Running for RRPF
I'm the type of person who wins a designer coat from an online contest where the winner was picked at random, and the odds of winning is 1 in 100,000. (True story.)
I also have not-so-good luck.
I'm the type of person who gets an extremely rare and disease without a cure.
You win some, you lose some.
Odds aside, I'm determined not to ever let my disease win. For the past 7 or so years I've struggled with RRP. It's caused by a viral infection my immune system hasn't beat yet.
I have an absolutely incredible doctor, who I admire and trust immensely. I've undergone dozens of surgeries, various treatments, and feel confident we're doing all we can to beat this thing.
That said, I'm creating this page to bring awareness to RRP so we can find a cure. The disease can be mentally draining, and The Recurrent Respiratory Papillomatosis Foundation gives me hope.
RRPF ( http://www.rrpf.org/about.html)
was created to provide patient/family support, serve as an information resource for patients and practitioners, promote public awareness, and aid in the prevention, cure and treatment of RRP by encouraging and participating in promising RRP research studies.
While at times I struggle physically, my voice is something no one- not even this disease- can ever take from me.
On May 20th, 2017 I'll be running the Brooklyn Half Marathon. I'd like to use the Brooklyn Half as my way of bringing awareness to both RRP and the RRPF.
Any level of donation you can make would be much appreciated, and (of course!) 100% of them go directly to the foundation. And please, absolutely feel free to share with friends, family (uber drivers?), whomever! #RunningforRRP
Thank you for taking the time to read this, myself and the RRP community are truly grateful!
Thank each and every one of you so incredibly much. Unfortunately, I wasn't able to make the race today
as a stomach virus hit me yesterday. That said, this campaign was bigger than just one race! I will make sure to do the next available half marathon, and keep on fighting!! The money we've raised is now on its way over to the RRPF, and thank you again!!!!