Sickle Cell Awareness and testing

$10,000 goal

Campaign created 11 months ago
Created June 5, 2018
Donna McCurry
Uganda Sickle Cell Rescue Foundation (USCRF) was established as a not- for profit Organization with the purpose of having  communities aware of sickle cell disease and its social connotations;  improving the economic empowerment of people living and affected by sickle cell disease and minimizing stigmatization in Uganda.

Sharifu Tusuubira was born with sickle cell; his father divorced his mother as soon he discovered that he had been diagnosed with the disease.  Growing up he often saw his mother cry because of the stigma that she was facing from the community. As a student at Makerere University, Sharifu experienced a lot of stigma and discrimination. On one instance, he was rejected at intimate level by a girl on grounds that he had sickle cell disease. This motivated Sharifu to join the fight against sickle cell in not only in the community he lived in but in the country at large. 

Sharifu Tusuubira  joined the then Uganda American Sickle Cell Rescue Fund  as a volunteer ahead of the first sickle cell conference in 2013 .  This conference  was organised by Mr and Mrs Mulumba with support from Dr Bulaimu Muwanga Kibirige (BMK Group). After this conference the idea to rebrand to Uganda Sickle Cell Rescue Foundation was conceived.   

Uganda Sickle Cell Rescue Foundation was later born with Dr Bulaimu Muwanga Kibirige as the Chairman Board and Sharifu Tusuubira as the Executive Director.   These were later joined by Mr. Nsubuga Erostus and Dr. Sikander Lalani. The Technical team is comprised of Prof. Christopher Ndugwa a Sickle Cell expert, Dr Lawrence Kaggwa Senior Consultant surgeon (RIP) and Sister Annet Namirembe the Matron of Nsambya Hospital. These constitute part of the  Executive Board of Directors.  The Non Executive Board is comprised of Mrs Winnfred Lalani, Hajj Haruna Kalule Kibirige MD Hotel Africana, Ms Sarah Kibirige  Senior Marketing consultant,  Mr Abdallah Mulumba Nurse Practioner , Mr Benard Sembatya a Sickle Cell parent, Hajj Hassan Nakabaale.    Our advisory board is chaired Ms Donna McCurry Family Nurse Practitioner and sickle cell provider at Truman Medical Centers.

It wasn’t too many years ago where Sickle Cell was regarded as a death sentence. Families would often hide their sick for fear of being labeled cursed and isolated from social functions. When known that a family had a person living with Sickle Cell, intimate relationships with any member of that family were often shunned.  These families would also at times fear to take these children to schools or hospitals, these children would grow to face the overwhelming health effects which include physical disability (in many of the communities Sickle Cell is synonymous with lameness), blindness, stroke etc.   Now all that is changing, and the Uganda Sickle Cell Rescue Foundation is playing a big part in the transformation.

Instead of seeing people living with sickle cell disease living unmeaningful lives, you might see families openly talking about sickle cell disease and encouraging their sick to participate in community activities.  Until July 2013, the scene described above would not have been imaginable in Uganda communities, however with the support from local companies Hotel Africana, AGT Group, Roofings Group and other well-wishers; the Uganda Sickle Cell Rescue Foundation has championed the fight against sickle cell disease making sure that it is no longer a neglected condition. 

Through this effort 10,437 people have been screened for sickle cell disease and over 50,968 people have benefitted from our direct services. We have set up 18 support networks across the country, registered 10,123 people affected by sickle cell and building on;  Above all we have provided medication to 8105 people across the Uganda. Uganda Sickle Cell Rescue Foundation now wishes to strengthen its awareness and testing program to benefit more Ugandans while reducing the number of children born with the disease.

Donate to enable the Uganda Sickle Cell Rescue Foundation;

1.      Every  $1 , will provide folic acid for a person living with sickle cell enough to take them for a month

2.      Every $2 , will provide a sickle cell test

3.      Every $0.26 , will provide 1 capsule of  Hydrourea (500mg) to our sickle cell warriors

4.      Every $5, will provide basic pain killers for use when our sickle cell warriors are in pain.

5.      Every $50, will support the establishment of a sickle cell club in a rural school to champion behavior change against associated stigma and discrimination
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$10,000 goal

Campaign created 11 months ago
Created June 5, 2018
Donna McCurry
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