My Wife's Medical Care & Recovery

$16,935 of $35k goal

Raised by 158 people in 12 months
Karl Larson
on behalf of Rochelle Larson
 BOULDER CITY, NV
Let's help Shelly feel like a superhero again. If anyone has ever met my wife, you know how kind and selfless she is. She's always the first to help those in need no matter what she's going through or how much pain she's in. She has been struggling to get in remission for the past 10 years battling crohn's/colitis with no luck. Due to this and recent revelation of cancer our journey has brought us to the Cleveland Clinic in Ohio. Through your donations it will help us get the surgeries and doctors needed to finally give her relief. Shelly is  a tender hearted one of a kind person who enjoys gaming, cosplaying, archery, and animals. As her husband I come before our amazing community of family & friends to ask for monetary assistance to get her the best care we can. Any dontaion is welcome no matter how small, so we can all have this beautufil person in our lives for years to come. Thank you everyone for all that you've done. We have a hard road ahead of us but there isnt anything we can't get through with God & all of you supporting us.
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Update 14
Posted by Karl Larson
3 months ago
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House Larson, sorry been watching too much Crown on Netflix got some pretty discouraging news yesterday from our surgeon who performed the procedure on Nov. 4 and took biopsies. They have come back high grade dysplasia which means rectal cancer. We have informed our Cleveland clinic team of this newest development and will get an answer at the end of this week or beginning of next. The biopsies are being sent to their lab as well to be looked at and reviewed. This sucks, there is no any other way to put it. Surgery will becoming in the next weeks and my surgeon here has called for radiation to be started as soon as I wakeup from surgery if CC is on board. Chemo will be discussed but radiation treatment for sure. So that's basically where we are at right now. Due to it being cancer this also questions whether I will get a J-pouch. Another blow cause I'm no fan of my current situation. If CC decides that a J-pouch won't be in my future than I will remain in Vegas and have my CC trained surgeon here remove my rectum with Cleveland clinics ok of course. Lots of up in the air right now as to the next move in my care. I'll be informing my oncologist here who is a love of what my surgeon found. This past month I have been in a lot of pain, joint, back, bum, tummy. So much so I'm losing quite a bit of sleep cause I just hurt. I knew something was up just like anyone that knows their body and just doesn't feel well. My energy is low no matter the diet change & my working out which I have incorporated these past months regardless of my pain level to be as fit as I can for this surgery which will be the biggest. On the up side my weight is up, although I'm down 7lbs from my diet but no more of that since all my weight will be needed to see me through recovery. I'm healthier than I was going into the first surgery and I know what is coming or at least have an idea. So that's a plus! I'm not thrilled about CC in the winter but it will be interesting I guess lol! We ask that you please keep us in your prayers at this time and if you can share this that would be appreciated as well. This wasn't planned to happen but that's what faith is for. To see us through what is unplanned and I know God has my back regardless of what is to come. It might suck a lot. It's going to hurt, there are going to be bad days. Very sick days, homesick days but he has always seen me through the worst and he gave me the best, funniest, most courageous husband I could have ever asked for. I have never see my K waiver in a time of stress, breakdown or lose heart in a time of crisis. His partnership and unconditional love I am thankful for above all else. Once we have the plan back from CC and surgery dates I'll be posting those. We have reset a new financial goal for this surgery. My mother & step dad won't be able to accompany us this time since she will be having surgery herself. I know it kills my mother to not be able to go so please keep her in prayer as well. I'll have my dad and husband. A girl can't ask for a better, stronger team than those two! Love you guys and thank you for sharing and walking this scary, uncertain journey with us<3

-Team Larson
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Update 13
Posted by Karl Larson
4 months ago
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We saw my surgeon here in Vegas, Dr. Zheng who is so friendly and wonderful! He trained under Dr. Fazio and Dr. Remzi at the Cleveland Clinic. He told me since it looks like I have Crohns colitis that I'll need to have my second surgery at the Cleveland Clinic :sigh:. We were hoping to do it at home since it's so expensive to do it in Cleveland. Our housing costs alone were over 10,000 for the first surgery and that was just housing. He said that only CC does pouches for Crohns colitis patients because it can be risky and tricky. One thing weighing on us is he also informed me that once I have my internal pouch my chances of conceiving are lowered by 14 %. Usually people who have children have them after the surgery I just had but since my rectum needs to be removed I might not be able to wait. We figure if we are meant to have kids god will bless us with them. Dr. Zheng will be performing exploratory surgery Nov. 2nd and going to take biopsies of my rectum to keep an eye on it. We are worried I might bleed so please keep it in prayer. I have to go in for this procedure every 6 months to check on it until I have it removed. We would like to get the second surgery done before the end of the year since I have meet my deductible for my insurance but also need to save up more money etc. So I'll be back in Cleveland, we are thinking the first week of December as a possibility. It will only be Karl, myself and my father this time because my mother is going in for a hysterectomy. They think she might have cancer in her uterus & than knee surgery. So please keep her in prayer as well <3!! This surgery will be the hardest and most painful on me. They will be removing my rectum, installing the J-pouch. They will be attaching my large intestine to the pouch so I will have a loop ostomy instead of an end one. I will have that for 2 months and heal. Than I will have the 3rd done here where they hook the rest up and sew up my ostomy. Since we are having to go back to Cleveland we will have to ask that you please share our story and gofundme page. We have reset an amount. We hope to be there only 2 weeks and home. We want no complications this time god willing! Thank you all for your continued support, love, and prayers. Also for being on this scary journey with me! I appreciate every single one of you!! I'll update after my procedure on Nov. 2nd and when we have a concrete date for Cleveland. Kisses!!
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Update 12
Posted by Karl Larson
5 months ago
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First off I just want to thank each and everyone of you that have been on this journey with me❤️ and for anyone who has donated or shared! Thank you so much, because of those donations I was able to stay for the unexpected complications that happened which shock all of us to our core. So now for the update! Dun...Dun...Dun.... Karl & I flew to Cleveland in June to have biopsies taken from my bum to see if cancer was present. The reason for this was the pathology came back as rectal cancer not just colon cancer. Dr. Remzi my surgeon doesn't agree with that report. My case was also presented before the board at Cleveland since it's a difficult case to see what our next move would be, aka radiation or chemotherapy. After they reviewed the decided it would hurt me more to do either and what was left of my rectum would be burned away with the radiation treatment. Sooo, back to June. We flew there and he took zero biopsies. He said the reason being is it was too high of a risk to cause more bleeding like before and to him it didn't look cancerous. This didn't exactly make my Gastro in Cleveland very happy and to be honest that's the reason we went. Dr. Remzi is a good dr and he knows what things are by looking but still once again that was the reason for the trip. I met with a awesome Gastro and rheumatologist while I was there to address other auto immune diseases I have such as AS and vasculitis which have been unrelenting since the colon was removed. My Gastro there told me all they can do at this point is keep me comfortable, since you cannot have steroids or biologics months before another surgery. I'm also never to take NSAIDs again in my life which are ibuprofen, aspirin etc. That leaves me with Tylenol >_< and painkillers which neither work especially when I work lol. On the bad days the PK are needed but if anyone knows me I hate taking stuff so I do a lot of essential oils, CBD, trying to be active but it hurts. Everyday I wake up feeling like I have been hit by a bus and pretty much how I fall asleep. Chronic pain is draining but any person dealing with it will tell you that. The past few months I have also developed mouth ulcers that they are saying are a side effect of my autoimmune diseases. The biggest and most difficult choice Karl and I have before us right now is my surgeon who did my first surgery Dr. Remzi and who was going to do the next 2 has left to NYU this month and is no longer at the clinic. We have decided that New York is just not feasible with money or having the people we would need to help since the 2nd surgery is going to be the hardest. I shudder every time I think that just because of how hard and bad the first one went. So our choices are go with the other surgeons at the clinic which my Gastro & other specialist are at or have it done here where my home medical team is it. We meet with a surgeon here this Tuesday that trained under Dr. Fazio at the Cleveland clinic whom is who Dr. Remzi trained under. Please pray that God gives us clarity on what to do. We would love to have the surgery here and have family & friends plus we wouldn't be paying for lodging expenses which is very expensive but at the same time I need a good surgeon since I'm complicated. That's where we are right now. My Gastro & rheumatologist in Cleveland ordered X-rays and blood work to come up with the right diagnosis of the other things I have going on. They also want me to see a vasculitis specialist in Utah when I'm able. A lot of choices will need to be made very soon especially since I do have a mass still on my rectum that isn't good. So please keep us in prayer that God gives us clarity. The next surgery I'll be getting done that they want to do at the end of October, will be removal of my rectum/the mass, they will sew up my current Ostomy and give me another one I will have for 3 months than more surgery. I will also have my J-pouch inserted and attached this surgery. So thank you all again for being on this journey with me and I appreciate the sharing, the messages, just everything! Love you all bunches and god bless!!!
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Update 11
Posted by Karl Larson
10 months ago
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Update:11, This update isn't exactly a cheery one but it's not a terrible one either.My motto this week and Shellyism“Winning never feels better when you know first what it feels like to lose”This past week has been a hard one, physically and emotionally.I came down with a upper respiratory infection andwent in for emergency iron last week.Both my Iron and hemoglobin were at an 8.I have had some rectal bleeding again which isn't good & is very painful.We are hoping it's just because my body is under stress due to the upper respiratory infection.All around I just feel crappy, but at least I'm home feeling crappy so I can't complain much!I had my first Bag-explosion Friday night.I knew accidents were to come and there is a learning curve with an ileostomy.I woke up with quite a mess one could say.My mom was with me that night since Karl had work and she was a tremendous help!Thank God for mommas!I kept calm and just worked through my steps until everything was cleaned up and good as new.I will be seeing a urologist on May 2nd to address the pain & urgency I'm having with peeing.My oncologist thinks my bladder was injured in Cleveland.I had 6 catheters over 2 weeks put in and taken out.Praying it's nothing serious and can be resolved because no one likes to pee their pants.Babies aren't even a fan of it!I have had a lot of swelling & water retention from the steroids.It's no joke, very uncomfortable & painful.The swelling pulls on my scar tissue and incision marks.I received a call from Dr. Remzi’s nurse last week letting me know that Dr. Remzi wanted me back in Cleveland on June 20 for a checkup appointment than back in the OR June 21st to re-access my bum.He wants to see how it's doing, and take biopsies.This will give him a better time frame to work with for my second surgery which he wants to do in September.What girl doesn't want to spend their birthday week or day in Cleveland?Dr. Remzi has been working closely with my oncologist here to decide a plan of action regarding chemo and radiation.I do know radiation is for sure off the table because it will burn through whatever rectal tissue I have left which is NOT good!Chemo most likely will happen and the procedure on June 21st will give us a better idea of what kind of chemo & the duration.My case is being brought before a special committee Monday in Cleveland where they take 10 unusual/difficult cases and come up with the best plan of treatment.My ears will be burning for sure!The elephant in my proverbial health room right now is rectal cancer.My results are I had stage 2 colon cancer,very good news!None of my lymph nodes were affected.That's a huge praise God!My cancer did penetrate all 3 walls of my colon so this surgery was literally a life saver.My oncologist is waiting on the committee’s input so that we can make the best possible educated decision for a bad situation.Blessed to have the doctors I do and their passion to help me get through all of this.My awesome oncologist cracked me up at our last visit. She said, did you ask if you could punch your colon?You bet I did!They told me however that it was being dissected and I replied with good, you cut that B!My oncologist laughed and said your colon was a massive B,it totally had it coming.Dr. Holdridge also told me I'm a fighter. Her opening words were I read your review & you didn't die!I shot her 2 thumbs up!Whatever chemo might come my way, her team & I will get through it.It won't be easy,I will get sick but she knows how tough I am.Her team will pick me up and pull me through if I get tired and weak.I see 2 new gastros in the next two weeks.Please pray God gives us clarity on which one to add to Team Larson and take over rectum watch as I call it.This past week we had our first small group that God had put on our hearts to form once we got back home.It was good to be with our close friends and talk about our current walks with God.Now that the physical update is out of the way on to the juicy emotional part.This week has been hard my friends.When your body doesn't feel well your mind hurts to.As positive a person I am it has been trying at moments.I'm letting you all know this to see I'm human.I hurt,I fall,and I cry.The biggest and most important thing when you fall isn't how fast you get back up.I think God wants us to sit there and look around sometimes.To experience how much a fall hurts.That way we can be thankful for just standing.Falls aren't always things we can control either or sins we commit.We just trip,fall and there isn't anything we can do about it.We can grab at everything around us but it's still going to happen.It’s still going to hurt.If you don't bounce right back be EASY on yourself, falls hurt.We are only human.This is easier said than done. I'm harder on me than anyone else can be.However don’t start throwing yourself a pity party or get comfortable while on the ground.NOW,I'm not saying you can’t say this sucks,this hurts,I'm not happy or even ask the scary word WHY?I'm saying don't start making excuses for why you are a victim of circumstance or are owed anything.That's where you can start getting into trouble mentallyLife is hard my friends, it's not fair and it can really hurt.It's also incredibly beautiful.You can’t have that precious beauty without the pain.As negative as an experience as I could make this & I know no one would fault me if I did, I refuse to!I mean I had colon cancer, possible rectal cancer, this & that but I won't let this steal my smile.I want this time to be a shining light to myself & others.I want to look back on this one day & say I overcame!That this journey not only served as a reminder of god’s love in my life, my ability to survive but it's also a reminder that whatever YOU are going through YOU can overcome to.We aren't alone in pain, grief, or sorrow.God is with me and he is with you!If you ever need a friend or someone that can relate I'm here!I will listen,I'll pray,I'll most likely make a bad joke but if you need a friend or someone that can relate please throw me a message,text,smoke signal,whatever.Like I said I refuse to let this negative, painful experience be just that!On that note to all my wonderful prayer warriors out there that would like to know what you can pray for,please pray for: embarrassing but still kind of funny bladder issues to be resolved, pain pain go away, rectal bleeding to just stop already, overall healing in my body, my body image (having a bag & water retention aren't as sexy as they sound), peace (roid rage is real my friends), my friends and family.Lastly I have a request that you pray for a boy from my church named Chris Shannon.He was hit by a car last month and is still not doing well.If you could please keep him and his family in prayer,I would really appreciate it.Our church,Life Baptist is having a fundraiser for him on May 21st if any of you would like to attend. To my super creative people!We are looking to do a fundraiser sometime soon since staying in Cleveland for almost a month and ICU weren't exactly in our medical budget as is having to fly back for this procedure in June. If any of you have some great fundraising ideas please send them our way.To my rock & as our niece calls him Auntie Shelly's knight,you have kept me sane through all this,you’re my treasure.Thank you all so much!I hope each one of you is blessed because you all bless me,Kisses! Shelly
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Read a Previous Update
Marla Hromada
11 months ago

Thank you to Shelly’s friend Jackie for this video about Shelly: https://www.youtube.com/watch?v=xorDC77MX5k

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Randy Mitchell
11 months ago

Carl and Shelly I am holding you close to my heart.

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Cynthia Schafer
12 months ago

You are not alone, God is always with both of you! I'm sending many prayers, hugs& love, Cindi Schafer

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$16,935 of $35k goal

Raised by 158 people in 12 months
Created February 25, 2016
Karl Larson  
on behalf of Rochelle Larson
MC
$500
Mitch Cohan
2 months ago

"Life is not easy for any of us. But what of that? We must have perseverance and above all confidence in ourselves. We must believe that we are gifted for something, and that this thing, at whatever cost, must be attained.".... Persevere little Buttercup!!!

$1,000
Anonymous
2 months ago
AS
$200
Arleen and Craig Sheeler
2 months ago

Always praying

$140
Anonymous
2 months ago
JL
$500
John Larson
2 months ago

I so sorry to hear about the insurance issue. This is not something you need to be dealing with. Your family and friends are behind you both. Keep the faith and blessing to you both.

$100
Sybille Ahlstrom
3 months ago

Shelly, my heart goes out to you, you are the bravest person I have ever met and I am praying for you every day! God bless you and Karl, I love you both

$25
Kristen Byers
3 months ago

Sending good thoughts, love & hugs. You are A superhero and will beat this. Thank you for being in my life.

$1,000
Rochelle/Bob Sutherland
3 months ago

Shelly, we love you so much! Uncle Bob, Aunt Ro, Evan, and Lexi

$100
Sybille Ahlstrom
4 months ago

Shelly and Karl, I am praying for you every day. Love you guys

$100
Sarah Brechner
4 months ago
Marla Hromada
11 months ago

Thank you to Shelly’s friend Jackie for this video about Shelly: https://www.youtube.com/watch?v=xorDC77MX5k

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Randy Mitchell
11 months ago

Carl and Shelly I am holding you close to my heart.

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Cynthia Schafer
12 months ago

You are not alone, God is always with both of you! I'm sending many prayers, hugs& love, Cindi Schafer

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