Rory J. Williams- Rally for Rory Online

$4,304 of $25k goal

Raised by 48 people in 36 months
Amy Anderson  CASTLE ROCK, CO










Our fundraiser is in support of the Williams family and their 16 month old son, Rory James who is diagnosed with Miller Dieker Syndrome (MDS) which is a condition characterized by a pattern of abnormal brain development known as Lissencephaly. MDS is a rare genetic disorder and Rory and his parents are fighting for his life. Rory battles constant daily seizures, breathing difficulty, is fed through a feeding tube and is developmentally delayed. He and his parents spend a lot of time at the hospital and need your support. Beth grew up in Prescott WI and Woodbury MN and is a nurse at United Hospital. Ta Juan is a veteran staff sergeant with the United States Marine Corp, served 3 tours in Iraq, and works for DirecTV.

Select the links below for:

More about Rory's story

Rory's story on the news (video and story)


Contact the fundraiser director: finchjoellen@gmail.com for any questions.

All benefit proceeds will go directly to the Ness-Williams family for Rory's needs and expenses.
+ Read More
Update 7
Posted by Amy Anderson
26 months ago
Thank you for all the recent donations! The care and concern from our family, friends, and complete strangers hasn't stopped. Rory is hanging in there with recent physical (surgical) changes to help him breathe better, and is enjoying more quality of life at home with his mom and dad and familiar surroundings. He's getting to be a big (heavy) boy too and now has mobility expenses, etc. Thank you for your prayers, kindness, and generosity.
+ Read More
Update 6
Posted by Amy Anderson
27 months ago
Rory and his Dad and Mom
TaJuan, Beth, and Rory
+ Read More
Update 5
Posted by Amy Anderson
27 months ago
Rory surrounded by family
Rory and his Great Grandma
Rory and his Grandma Jeny
Rory and his Paga (Grandpa Tom)
+ Read More
Update 4
Posted by Amy Anderson
27 months ago
Rory
Rory and his Great Auntie and Cousin
+ Read More
Read a Previous Update
Help spread the word!
 327 total shares
Be the first to leave a comment on this campaign.

$4,304 of $25k goal

Raised by 48 people in 36 months
Created November 25, 2013
EK
$20
Erin Kelly
34 months ago

I'm praying for you and your son. God bless you.

AZ
$20
Allie Ziemann
34 months ago

Sorry I wont be able to attend your event. I wish the best for your precious baby!

LS
$25
Lana Strub
34 months ago
RS
$25
Rita Salas
26 months ago
$25
Anonymous
34 months ago
TL
$25
Terri Loveland
33 months ago

God bless little Rory...

BG
$25
barry godes
34 months ago
$25
Anonymous
34 months ago
GB
$25
Gus Barger
35 months ago
JV
$25
Jeanne Verley
34 months ago

Sorry we weren't able to make it...

Be the first to leave a comment on this campaign.
or
Or, use your email…
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now
 Share on Facebook