The Scott's fight against MLD
Donation protected
Hi, my name is Leone Lynn, to raise the much-needed funds for the Scott's family fight against the incurable brain disease MLD, I am going to be taking to the skies for a tandem parachute jump with UK Parachuting on August 13th 2016.
Please read attached links to find out more about MLD Metachromatic Leukodystrophy.
The Family: Leah and Shaun Scott
Paige age 3 , Phelix and Oscar 11 months old.
Paige was diagnosed with MLD when Leah was pregnant.
When the boys were 6 weeks old Leah and Shaun were told both the boys had MLD.
The life expectancy is 3-5 years of age maximum.
Both boys were offered pioneering gene therapy in Milan.
However for Oscar, it's gone horrific and he's suffered liver kidney and lung trauma as a result of the toxic level of chemo given.
This then resulted in bone marrow failure leading to his original diseased bone marrow being put back in.
At this stage, they have no idea if it's worked for either of the boys and the family are currently trying to get them back to Great Ormond Street Hospital.
Please visit the Scott's personal fundraising page for more details The Scott's personal page .
Please take the time to read through this devasting story to begin to understand the heartbreaking situation this family have gone through and continue to face.
Please help me to raise essential funds to support this family. All donations, no matter how small make a difference and will be appreciated. Thank you!
Please read attached links to find out more about MLD Metachromatic Leukodystrophy.
The Family: Leah and Shaun Scott
Paige age 3 , Phelix and Oscar 11 months old.
Paige was diagnosed with MLD when Leah was pregnant.
When the boys were 6 weeks old Leah and Shaun were told both the boys had MLD.
The life expectancy is 3-5 years of age maximum.
Both boys were offered pioneering gene therapy in Milan.
However for Oscar, it's gone horrific and he's suffered liver kidney and lung trauma as a result of the toxic level of chemo given.
This then resulted in bone marrow failure leading to his original diseased bone marrow being put back in.
At this stage, they have no idea if it's worked for either of the boys and the family are currently trying to get them back to Great Ormond Street Hospital.
Please visit the Scott's personal fundraising page for more details The Scott's personal page .
Please take the time to read through this devasting story to begin to understand the heartbreaking situation this family have gone through and continue to face.
Please help me to raise essential funds to support this family. All donations, no matter how small make a difference and will be appreciated. Thank you!
Organizer
Corinne Lynn
Organizer
