Support for Amira

Amira Ryder was born on May 5th, 2018. She appeared to be a perfectly healthy baby girl at every check up. Her family took her into the emergency one October Wednesday evening noticing a few concerns. That emergency visit took weeks to end as Amira was admitted within hours. After extensive testing, her family was told she had an extremely rare, incurable disease called Globoid Cell Leukodystrophy or Krabbe Disease. She likely wouldn’t live to see her first birthday.

In Canada, only 1 or 2 infants per year are born with Krabbe disease, therefore newborn screening isn't preformed. That's 1 in every 250,000 births! Nor are our physicians or pediatricians familiar with the symptoms to recognize it. The diagnosis only came for the Ryder family because the Metabolics specialist was asked to review her case.

Krabbe Disease is a genetic disorder that destroys the protective coating of nerve cells in the brain (known as the Myelin Sheeth) and throughout the nervous system. Symptoms include loss of appetite, severe nerve pain that will lead to vomiting, seizures, blindness, deafness, paralysis and death. It is truly a devestating disease for anyone to endure.

The Ryder family are coping as best they can, but could use some assistance.  This money is going to be going directly to the family to help out with bills for taking time off of work and any other costs that come up with having a terminally sick child.

Please help out this family.  There is nothing worse than losing a child but watching that child slowly slip away is more painful than you can imagine.  Thank you for all of your donations.  I know that Heather, Brett, and the other children truly appreciate the donations and positive thoughts sent their way.  There are no words that can thank you enough for taking the time to read their story and donate.