Running For Hydrocephalus
Hydrocephalus is a common disorder, also known as "water on the brain". The standard treatment, a shunt, was developed in 1952 and has a 50% failure rate after just two years which is the reason so many have to have multiple brain surgeries just to stay alive.
There is no cure and very little research. The NIH spends 60 cents per person with hydrocephalus per year compared to $300 per person per year with Juvenile Diabetes though the prevalence of the disease is the same.
I will be running the Vancouver USA Marathon on Fathers Day, June 16, 2013. Running a marathon has been a goal of mine for a long time, and I want to use my ability to run for something bigger than myself. Please consider a donation - none is too small!
All of the funds I raise will go directly to the Hydrocephalus Research Guild in Seattle, WA. www.hydroresearch.org
I hope that everyone who knows you really knows just what kind of kid you are Alex. You have one of the biggest hearts of anybody that I know, and the fact that you just turned 14 a week ago makes it that much more amazing. In this world of "me-me-me" you are a true compassionate, benevolent, altruistic, selfless, gentle, good-natured, kind, tolerant, gracious, charitable, thoughtful, humanitarian. And now you want to go and write personal Thank- You notes to everyone who helped you reach your monetary goal as you were training to reach your jaw-dropping physical goal of finishing your first full marathon in 4:30... hello!!!??? 26.2 MILES in 4 hours and 30 minutes and you just turned 14 years old! Does anybody else think this kid is nothing short of extraordinary? The dedication and stamina that you have are the kind witnessed in people who have been around much longer than 14 short years. And getting kids to write personal Thank-You notes is about as difficult as counting each individual strand of hair on your head. I don't think that's going to happen any time soon! This whole phenomenal ride that you just went on came about because you thought about your adorable 5 year old neighbor and little buddy and the pain and difficulties he continually went through and wanted to help and you thought of training for a marathon to raise money. And what a grand, amazing, special, wonderful gesture that turned out to be. I will be telling all of my classes each and every year how my sweet, quiet student with the heart of gold wanted to help and on his own was then able to turn that thought into action and inspire others, help hundreds, and pay it forward. It will be great to get waves of my future students to follow your lead by listening to your story. I know that you got me moving and thinking of ways that I can help. Thanks for being kindhearted, humble you. I know that your parents are extremely proud of you. They have raised a wonderful person. If only there were more kids like you, the world would be a much better place. Congratulations on all that you have accomplished!