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Digging out of our Cancer disaster

$2,079 of $15,000 goal

Raised by 25 people in 8 months
Created May 10, 2018
My story was too long and seemed overwhelming when read. So the bottom line is we are in dire straights and have 5 months to work on making changes so life is more secure both health wise and financially. I know no one can buy a house or a mortgage. I'm not asking for anyone person or persons for that. I am asking for folks to contribute in an ongoing basis so we can reach an amount that gives us space to make the move to a stable living situation and start to wipe out the thousands in bills. To be honest this is a scary situation as we have no resources if something happens. That's why I am reaching out to folks.Shared Pain is LessenedShared Joy is IncreasedHelp where you can.
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Update 51
Posted by Samuel Robinson Bennett
5 days ago
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From infusion chair
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Update 50
Posted by Samuel Robinson Bennett
5 days ago
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There may be some overlap here. As Leo Kottke says, one of my favorite things is to take a lovely simple melody and drive it into the ground! My melody is unfortunately not lovely and simple but I can sure drive it into the ground!!!
I'm getting the monthly infusion as well as donating urine and extra blood for my 4 year anniversary check which is Friday! PET Scan tomorrow for the check up. Myeloma is active so the ONE hope for chemo reduction is gone. I'll find out about any lesson activity after the scan.
When I think about all that's transpired what's remembered, what's forgotten, what's purely created is a jumbled mess. It's all so weird and so singular an experience, comparisons fail me. The time I didn't think I could do it ranks as a biggie. Standing at kitchen sink 4am, looking out at cold and snow was the rock bottom. After that not sure what happened to keep me going. Something. But here we are. 4yrs in. Keeping on. So many people to Thank. Known and unknown. Cancer takes everyone by surprise. Makes everyone look at the world differently. I'm thankful to reach and everyone who's done ANYTHING to make our lives softer and easier. Incrementalism works.
It's not over. From here on in it's my job. Please donate as you can.
Love and Grace
Sam and Deborah.
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Update 49
Posted by Samuel Robinson Bennett
15 days ago
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Or New Year started with not such good news. This was the 4 year full test to see where we were at. I had thought there was some stability improvements cause I had been feeling more whole. But from Thanksgiving on it's been a rather sudden downhill. It's incredible to me how much pain ones body produces. So life's routines revolves once again around pain. I alternate activities - playing guitar, computer work -with periods of laying flat on my back. It's gotten bad enough that there were days I could barely stand up due to back pain unless I had a solid support. I had not really had problems with Neuropathy, but that to had raised it's head ( which I believe is a side effect of the chemo). And I was hoping chemo could be reduced since it's so may but bone marrow results show MM doesn't want to let go so I have to stay on a high dose. Along with Neuropathy my balance is starting to be affected again. It feels like my body is one step ahead of itself. In order to help deal with the back issues I've start using a back brace. Nothing makes you feel old like adding a brace to your dressing routine.
I had thought maybe closing out this campaign might be a good thing a while back but I have reconsidered.
I know all are pinched but if you can donate to our cause please do.
Shared Pain is Lessened
Shared Joy is Increased
Peace and Grace
Sam & Deborah
Brain on pain
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Update 48
Posted by Samuel Robinson Bennett
1 month ago
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Monday is infusion day. As well as Chemo cycle start day. Last week was productive. Delivered the photos to donate to Huntsman. I am hoping they can be displayed in the BMT infusion room since they've been constant friends for 4 years and have been a large part of keeping MM at Bay, keeping me alive. Thank goodness for folks who do this kind of work. I know emotionally they have y to be pretty damned solid.
I have one more test, an MM MRI, this Friday them a talk with oncologist to see where I am at.
There's a constant level of anxiety about these visits which is wearisome. Waiting to get results back is thought about every day and is pretty one reason I have a constant low level energy drain which in turn affects everything.
Best case scenario would be able to say I'm in remission. So far, in still in treatment with all the g Chemo affects.
Am considering wrapping up this donation drive as I think folks have donated what they can and isee no need to keep hammering with updates requests etc.
You all have helped out greatly, taking the edge of what had been a high stress level and allowing us to relax a bit about our financial issues. I suspect given the nature of Cancer we'll be dealing with these of and on. Seems to be the nature of the biz.
Thanks to all who have donated. It means a lot to us.
Shared Joy is increased!!!!
Incrementalism works for all.
Grace and Peace
Sam and Deborah
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$2,079 of $15,000 goal

Raised by 25 people in 8 months
Created May 10, 2018
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