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Simone's medical and travel fund!

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My name is Burley Brewton and we live in Pembroke Pines,Fl.I am rasing  money for my daughter Simone Brewton. Simone was born with a rare syndrome called pseudo-Obstruction syndrome. This is a false blockage in the intestine which stopped the intestine from moving. This lead us to a six organ transplant. Now we are fighting to get to hospitals that has the capibilities to find access to her viens to at least be considered for a retransplant. We are seeking innovative techniques from doctors who will take on this challenge!
We are seeking funds for travel,a guardian who make these travels with her,food and board(lodging). We are in contact with UCLA,Cleveland Clinic  and Mount Sinai in New York!I am contacting other hospitals just in case we are unsucessful with any hospital! Simone is on medicade in the state of Florida. We seek treatment out of the state of Florida! We don't have insurance out of the state. I could put Simone on my insurance but, since I will have to take a leave,I would be out of work.  I had a brain tumor in Febuary. So,I used up all if my family leave act time. Right now ,a small bowel transplant at Cleveland Clinic in Cleveland is 790,000.00. Thats not the hospital stay. At UCLA,it is well over 1.5 million and over! Also,most of the hosptals require a family member to be at the hospital for this process. I will have to take a leave of absence without pay! The process is from six months to a year! Simone is on her last vein. It is a hippatic line through the liver!These funds are going to be used for medical cost. That's why the goal is so large. We are checking every possible way to get the funds to get to our goal. We just Had Janet Jackson put Simone's cause on Instagram! This means a lot to our family and me. Just like any father,I would like for my daughter to be here! We are trusting and believing in the Lord for healing and miracles! We would like for the Lord to use the hands of man to do his mighty work! Walk with us as the Lord orders our steps!
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Donations 

  • Herbert Jean
    • $30 
    • 6 yrs
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Organizer

Burley Brewton
Organizer
Hollywood, FL

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