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Kidney Transplant-Roderick Shaun Thomas ‘Troopah’

$2,910 of $5,000 goal

Raised by 37 people in 4 months
Created February 17, 2019
Fundraising team
My name is Carla. My husband of 16 years, Roderick ‘Shaun’ Thomas AKA Troopah, was diagnosed with hereditary Chronic Kidney Disease in 2012. This changed the lives of us and our four children. His immune system has been compromised and he is more susceptible to viruses and infections. His health has taken a turn for the worse in the last 9 months. On top of his declining physical health, Shaun also has emotional struggles, such as depression & anxiety.
Our children see their dad suffering every day. Our youngest daughter knows nothing but her daddy being sick.
April 1, 2017, Shaun started dialysis. It is a painful therapy that leaves him exhausted. Recovery time is mere hours before the next treatment. Since being on dialysis Shaun has lost 90 lbs from atrophy, which is muscle wasting.
In May of 2018 Shaun had Parathyroid surgery. Three weeks later, we found out that he had Hungry Bone Disease. He subsequently has developed multiple tiny fractures in his collarbone and is in Physical Therapy.
July 1, 2018, I received a call from Shaun’s Dialysis Center that he was unconscious after treatment. Upon my arrival at the hospital, I was informed that he was unresponsive to stimulation and pain. He remained unresponsive for the next 16 hours. It was determined that he had Dialysis Disequilibrium, which can be caused by pulling to much fluid off, or too rapidly during treatment. The result is swelling of the brain. Shaun now deals with impaired cognitive function due to small lesions on his brain. Shaun continues to put on a brave face for everyone. I admire his strength and perseverance.
His kidney doctors have recently referred him to ST. Louis, MO ..FOR A KIDNEY TRANSPLANT! His time on the waiting list will date retroactively to his first day of dialysis.
To get Shaun to St. Louis, it’s about a 7 hour drive one way for us. We need assistance with travel, lodging, food, & childcare expenses.
Thank you for reading our story. Our family will be eternally grateful for any help. Please share and donate, if you are able. I will update Shaun’s progress of this long awaited journey. We know that better days are ahead & remain positive that he will live a fulfilling life, and be here to watch our precious children grow up.
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Just a quick update on Shauns Genetic Testing from St. Louis. We are, unfortunately, still waiting on the results of it all. Our Transplant Nurse thought his tests were being processed at Mayo Clinic, only to find out they’re at University of Iowa. Results are pending for another 3-4 months. Shaun will not lose time on the waiting list during this period. We continue to wait, as patiently as we can. Thank you all for the continued donations, prayers,& well wishes for our family. I will update again as soon as we know something.
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We are home from our trip to St Louis for Shauns Kidney Transplant Evaluation Testing. Now we play the waiting game. We aren’t expecting to hear from them regarding him getting on the Transplant Waiting List officially for 4-6 weeks. His place on the list will date back too his first day of dialysis (April 1,2017). Their list is 2-4 years. A few other factors play into this, & there are some things in his favor for him to possibly be Priority Transplant, will know more on that soon. They ended up needing to run some Genetic Testing on him, which was unexpected. It wont determine him being placed on the list, but there will be more steps for him to take depending on the results of that test. Again, we thank everyone for the prayers, well wishes,& donations (we couldn’t have even made the trip without your help). Please continue to cheer for Shaun! He needs all the support he can get! I will update as soon as we hear from St. Louis. #akidneyforShaun #TeamThomas #journeyofalifetime Thank you ALL for the generous donations, fervent prayers,& genuine well wishes. Our family is eternally grateful for the support. We couldn’t have done this trip without you all. We aren’t sure when our next trip will be. Please keep sharing our story & donate if you are able! We appreciate it so much!
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**Update** we received the call today for Shaun to go to St. Louis for his Kidney Transplant Evaluation Testing!! We will be there April 24-27. We are very excited! Thank you for all of the donations, prayers, & well wishes thus far. Our family is very grateful for the support shown.
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$2,910 of $5,000 goal

Raised by 37 people in 4 months
Created February 17, 2019
Fundraising team
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MJ
$50
Michael Joiner
14 days ago
TM
$10
Tijah Miner
2 months ago
$35
Anonymous
2 months ago
$20
Cheryl Primm
2 months ago
LS
$300
Lula Martin Sanderson
2 months ago
VC
$25
Venus Crawford
2 months ago
$50
Anonymous
2 months ago
JH
$25
James Hillabrand
2 months ago
JM
$25
Josh Madden
2 months ago
$25
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2 months ago
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