Running for RRPF

$3,563 of $5,000 goal

Raised by 66 people in 15 months
Megan Conley
for Recurrent Respiratory Papillomatosis Foundation
 HOBOKEN, NJ
I have good luck.

I'm the type of person who wins a designer coat from an online contest where the winner was picked at random, and the odds of winning is 1 in 100,000. (True story.)

I also have not-so-good luck.

I'm the type of person who gets an extremely rare and disease without a cure.

You win some, you lose some.

Odds aside, I'm determined not to ever let my disease win. For the past 7 or so years I've struggled with RRP. It's caused by a viral infection my immune system hasn't beat yet. 

I have an absolutely incredible doctor, who I admire and trust immensely. I've undergone dozens of surgeries, various treatments, and feel confident we're doing all we can to beat this thing.

That said, I'm creating this page to bring awareness to RRP so we can find a cure. The disease can be mentally draining, and The Recurrent Respiratory Papillomatosis Foundation gives me hope.

RRPF ( http://www.rrpf.org/about.html)
was created to provide patient/family support, serve as an information resource for patients and practitioners, promote public awareness, and aid in the prevention, cure and treatment of RRP by encouraging and participating in promising RRP research studies.

While at times I struggle physically, my voice is something no one- not even this disease- can ever take from me. 

On May 20th, 2017 I'll be running the Brooklyn Half Marathon. I'd like to use the Brooklyn Half as my way of bringing awareness to both RRP and the RRPF.

Any level of donation you can make would be much appreciated, and (of course!) 100% of them go directly to the foundation.  And please, absolutely feel free to share with friends, family (uber drivers?), whomever! #RunningforRRP

Thank you for taking the time to read this, myself and the RRP community are truly grateful!
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Hi everyone! I'm incredibly proud to say we raised over $3,500 for the RRPF.

Thank each and every one of you so incredibly much. Unfortunately, I wasn't able to make the race today
as a stomach virus hit me yesterday. That said, this campaign was bigger than just one race! I will make sure to do the next available half marathon, and keep on fighting!! The money we've raised is now on its way over to the RRPF, and thank you again!!!!
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Just read that the average go fund me campaign raises $1,126. Guess what?! We've already surpassed the average by raising $1,925 in less than two weeks!!! Thank you all SO, SO MUCH. Myself and the RRP community appreciate it more than you could ever know. Please continue to help us spread the word by sharing the charity campaign :)
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We are just shy of $1000 in just two days, this is so incredible! Thanks so much for sharing, all! Myself and the RRP community truly appreciate it. Let's keep the momentum going!!
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$3,563 of $5,000 goal

Raised by 66 people in 15 months
Created March 11, 2017
Funds raised will benefit:
Recurrent Respiratory Papillomatosis Foundation
  Certified Charity
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Langhorne, PA
EIN: 521798693
How it Works
  1. You make a donation using a PayPal account or a credit/debit card to PayPal Giving Fund (a 501(c)(3) charitable organization).
  2. After the deduction of GoFundMe platform and payment processing fees, PayPal Giving Fund delivers the funds it receives to the chosen charity on a monthly basis.*
* If, after reasonable efforts, PayPal Giving Fund cannot deliver donations to this charity, the funds may be donated to another charity per PayPal Giving Fund’s policies.
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BL
$25
Barbara Levy
12 months ago

Very proud of all your efforts, Megan, to raise money for this illness.

PC
$725
Prime Cycle
13 months ago

What a class and great group! All raised for a great cause!

$8
Anonymous
14 months ago
JH
$50
Joelle H
14 months ago

Kick ass friend

KA
$10
Kendall Alexander
14 months ago

Go girl!

MC
$25
Mary beth Campanella
14 months ago

Fight the fight! Thinking about you. Hoping for a quick recovery!

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