Support for Rob Cressen
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Support Rob Cressen in his Fight Against CRPS/RSD
For seven years, Rob Cressen has been battling a rare, debilitating disorder called CRPS/RSD. His friends, family and colleagues are raising money to help support Rob and defray the overwhelming costs of his medical treatment. Contributions of any amount are greatly appreciated and will go to the Rob Cressen Special Needs Trust to help cover his medical expenses and basic living needs, such as rent.
A message from Rob:
Seven years ago, I was diagnosed with a condition called CRPS/RSD (Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy.)
CRPS/RSD is a rare neurological disorder that causes severe inflammation in the sympathetic nervous system. It occurs after a severe trauma such as musculosketetal or nerve injury, surgery or a broken bone. In my case, it was competing in a triathlon, where I suffered a horrific break in my left leg.
The pain it causes me each and every moment, of each and every day is more than devastating. The trauma causes my nervous system and my immune system to malfunction - the nerves throughout my entire body misfire, overwhelming my brain with pain...
Pain encompasses my entire body. ALL DAY. EVERY DAY.
It has been SEVEN YEARS since I've walked, (as I am remanded to a wheelchair,) held a job (as the neurological affects preclude me from doing so,) or even been fortunate enough to receive a proper "hug" or "handshake" as my sensitivity does not allow for such.
Before CRPS, I was at the heights of both my professional career and my competitive career as a marathoner/triathlete; I had acheived the position
as the very first Executive Director of the New Jersey Republican State Party to serve under two Governors, and had competed several times in such prestigious races as the Boston Marathon and Ironman distance triathlons.
All of this has been taken by this disease. As of this year, more than 200,000 people in the U.S. suffer from CRPS, which is being classified as one of the nation's "most painful medical disorders."
As you can imagine, the cost of treatment is overwhelming, and being unable to hold a job not only effects my ability to cover medical expenses, but has also caused sometimes severe depression.
Please help if you're able. There is no cure, at present, for my disease but that doesn't mean that I can't hold out for hope.
Thank you.
Rob
For seven years, Rob Cressen has been battling a rare, debilitating disorder called CRPS/RSD. His friends, family and colleagues are raising money to help support Rob and defray the overwhelming costs of his medical treatment. Contributions of any amount are greatly appreciated and will go to the Rob Cressen Special Needs Trust to help cover his medical expenses and basic living needs, such as rent.
A message from Rob:
Seven years ago, I was diagnosed with a condition called CRPS/RSD (Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy.)
CRPS/RSD is a rare neurological disorder that causes severe inflammation in the sympathetic nervous system. It occurs after a severe trauma such as musculosketetal or nerve injury, surgery or a broken bone. In my case, it was competing in a triathlon, where I suffered a horrific break in my left leg.
The pain it causes me each and every moment, of each and every day is more than devastating. The trauma causes my nervous system and my immune system to malfunction - the nerves throughout my entire body misfire, overwhelming my brain with pain...
Pain encompasses my entire body. ALL DAY. EVERY DAY.
It has been SEVEN YEARS since I've walked, (as I am remanded to a wheelchair,) held a job (as the neurological affects preclude me from doing so,) or even been fortunate enough to receive a proper "hug" or "handshake" as my sensitivity does not allow for such.
Before CRPS, I was at the heights of both my professional career and my competitive career as a marathoner/triathlete; I had acheived the position
as the very first Executive Director of the New Jersey Republican State Party to serve under two Governors, and had competed several times in such prestigious races as the Boston Marathon and Ironman distance triathlons.
All of this has been taken by this disease. As of this year, more than 200,000 people in the U.S. suffer from CRPS, which is being classified as one of the nation's "most painful medical disorders."
As you can imagine, the cost of treatment is overwhelming, and being unable to hold a job not only effects my ability to cover medical expenses, but has also caused sometimes severe depression.
Please help if you're able. There is no cure, at present, for my disease but that doesn't mean that I can't hold out for hope.
Thank you.
Rob
Organizer and beneficiary
Jeanette Hoffman Henne
Organizer
Shrewsbury, NJ
Rob Cressen Supplemental Needs Trust
Beneficiary
