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Digging out of our Cancer disaster

$1,884 of $15,000 goal

Raised by 21 people in 5 months
My story was too long and seemed overwhelming when read. So the bottom line is we are in dire straights and have 5 months to work on making changes so life is more secure both health wise and financially. I know no one can buy a house or a mortgage. I'm not asking for anyone person or persons for that. I am asking for folks to contribute in an ongoing basis so we can reach an amount that gives us space to make the move to a stable living situation and start to wipe out the thousands in bills. To be honest this is a scary situation as we have no resources if something happens. That's why I am reaching out to folks. Shared Pain is Lessened Shared Joy is Increased Help where you can.
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Found out my doc who I can't say enough about is on leave for 6 months. It's a bummer since having a4yr relationship means he could almost read my mind. I don't think we ever had a visit shorter than 30 minutes! He also made sure I didn't want to do anything stupid that would jeopardize my care. I haven't heard from the New doc yet but should meet them in next few weeks.
Thanks to you all I was able to buy some ink and paper for the 20 yr old Epsoon printer I have! Reason b being I'm submitting work to Huntsman for display. Unfortunately it's all donated. No advertising etc since they can't solicit. But it's a small step and gives me focus.
As my camera is ancient I've been working on macro skills. Mainly building a setup stage so I am ready for pictures as I find them. This fits with my philosophy as well as hear and finances. Meaning anything I need I can build with household items. Camera is on trips so my shakes get nullified. We'll see how it goes. Getting close to winter means the bug thing will be rather tough.
As always please keep it coming esp since Tucson hang is coming in November and the kids are not cheap!
Shared Pain is Lessened
Shared Joy Increased
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Saw doc yest prior to infusion of Darzalex. Thankfully not the infusion, though same amount is less time. Unthankfully the side-effects - flu symptoms, tiredness for a few days come on stronger and quicker. I'm also starting to have a permanent cough and runny nose. Much like having the remnants of a bad cold. So Cough syrup and nasal spray are now added to the list. Both of these were making falling asleep difficult and the taking of them doesn't help the tiredness. Been keeping a watch on my liver as well. The Pomalyst affects blood chemistry so my liver has been swollen at the end of that cycle, one thing I do NOT want to happen and have so far avoided dealing with. But it could also be painful due to the 3 inches I lost from the fractured and compressed vertabra that now have fused and could be compressing the lived. One worrying sign is mthat area of my chest where the lived sits had been aching when sitting so I would usually lay down for a bit of stand up but on my last few walks the ache had NOT gone away. Something to watch for and take pictures next time it occurs to show the doc. For you old timers, As Roseanne Roseanna Danna always said, It's always something!
As always, please add what donations you can. A few more and we're over 2000$ which is a highwater mark to date, but short of the hoped for. Nonetheless, thanks from us are copious and appreciated! A few pictures for your enjoyment!
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Another sleepless night lead to rampant neuron activity which I am posting here, I believe this is the last post until I close out this fundraiser next week. Though i reserve the right to hammer home other issues if they arise!!!LOL!!! I hope this encourages others to donate to the cause.
n looking thru other fundraising posts and sites I noticed the most successful requests seem to be either about children or show people in distressing states of damage. We see children way too young to be dealing with Cancer: bald heads, IV poles following the everywhere, courageous smiles, parents tears, tubes seeming to come out of any orifice available, and all filled with Hope current med technology will pull them from the despicable hold of Cancer they fight day in and day out.

I’m a 62 yr, old male with Cancer, diagnosed in 2015, out of the blue as happens so often. Multiple Myeloma, a currently incurable Cancer, though very manageable if caught in time. We have a fundraising page on GoFundMe to help with the incredible expense Cancer carries. Including inability to work; trying to survive on SS disability; praying health or financial disasters stay at bay.

If you see me, there’s a good chance you wouldn’t realize I had MM. In my case what I have is serious, but almost wholly internal. The only external clue is the infusion port in my upper right chest, covered by my clothes. This is only a small sign for others unless I explain to them my MM.

For example: my right shoulder blade has been split by the more than 100 lesions which have infiltrated and eaten my bones as MM is a blood disease residing in the marrow in order to wreak the havoc from it’s out of control Darwinian mutation.

From my Bone Marrow transplant and the chemo used I have heart damage. I am left with app 65% of my former heart function. I’ve been told it’s gone. Kaput forever. Coming from someone who’s life has always been active, I am no longer able to summon the strength and ability once available to me. Frustration as well as hidden from view.

Chemo has also left me with neuropathy. Nerve damage irreversible. So I can walk ( with a cane ) but biking, hiking, athletics are no longer part of life. Neuropathy has also reduced, really stopped, my guitar playing. Fingers are not only weak but have a mind of their own.

Chemo has also depleted the energy I used to propel me thru athletics, marriage, raising kids, working my ass off to support those who depended on me.

There’s other unseen issues only I am aware of regularly. Chronic pain haunts me in every endeavor I undertake. The energy required to fight this in order to do anything can be immense.

The primary effect of all this is my hope for a retirement with energy to play with grandkids has been reduced greatly. All else pales when I ponder this.

I think that’s enough and hope I was able to make the point that not all diseases or stages of disease are immediately obvious.

If you can please consider donating to our cause, Incrementalism does work, and reduces donaters pain while ensuring we can share what we have with others.

Shared Pain is Lessened. Shared Joy is Increased.

Thank you from Sam & Deborah.

https://www.gofundme.com/srcbennett-funding&rcid=r01-153753518876-9f7e6fa766944c7c&pc=ot_co_campmgmt_w
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Last days of this chemo cycle meaning I get a break from drugs for a week. Brain clear. Fatigue less. Appetite back a bit. Desire. Like Cancer which takes away the chemo has it's own way of wracking ones body and life in the course of healing or at best keeping the Cancer at bay. In this case at bay has life altering side effects. Please donate as you can. It all keeps us going and positive and keeps the wolf from the door. Thank you.
Spaced
Snack time
A rose by any other name...
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$1,884 of $15,000 goal

Raised by 21 people in 5 months
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SB
$25
Sarah Bennett
21 days ago
CO
$50
Carl Oehmann
1 month ago
$30
Brian Symmes
1 month ago
$35
Anonymous
1 month ago
$20
Anonymous
2 months ago
CO
$50
Carl Oehmann
2 months ago
$100
Anonymous
2 months ago
KD
$30
Kristoffer Darlington
3 months ago
PK
$250
Paul Kosmides
3 months ago
CO
$50
Carl Oehmann
3 months ago
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