brett were pregnant with their first baby. Sweet Joplin came into the world happy and full of life. There was rarely a time in his first 4 years of life that he wasn't laughing, smiling or moving around.
At 3 months, Anna and Brett realized something was wrong, and although they had concerns, their paediatrician didn't start taking them seriously until 6 months of age. He was displaying signs of obvious global delays and had many medical complexities. By the age of 3, Joplin was diagnosed with HECW2 gene mutation but was given a full life expectancy. He is 1 of 20 children world-wide to have this condition.
It wasn't until last summer that Joplin ended up being hospitalized and was transferred to ICU. Neurology then referred them to Canuck Place for palliative care.
Out of the blue, he started to develop intractable seizures, respiratory depression (and sometimes respiratory failure), brain atrophy, and eventually, he started losing skills that they had worked so hard to teach him. Over time, due to the seizures and progression of his illness, he started having major organ failure.
As it stands now, Joplin is at Canuck place receiving end of life care. The doctors have told Brett and Anna that there is nothing else they can do, aside from provide comfort care with pain management medications and oxygen support. Brett and Anna are in shock that Joplin hit this point in his care so quickly, and their family is devastated. Their family was blindsided with this news right after Christmas and have had no time to prepare for this.
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Update 3
Posted by Anna Parker
4 days ago
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From the bottom of our hearts, thank you so much to everyone who donated to our family, and to everyone that shared our story. We are really blown away but the love and support we have received and are very grateful. ❤️
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Update 2
Posted by Laura Woods
7 days ago
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It's with a heavy heart that we report Joplin passed away in the arms of his mom and dad at 5:01 pm, January 11 at Canuck Place Childrens Hospice
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Update 1
Posted by Laura Woods
9 days ago
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Money raised from this gofundme campaign has a couple purposes.
1. To help with funeral costs
2. To give Brett and Anna time
to be together as a family and grieve the loss of Joplin.
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$10,803 of $10,000 goal

Raised by 157 people in 10 days
Created January 10, 2019
Laura Woods
on behalf of Anna Parker
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