Cure Duchenne Muscular Dystrophy
Tax deductible
My 8 year old son Nathan has Duchenne Muscular Dystrophy. Since being diagnosed in 2013, he has lost his ability to walk and is dependent on a wheelchair. Most recently, a swallow study revealed his throat muscles have weakened, making it more difficult for him to swallow solid foods.
I am very thankful to work for Linkedin, an organization that is passionate about giving back and who encourages their employees to support the causes they care most about.
Now through Dec. 2, every dollar donated through Linkedin Gives will be TRIPLED.
My goal is to raise $500 with the proceeds going to Parent Project Muscular Dystrophy. PPMD's mission to raise awareness and fund research to find a cure for Duchenne.
You can help by making a donation or learning more about DMD by visiting www.parentprojectmd.org
Thank you for not only helping find a cure for my son Nathan, but for ALL boys affected by this disease.
About Duchenne
Duchenne muscular dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births (about 20,000 new cases each year worldwide). Because the Duchenne gene is found on the X-chromosome, it primarily affects boys; however, it occurs across all races and cultures.
Duchenne results in progressive loss of strength and is caused by a mutation in the gene that encodes for dystrophin. Because dystrophin is absent, the muscle cells are easily damaged. The progressive muscle weakness leads to serious medical problems, particularly issues relating to the heart and lungs. Young men with Duchenne typically live into their late twenties.
Becker muscular dystrophy, which is less severe than Duchenne, occurs when dystrophin is manufactured, but not in the normal form or amount. Because of this disparity in the severity of the different forms of these disorders, we will refer primarily to Duchenne throughout this site.
Duchenne can be passed from parent to child, but approximately 35% of cases occur because of a random spontaneous mutation. In other words, it can affect anyone. Although there are medical treatments that may help slow its progression, there is currently no cure for Duchenne.
I am very thankful to work for Linkedin, an organization that is passionate about giving back and who encourages their employees to support the causes they care most about.
Now through Dec. 2, every dollar donated through Linkedin Gives will be TRIPLED.
My goal is to raise $500 with the proceeds going to Parent Project Muscular Dystrophy. PPMD's mission to raise awareness and fund research to find a cure for Duchenne.
You can help by making a donation or learning more about DMD by visiting www.parentprojectmd.org
Thank you for not only helping find a cure for my son Nathan, but for ALL boys affected by this disease.
About Duchenne
Duchenne muscular dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births (about 20,000 new cases each year worldwide). Because the Duchenne gene is found on the X-chromosome, it primarily affects boys; however, it occurs across all races and cultures.
Duchenne results in progressive loss of strength and is caused by a mutation in the gene that encodes for dystrophin. Because dystrophin is absent, the muscle cells are easily damaged. The progressive muscle weakness leads to serious medical problems, particularly issues relating to the heart and lungs. Young men with Duchenne typically live into their late twenties.
Becker muscular dystrophy, which is less severe than Duchenne, occurs when dystrophin is manufactured, but not in the normal form or amount. Because of this disparity in the severity of the different forms of these disorders, we will refer primarily to Duchenne throughout this site.
Duchenne can be passed from parent to child, but approximately 35% of cases occur because of a random spontaneous mutation. In other words, it can affect anyone. Although there are medical treatments that may help slow its progression, there is currently no cure for Duchenne.
Organizer
Mark Baquiran
Organizer
Cupertino, CA
The Parent Project for Muscular Dystrophy Research Inc.
Registered nonprofit
Donations are typically 100% tax deductible in the US.
