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Rory J. Williams- Rally for Rory Online
300+ Facebook friendsCASTLE ROCK, CO
Our fundraiser is in support of the Williams family and their 16 month old son, Rory James who is diagnosed with Miller Dieker Syndrome (MDS) which is a condition characterized by a pattern of abnormal brain development known as Lissencephaly. MDS is a rare genetic disorder and Rory and his parents are fighting for his life. Rory battles constant daily seizures, breathing difficulty, is fed through a feeding tube and is developmentally delayed. He and his parents spend a lot of time at the hospital and need your support. Beth grew up in Prescott WI and Woodbury MN and is a nurse at United Hospital. Ta Juan is a veteran staff sergeant with the United States Marine Corp, served 3 tours in Iraq, and works for DirecTV.
Select the links below for:
More about Rory's story
Rory's story on the news (video and story)
Contact the fundraiser director: firstname.lastname@example.org for any questions.
All benefit proceeds will go directly to the Ness-Williams family for Rory's needs and expenses.
Thank you for all the recent donations! The care and concern from our family, friends, and complete strangers hasn't stopped. Rory is hanging in there with recent physical (surgical) changes to help him breathe better, and is enjoying more quality of life at home with his mom and dad and familiar surroundings. He's getting to be a big (heavy) boy too and now has mobility expenses, etc. Thank you for your prayers, kindness, and generosity.
Rory and his Dad and Mom
Rory surrounded by family
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