Elan's Super Hero Squad

$16,525 of $20,000 goal

Raised by 241 people in 42 months
Michele Foutch
on behalf of Michele Foutch
Over the weekend Elan hit his head. On Monday, he wasn't feeling well and having a hard time breathing. Thinking this was just allergies and a possible concussion, Michele took him to the allergy doctor and the pediatrician. The doctors were concerned about him, so they sent him for bloodwork. On Monday evening, the doctor called Michele and Bob and told them they needed to take Elan to Children's Hospital in DC. Since Monday, the family has learned that Elan has Leukemia. They are just starting this fight and they need our help! Right now the doctors are saying  Elan will be at Children's for at least a month.  At this point they are unsure of what they need as a family.  We, their friends, are setting up this page to keep everyone updated and to allow friends and family a way to provide support and words of encouragement!
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Where to begin...Today, 4.5.2016, Elan started his final phase his trial for Tcell ALL Leukemia called Maintenance. Although on paper they say it is his final "cycle/phase" it is just as hard as the first cycle, Induction. Every cycle is a bit different yet the anxiety, side effects, worry and the "big white elephant" never leaves the room (or my heart/mind). I am excited we have made it this far but am scared to be too "happy" as the word "relapse" is a possibility. I am not trying to borrow trouble as some would say however these thoughts will "never" leave my mind but maybe only get more "normal" to hear in my head. We are very fortunate to have such loving family, friends, and community and we are so very blessed to still have our Super Hero Elan here with us. He is such a special person and has many things left to do here on Gods green Earth. I am so honored God choose me to be his mommy. Keep praying for him. He will receive chemo until Aug 11, 2018. For now...for today...I would just like to say F U CANCER, HE IS KICKING YOUR ASS!!!!!!
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Elan completed the Interim Maintenance phase of his trial at the end of October. He did well with this round. This round was every other week going in-patient to Children’s Hospital in DC to receive high rounds of chemo. We went 4 times, every other week, and were there for our stay anywhere from 4-7 days. Elan was very happy when the last round came and we were able to go home. We actually made it home by Halloween and were able to participate in Trick or Treating, in and out of the hospital, which was very nice.
Elan then started a phase of his trial called Delayed Intensification. This cycle started two weeks before Thanksgiving and ended at the beginning of December. We spent the Thanksgiving holiday home together as a family which was nice. Delayed Intensification is a pretty rough round, including losing his hair AGAIN. Elan is staying strong, funny, and understanding which is great. I do believe attitude is 50% the battle, in anything!
We are hoping to start this next phase of the trial the week of Christmas. This means will be holding our breaths he does well and we are not admitted to the hospital over the holidays. I hate he will be down for the count over Christmas BUT one more chemo is one more chemo closer to getting done and curing our son!
Merry Christmas to your family from ours. May all of you have a happy and safe Christmas!
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It's been a while since any update and I apologize. Since our last post, while being flown from Hagerstown Meritus Hospital (then receiving a bill from their helicopter company of $48,000.00-and they DON'T take any insurance). we ended up in Childrens DC Hospital for 3.5 weeks. Elan ended up with acute pancreatic and bronchitis. They kept testing him for bacterial and fungal infections. Nothing ever showed however the antibiotics they gave Elan made him very sick and he reacted to every antibiotic from that point on. Once my husband and I insisted the doctors take him off of two antibiotics his fever slowly came down and he was a different child.
Elan has started his interim-maintenance round of chemo. This consists of high doses of Methodrexate. He had one round and has been delayed twice due to his counts being low. For me this is a bitter sweet. I want him to receive his chemo on schedule to kill the cancer yet I want his body strong enough to handle the treatment. We also found out that after the doctors did genetic testing on his one chemo pill, 6MP, that Elan doesn't have the enzymes to break it down. This means a much lower dose will have to be calculated so that he can get it out of his body and less chances of toxicities arise.
I continue to ask for prayers - that's all we have really all we have ever asked/prayed for. To keep Elan safe and healthy and to have God's hand on him to wash away this horrible disease.
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Heading into a third week in the hospital since Elan got a fever. This is all so very different than having a healthy sick child. Elan got a fever after receiving chemo one day and several hours later we were in the ER in Hagerstown then being flown to childerns in DC. We have been here since then. Because he has no immune system, no counts, and no white blood cells to mount anytime of infection or virus a fever hits and then you just wait. So far during this stay Elan ended up with pancreatitis, pneumonia, and alpha hemolytic strep. He has been on heavy antibotics to fight any bacterial or fungal infection that "might" show up once his WBC start to recover. His ANC as of this morning was 40, which is better than 0 - which it has been for the time we have been here, yet his count must hit 250 before we go home (along with no fever). It is the most frustrating thing ever. I keep thinking, take him to the doctors, get him some meds and back to normal he/we go. That is so not the case with him nor will it be for a long long long time. Not only am I focusing on HIM getting better I miss my daughter terribly as I know it is super hard on her as well as I am to go back to work mid-Aug. I have yet to figure out how in the hell I am going to manage that! Keep positive thoughts coming. We need to get him better so we can get him home!!!!!
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$16,525 of $20,000 goal

Raised by 241 people in 42 months
Created April 22, 2015
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Michael Kuhaneck
22 months ago

Best wishes on enjoyable uneventful holiday season.

Belinda Weaver
37 months ago

My son is a leukemia survivor who now has 3 beautiful daughters of his own. I found it helpful during the 3 years of treatment to hear success stories. I know Elan will be a success story as well. Praying for his recovery and your strength.

37 months ago
The Mayhews
38 months ago

Continued prayers for Elan's health and strength for your family.

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