Ride For Rare Diseases
Donation protected
This summer, I want to make a difference.
Starting June 11th, I will be riding 3,000 miles from Seattle, Washington to Cleveland, Ohio, on a mission to promote awareness and raise money for research into rare diseases. I myself have the rare disease Hypokalemic Periodic Paralysis (HKPP), meaning that I have a potassium deficiency in my muscles, which can lead to weakness and temporary paralysis if levels reach too low.
Rare diseases are often misdiagnosed many times before they are diagnosed for certain, and I want to help reduce these occurrences. In addition to raising awareness, I also want to advocate for further research into how exercise can benefit people with my disease, HKPP. My biggest inspiration comes from my mother, Emily Low, who also has HKPP. She was also an athlete in her youth, but unfortunately had to stop due to the disease. I am riding for all who suffer and have suffered, but her especially.
I will be biking, alone, from Washington to Ohio, and stopping along the way to give presentations and share my message. I will be documenting my experience and updating my progress on both my website and social media. The 3,000 mile route will start in Seattle, and go down south to Portland, before heading east through the Columbia Gorge and going on to Boise, Idaho. It will then turn southeast and go through the cities of Salt Lake City, Utah, and then Denver, Colorado, before then heading north again towards South Dakota. Then, I will ride east through to the Twin Cities and the Great Lakes, and pass through Chicago before arriving in Cleveland in early August, just in time for he USA Triathlon Age-Group National Championships, which I will be competing in. Shortly after I compete, I will be traveling to Dublin, Ireland, to speak at the 2018 Periodic Paralysis Association International Conference, where I will share the story of my Ride for Rare Diseases.
The money donated here was to have gone to expenses for my ride (food, lodging, etc.). However, due to the amazingly generous support from my sponsor, Strongbridge Biopharma, all of the ride expenses are being covered by them! Due to their support, I am very excited to say that all of the monies donated here will go to the Periodic Paralysis Association! The PPA is an incredible organization led by rare disease patients, for rare disease patients and they have an incredible commitment to rare disease research and patient support.
To donate to the Periodic Paralysis Association directly, in support of further research into HKPP, the disease that I have, please go to the following link: https://www.periodicparalysis.org/site/donate-now/
Please get involved by visiting my website, rideforrarediseases.com, and my Facebook, Instagram, and Youtube pages
Facebook: Ride For Rare Diseases
Instagram: Rideforrarediseases
Youtube: Gabriel Low
Website: Rideforrarediseases.com
Starting June 11th, I will be riding 3,000 miles from Seattle, Washington to Cleveland, Ohio, on a mission to promote awareness and raise money for research into rare diseases. I myself have the rare disease Hypokalemic Periodic Paralysis (HKPP), meaning that I have a potassium deficiency in my muscles, which can lead to weakness and temporary paralysis if levels reach too low.
Rare diseases are often misdiagnosed many times before they are diagnosed for certain, and I want to help reduce these occurrences. In addition to raising awareness, I also want to advocate for further research into how exercise can benefit people with my disease, HKPP. My biggest inspiration comes from my mother, Emily Low, who also has HKPP. She was also an athlete in her youth, but unfortunately had to stop due to the disease. I am riding for all who suffer and have suffered, but her especially.
I will be biking, alone, from Washington to Ohio, and stopping along the way to give presentations and share my message. I will be documenting my experience and updating my progress on both my website and social media. The 3,000 mile route will start in Seattle, and go down south to Portland, before heading east through the Columbia Gorge and going on to Boise, Idaho. It will then turn southeast and go through the cities of Salt Lake City, Utah, and then Denver, Colorado, before then heading north again towards South Dakota. Then, I will ride east through to the Twin Cities and the Great Lakes, and pass through Chicago before arriving in Cleveland in early August, just in time for he USA Triathlon Age-Group National Championships, which I will be competing in. Shortly after I compete, I will be traveling to Dublin, Ireland, to speak at the 2018 Periodic Paralysis Association International Conference, where I will share the story of my Ride for Rare Diseases.
The money donated here was to have gone to expenses for my ride (food, lodging, etc.). However, due to the amazingly generous support from my sponsor, Strongbridge Biopharma, all of the ride expenses are being covered by them! Due to their support, I am very excited to say that all of the monies donated here will go to the Periodic Paralysis Association! The PPA is an incredible organization led by rare disease patients, for rare disease patients and they have an incredible commitment to rare disease research and patient support.
To donate to the Periodic Paralysis Association directly, in support of further research into HKPP, the disease that I have, please go to the following link: https://www.periodicparalysis.org/site/donate-now/
Please get involved by visiting my website, rideforrarediseases.com, and my Facebook, Instagram, and Youtube pages
Facebook: Ride For Rare Diseases
Instagram: Rideforrarediseases
Youtube: Gabriel Low
Website: Rideforrarediseases.com
Organizer and beneficiary
Gabriel Low
Organizer
Hilo, HI
EMILY LOW
Beneficiary
