Stephanie Bachert's Syndrome Battle
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For years I've been in and out of the Dr's office and the ER for abdominal pain. In Sept 2014 during one of my many visits some studies were ordered that revealed a very rare syndrome that is estimated to affect less than 1% of the population and is known as nutcracker syndrome.
Nutcracker syndrome is compresion of the left renal vein between 2 major arteries known as the aorta and the superior mesenteric artery. This compression causes abormalities with blood flow and in my case has caused another syndrome called pelvic congestion syndrome. Basically the reversed flow of blood into my pelvic cavity has caused varicose veins which causes pelvic pain.
Symptoms of nutcracker syndrome itself are hematuria or blood in urine, proteinuria or protein in the urine and left flank pain. My pain however I feel on both sides because of the reveresed blood flow. This pain can get pretty severe at times and almost unbareable. I've also had recurrent UTI's since I was 3 years old which may or may not be connected. That is the same age the proteinuria and hematuria began. Over the years several urologists and a couple of nephrologists were not able to give me any answers.
I have also been diagnosed with a 2nd rare syndrome called Superior Mesenteric Artery Syndrome (SMA syndrome). My duodenum is being compressed under the SMA along with my left renal vein. My symptoms are indigestion, bloating all the time, lack of appetite, constipation, epigastric pain, early satiety or feeling full only after eating small amounts - eating more causes more pain. and nausea.
It's been a very long and hard road. I was suppposed to have 2 surgeries to fix both syndromes at U of M in April but less than 2 weeks before they took away the SMA syndrome diagnosis and the vascular surgeon refused to operate on me due to my low weight. Cleveland Clinic has given me that diagnosis back. I have lost 48lbs and am unable to maintain my weight.
Between medical bills, gas to get back and forth to Ohio and now I"m looking at applyng for long term disability We are literally living paycheck to paycheck right now with me struggling to work full time. I already took short term disability when I was seeing U of M and thought I would have had surgery to fix both problems by now but God had other plans. I don't know what Christmas will look like this year for my family but I have faith God will look out for me and my family as I fight to get through this huge health battle back to a healthy me. I"m hoping this website will help answer some prayers and relieve some stress. Thanks so much! We appreciate any and all help! If you would like to learn more please visit my carepage at:
http://www.carepages.com/carepages/RareandBeautiful
Nutcracker syndrome is compresion of the left renal vein between 2 major arteries known as the aorta and the superior mesenteric artery. This compression causes abormalities with blood flow and in my case has caused another syndrome called pelvic congestion syndrome. Basically the reversed flow of blood into my pelvic cavity has caused varicose veins which causes pelvic pain.
Symptoms of nutcracker syndrome itself are hematuria or blood in urine, proteinuria or protein in the urine and left flank pain. My pain however I feel on both sides because of the reveresed blood flow. This pain can get pretty severe at times and almost unbareable. I've also had recurrent UTI's since I was 3 years old which may or may not be connected. That is the same age the proteinuria and hematuria began. Over the years several urologists and a couple of nephrologists were not able to give me any answers.
I have also been diagnosed with a 2nd rare syndrome called Superior Mesenteric Artery Syndrome (SMA syndrome). My duodenum is being compressed under the SMA along with my left renal vein. My symptoms are indigestion, bloating all the time, lack of appetite, constipation, epigastric pain, early satiety or feeling full only after eating small amounts - eating more causes more pain. and nausea.
It's been a very long and hard road. I was suppposed to have 2 surgeries to fix both syndromes at U of M in April but less than 2 weeks before they took away the SMA syndrome diagnosis and the vascular surgeon refused to operate on me due to my low weight. Cleveland Clinic has given me that diagnosis back. I have lost 48lbs and am unable to maintain my weight.
Between medical bills, gas to get back and forth to Ohio and now I"m looking at applyng for long term disability We are literally living paycheck to paycheck right now with me struggling to work full time. I already took short term disability when I was seeing U of M and thought I would have had surgery to fix both problems by now but God had other plans. I don't know what Christmas will look like this year for my family but I have faith God will look out for me and my family as I fight to get through this huge health battle back to a healthy me. I"m hoping this website will help answer some prayers and relieve some stress. Thanks so much! We appreciate any and all help! If you would like to learn more please visit my carepage at:
http://www.carepages.com/carepages/RareandBeautiful
Organizer
Stephanie Bachert
Organizer
Byron Center, MI
