Elan's Super Hero Squad
Elan then started a phase of his trial called Delayed Intensification. This cycle started two weeks before Thanksgiving and ended at the beginning of December. We spent the Thanksgiving holiday home together as a family which was nice. Delayed Intensification is a pretty rough round, including losing his hair AGAIN. Elan is staying strong, funny, and understanding which is great. I do believe attitude is 50% the battle, in anything!
We are hoping to start this next phase of the trial the week of Christmas. This means will be holding our breaths he does well and we are not admitted to the hospital over the holidays. I hate he will be down for the count over Christmas BUT one more chemo is one more chemo closer to getting done and curing our son!
Merry Christmas to your family from ours. May all of you have a happy and safe Christmas!
Elan has started his interim-maintenance round of chemo. This consists of high doses of Methodrexate. He had one round and has been delayed twice due to his counts being low. For me this is a bitter sweet. I want him to receive his chemo on schedule to kill the cancer yet I want his body strong enough to handle the treatment. We also found out that after the doctors did genetic testing on his one chemo pill, 6MP, that Elan doesn't have the enzymes to break it down. This means a much lower dose will have to be calculated so that he can get it out of his body and less chances of toxicities arise.
I continue to ask for prayers - that's all we have really all we have ever asked/prayed for. To keep Elan safe and healthy and to have God's hand on him to wash away this horrible disease.