Simone's Medical Treatment

$11,750 of $10,000 goal

Raised by 109 people in 5 months
Created December 21, 2018
Below is Simone's story, as provided by her family. Please join me in supporting her journey!!
*****
Simone Edria Ryan was born at 29 weeks, 11 weeks premature. Simone sustained horrific birth injuries resulting in a bilateral brachial plexus injury (Erb’s Palsy). Due to her traumatic birth, significant hypoxia resulted in kidney and liver failure, as well as suspected NEC (necrotizing endocholitis). Simone was in the neonatal ICU for 3 months. At 4 months Simone underwent nerve graft surgery on her left neck to repair a ruptured nerve where C5 and C6 meet, which is responsible for all arm movement. Two weeks after Simone’s surgery she was diagnosed as being deaf, and now wears hearing aids.

Because of the birth trauma Simone sustained, her body has had to spend a lengthy amount of time healing itself. For her age, she is very small, coming in currently at a whopping 17 pounds at 18 months old. Simone has severe global developmental delays in all areas. She has undergone extensive treatment with physical therapy, occupational therapy, hydrotherapy, as well as osteopathic care and acupuncture.

In September of this year Simone started ABM (Anat Baniel Method) which is a neuro-movement therapy based on brain plasticity and the brains ability to heal itself. In Simone’s first block of treatment she went from being unable to roll side to side to being able to do so. She became, overall, more aware of her body and its ability to move, which she lacked before. Simones left arm improved dramatically and began to bend at the elbow, which she had never been able to do since birth. Simone did not vocalize prior to this treatment and now babbles and vocalizes regularly.

This ABM treatment has been the most effective therapy we have found, resulting in massive changes since starting. This therapy is extremely expensive and we’re hoping people might want to contribute to this cause. This treatment is our best hope of getting Simone to be as independent as possible with hopes on one day helping Simone to sit up independently, crawl, and with any luck walk one day. We would be forever grateful for any contribution you can give to Simone’s cause in this journey.

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$11,750 of $10,000 goal

Raised by 109 people in 5 months
Created December 21, 2018
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MA
$100
Mike and Lori Altabet
3 months ago
BB
$200
Brad Budinger
4 months ago
JL
$100
James Lung
4 months ago
SM
$100
Sergio Morariu
4 months ago
RD
$200
Robert Delbo
4 months ago
BS
$50
Barbara Schumacher
4 months ago
NF
$100
Nathan Fagundes
4 months ago
CB
$100
Charles Burke
4 months ago
GM
$100
Geoff Marshall
4 months ago
AS
$100
Andrew Swartzell
4 months ago
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